New member

[Claireos]

I have just found this forum today and am my wits end. Forest endometriosis op was 2010 when an ovary was removed. Second opinion 2011 to remove it from the bowel,2012 full hysterectomy. Last year the pain returned and I nos have bowel and bladder issues. The pain is intense and I have been given tramadol,nurofen,gabapentin and oral morphine. I am currently off work as I can't manage the pain and medication side effects. I have been told further surgery is not an option due to adhesions. Can any one suggest anything at all that may help please?

[JeanOsborne]

Hi are you at a BSGE centre?

[Claireos in reply to JeanOsborne]

No what's that?

[JeanOsborne in reply to Claireos]

They are specialist centres for endometriosis. Search on here for a lady called Lindle and look at her posts on treatment pathways and how to find a specialist.

[Claireos in reply to JeanOsborne]

Thank you xxx

[wiltedandbewildered]

You poor thing! That sounds awful for you. It all sounds very familiar too. The only tiny bit of advice I have is that taking Colpermin (a bowel support tablet) has slightly improved my associated bowel pain and discomfort. I feel for you as your story is not dissimilar to mine and I know how miserable it can be.

[JennieJo]

You poor thing, sounds terrible. I have a similar history but my problems and pain are nothing like as bad as yours, so can't offer very much advice. I was told nothing could be done because of adhesions too and have just decided to live with the odd bout of pain. The only thing I would say about bowel problems is to look at diet eg in my case I had constant diarrhoea and found that cutting out my bowl of museli in the morning and replacing it with a poached egg on toast has been a complete life changer for me. I'm also getting very good at making poached eggs! And I would definitely go to an endo clinic - your GP should refer you - or maybe a pain clinic?