Since the age of 14/15 I have suffered with bad periods - heavy bleeding and excruciating pain. So many doctors visit's and paediatric doctors appointments. I was told at first 'the pain is in your head darling' until we mentioned my Aunty suffers from severe Endo. Quickly was referred to the Gynae, had a laparoscopy and was put quickly on HRT after (I'm only 16 at this point) for a while it was fine and the bleeding was no existant. But during intercourse I would get pain and slight bleeding. Slowly it started creeping back, but I found Utovalon - this was my saviour, 3 tablets a day and would stop the bleeding.
Few years later, in a serious relationship, I needed contraception. I have tried the pill - however I got pregnant and suffered a miss carriage. The bleeding was constant and pain horrendous. I went back to see my Gynae, and he gave me a second laparoscopy - said it was all fine but a bit clogged up. Followed by another 6months of HRT. By this time I am on the implant, so many hormones in my body!
Over a year later, I am still on the implant and now resorted back to taking Utovalon. If I miss one tablet a day - I bleed, not just spotting full on. I have been advised by another Gynae to either come off the implant (no contraception and not ready to have kids yet) or stop taking the Utovalon (then I will constantly bleed) as I have to many hormones in my body. Neither is a realistic option, I know that if I don't take the Utovalon, I will constinuously bleed. Its a constant struggle, and have been through a lot. From my op, it doesn't sound like the Endo was that bad... Then what else could it be? I know my body and have tried so many different routines with the tablets and they haven't worked.
I'm 22, with Endo and an under active thyroid - I feel tired and could sleep anywhere. Putting on weight is crazy easy, loosing it seems like a mission, I'm overweight. I don't seem to get pain, only now and again but the more I bleed the more I expect it - that's one positive I guess. Silly things, I can't wear white knickers as I know they will get ruined, or conscious what clothes I wear. Have to really watch what I eat, taking 4 tablets every night.
Not sure on where to go next... Not a routine I want to live forever! Any advise would be great from Women who have more experience in this horrible disease?!