Hi, I'm new to the group and am reaching out for your support.
I had a complete hysterectomy and ovaries removed about 10 years ago (age 36) due to stage 4 endometriosis which resulted in a frozen pelvis and extensive bowel damage.
After a long history of botched operations, I found an amazing surgeon who worked with 2 bowel surgeons and a vascular surgeon to free me from pain for the first time in 18 years. The endometriosis was also found in my kidneys and liver. I suffer from very high blood pressure (family trait), so could not go on HRT.
I honestly thought this was the end to my problems but six months ago the pain came back with a vengeance.
Once again, my bowel is seriously compromised but I have been told there are no other surgical options and the pain relief (co-dydramol and amitriptyline) are not touching the pain.
Apart from pain, I am completely exhausted all of the time and suffer fast onset diarrhoea most days, which is challenging as I work about an hour's drive from my home. I am a single mum, so giving up work is not an option.
Can anyone else relate to me and if so, is there anything you can recommend to help with the pain, bowel issues or any surgeons who have amazing abilities who can give me back any semblance of a life?
I appreciate your support xx