Hello! I am very new to this!! Having read through a lot of posts on here I would consider myself a little bit luckier than most!!
I have always had painful periods, something which I just considered to be normal. Then out of the blue last October I had a UTI, very unusual for me!! I took my antibiotics and felt better but then 5 days later I had pain on my left side which I can only describe as something needing to pop!! My GP sent me for a scan which showed a very swollen left kidney. I was referred to the urologist who said it was likely something I had been born with that may now be causing a problem. I had a CT scan and a renogram over Christmas and the new year. Basically my left ureter was blocked and my left kidney was failing!! I was then referred to a gynaecologist coz the CT picked up a mass on my left ovary! I was reassured all the way and was quickly booked for surgery.
So I had a laparoscopy on Feb 18th. They also did a cystoscopy. I have very extensive endometriosis on the left side which has squashed the ureter. They took out my left ovary and tube which had a large endometrioma. It's on my bowel and there is also some on the right side.
The ureter has been stented to see if any kidney function can be salvaged but with only 9% function before the surgery it's not likely. I have started a 6 month course of zoladex and just had my 2nd jab last week.
The reason why I am posting is this has been a complete shock to me and I am now coming to terms with living with a chronic condition when I had always considered myself fit and well!! I don't really know what to do! I am taking some time out from my job and have a fabulous holiday to look forward to this year. I am trying to stay positive but have to succumb to pain every day now and night sweats like I would never have imagined!!
I have checked out the endometriosis uk website to look for a support group near me but there isn't one. I am a talker so this is my next best thing and when I next see the gynae team am gonna ask what local support is available if any.
I have fabulous friends and family but it's difficult for them to understand sometimes.
So that's me and this is, I fear, just the start of my journey.