Hello there, I'm new to this forum and I've been brought here after two years of feeling crazy and being told that it's all in my head! Just from reading some of these posts I actually feel like a human being again because I'm realising that what I'm experiencing is real.
I'm 19 and since my first period, when I was 11, I have had ridiculously heavy periods. The bleeding was accompanied by excruciating period pain and would leave me tender for the remainder of my cycle. Regardless of life being hell, I carried on and got on with it because I was told it was normal. At this point I didn't have any additional symptoms until I turned 15 and was amidst my prelims for my highers. I couldn't sit for two minutes without going to the toilet, either with extreme diarrhoea or severe constipation with the constant abdominal tenderness.
I lost almost a stone in weight and was told I had IBS, which I accepted however no matter what treatment they tried me on my bowel movements calmed down to a somewhat 'normal' state but my tenderness and pain remained.
Jump to 2014, where I was now experiencing bowel problems, excruciating pain during and after my period, sharp nerve-like pain around my anus, sharp uncomfortable pain during intercourse and beyond heavy bleeding. Not to mention what my doctor described as 'trapped nerve pain' in my lower back which left me breathless every time I had a shooting pain. My GP recommended the mini pill, however it didn't relieve any symptoms. So my GP referred me to have a mirena coil inserted, even though she was reluctant because I was only 17 at the time.
The mirena is a whole other story. I had very irregular bleeding after having regular periods since I was 11. I felt faint and had dizzy spells very frequently and experienced even HEAVIER periods. I kept being told that it would take a few months for it to settle so I endured it. Come September 2014 I started to experience incredibly severe pelvic and abdominal pain low on my right hand side. The pain made me feel incredibly sick, made me double over and feel like I was going to faint any minute. One Saturday morning I collapsed with the pain and my boyfriend phoned an ambulance.
Once at the hospital they realised I had a right ruptured ovarian cyst and a right ovarian torsion. I had laparoscopic surgery and the cyst was removed. The surgeon explained that it may have grown due to the hormones in the mirena coil so I was keep to have it removed. I was told that I would have to wait at least six weeks to recover from my surgery before having it removed so I had a follow up appointment for eight weeks time.
Eight weeks time came and I was doubled over in excruciating pain again and crying hysterically so my boyfriend and his mother had to phone me an ambulance again. Another 8cm cyst was found on my right ovary after having a 5.5cm cyst removed eight weeks beforehand. At this point, I felt hopeless, I was told that I would experience this for life and they had to operate yet again however this time a full incision had to be made.
Since my last operation in November 2014, I have had sudden, unbearable low right hand side abdominal and pelvic pain which makes me rush to the hospital. Since my last operation my coil has been removed and they have found no further cysts however every two to three months I am admitted to hospital and fed morphine to manage my pain, for what the doctors explain is 'nothing serious'.
They aren't willing to do any further tests apart from blood tests and ultrasounds but they keep telling me that nothing is wrong. My last hospital admission was last week where a nurse screamed at me 'There is nothing wrong with you!' In front of the full ward and made me feel so minuscule. All because I was crying hysterically as I had been waiting 5 hours for morphine which was due an hour before I buzzed the nurse.
I am so tired of being told that it's in my head, it has affected my confidence, is affected my relationship of 3 years with my long term boyfriend, is affecting my work life and career prospects and just my day to day life. I don't want to spend my life in hospital on morphine unable to anything. I just feel so hopelessly lost.
I went to the GP again with my mum today and she said to me it sounds like it could possibly be endometriosis. She has referred me to gyn for a possible laparoscopy in 12 weeks time but I found this forum and I experience the majority of symptoms which other brave ladies have posted on here. I don't know yet if I have endo but I haven't feel more understood in all of my life than I do here on this forum. I worry that it isn't endo because I really don't know what I will do from there.
Any advise is greatly appreciated,
Daria, 19 from Scotland