Firstly I'd like to apologise for the rambles your about to read but I'm in desperate need of some help and advice. I can't take much more.
I was diagnosed in 2011 with stage 4 Endometriosis by a laparoscopy aged 21. It was pretty much everywhere and the surgeon said it was hard to get rid of, but she had managed to burn it all away. I had to go back a few month later to see her as the pain got worse, she said it couldn't of been my endo causing the pain as it had gone so must of been old PID that was also found that has left everything permanently swollen. She said there was nothing else that could be done and told me to go back and see her after my children and she'd give me a hysterectomy!!!
Everything was good for a while, then I moved in 2014 and I was struggling with pain again. I pushed for a referral to the gynecologist as they have a specialist endometriosis clinic where I live now. I saw her in November last year and she agreed I need another laparoscopy, although she wants to do a diagnostic one first before treatment so they can decide the best treatment plan. That's booked for 4 weeks time but I just can't wait anymore.
I'm currently writting this in agony with tears running down my face. I have never in the 4 years since I've been diagnosed been in this much pain. It's constant cramping, nothing numbs or dulls the pain and it drains me completely, this has been going on for 3 weeks now and it hasn't stopped.
I went to the drs Friday where she gave me antibiotics for a suspected bout of PID again, as well as tabkets for my ibs incase it was a flare up of that. I had to go back Monday as I had severe side effects to the tablets. Again, I was crying to the drs as I have been everyday for the past 3 weeks. She referred me to the hospital for scans and blood tests ect. After 5 hours all came back fine and I was told by a "lovely" man Dr that I had to just keep going with pain relief until my operation in 4 weeks. I left the hospital in tears feeling completely helpless and weak.
Does any one have any idea what could be going on? Obviously my endo is back but why is the pain so bad? It's immobilising! I really can't take this anymore and I wish I was listened too. I'm at work now wondering how I'm going to make it through the rest of the day without taking my trousers off because of the pain I'm in.
I'm so sorry to rant. Please help.