Feeling fed up

Is it just me or does this condition make you feel so fed up sometimes that you just want to scream?

I've always tried to remain positive and have always remained hopeful with whatever life has thrown my way and try to let things make me rather than break me. However with this condition i am finding that Its starting to sloooowly creep into my psyche and making me miserable. It's turning me into someone I am not really familiar with and that in itself is getting annoying.

People around me have noticed that I am quieter than usual, don't enjoy half the things that I used to. I am always 'in my own zone' as they always put it. I understand how frustrating it must be for others that I'm withdrawn like this but I don't really know what to say half the time. Don't want to keep talking i am sure they're sick of hearing about it. I rant on here because I know others here would understand and can relate.

Can't cook things i love ( I love baking for kids) can't pick things up, can't get up and sit down without holding on to something, can't sneeze or cough without screaming sometimes, sleeping is a nightmare sometimes and the lack of energy and appetite does nothing to help me cope. >< Constantly holding on to my belly whenever i walk or pass by someone or if my kids jump near me for fear of it being touched or bumped into.

Hate having my kids see me like this. Wish I could be stronger sometimes.

Anyway, just wanted to know is it just me?

Thanks

M x

[Chloe28]

You are definitely not alone in feeling that way!

I felt everything you said, whole heartedly. I am sick of hearing myself talk about being in pain, so everybody else must be. The affect it has on relationships.. Just everything!

I feel it all. ♥️💜♥️

[Hidden in reply to Chloe28]

God, if only it was as easy as just popping a pill and have it all go away!

Thanks for your kind words. 💕

I'm sure there are worse conditions out there (although it feels like there isn't with this endo thing!) and that in itself keeps thing in perspective for me.

I would like to say that i am glad that i am not the only one who feels like this, (because i wouldn't wish this pain on my worst enemy) but its upsetting to also know that so many others have to go through this. I am just glad I have people on here whom i can relate to and moan to who understand. This has helped a great deal.

But the fact that this THING comes during your period is even worse ( I know its period related lol) because your period alone is enough to deal with with the heavy bleeding, cramps mood swings etc but yeah let's throw endo in the mix why not?

On day 4 of my period and couldn't sleep last night from all the stabbings and burning and have to get up to shoulder all that responsibility, so yeah not a happy bunny right now. Just tired of it all.

Sorry for the rant.><

M x

[Chloe28 in reply to Hidden]

Its horrendous, while that perspecrive is always a good one for us all to keep in mind, pain is relative. To us, at the time the pain peaks atleast, there is no greater feeling. Don't feel as though you have to mask it by saying others have it worse, for you it doesn't feel like it could be worse.

Easy for me to say to somebody else, but i get through everyday telling myself someone else has it worse. I too am so glad i found this, its awful knowing so many suffer the way i do, but its so good to not feel completely alone with it!

Hope you are feeling atleast a little better today and manage some rest! ♥️

[Hidden in reply to Chloe28]

You're right.

When that pain hits you it really feel like its the worst thing ever.

I have had 4 c-sections and a twisted ovary and the pain from those doesn't even come close to this! It especially annoys me when my hubby moans about how painful his headache is 😐. I just feel like telling him to stop being a spoilt brat! 😁😁😁

Thanks. Hope you get some rest too!

M 💕

[Chloe28 in reply to Hidden]

Haha, yes. I know, like dude.. You have no idea what pain is okay? 🤣 ♥️

[Hidden in reply to Chloe28]

😂😂Yep. Still thinks he has it way worse...😣

[Hidden]

I understand everything you are saying and i feel this way too. I often go quiet and within myself especially when people ask the same things i get frustrated because my answers are the same nothing has changed still in pain just no point keep saying it.

You are strong and doing the best you can just remember that 🌻💜xx

[Hidden in reply to Hidden]

Thank you for your kind words. Sorry you're also feeling that way. Its frustrating isn't it?

Yep I know what you mean about just no point in talking because there's nothing new to say but every time i get a flare-up others are always acting like its the first time they've seen me like this and keep asking me 'what's wrong?' 'Does it really hurt that bad?' and i feel like screaming and saying 'you know what's wrong with me, and yes I've said it 100 times till i am blue in the face, yes its THAT bad!' 😠 hahaha... but I don't I just say 'yeah the usual'.

It's tough.

M💕

[Lovedsibling]

You are not at all alone in this

I’m at this particularly time of my life going through the same

Just hang in there

Ask help if you have the option

[Hidden in reply to Lovedsibling]

Thank you!. Appreciate it..Will do.

Hope you get relief too.

M 💕

[stacylee78]

You’re definitely not alone 💛

[Prettythings1]

I am totally the same word for word! You are not alone,

Mine has got much worse since having my second child I have intense period pains for 1 to 2 weeks before I’m actually on my period which is quite abnormal I believe I was supposed to be going for further tests for this lockdown happened but my referral got cancelled

I can’t really take any painkillers because it knocks me out and I’ve got to look after my children so it’s horrific xxx

[Hidden]

><. Sorry to hear that. That must be tough. What we go though just to get through one day is sometimes a miracle. Especially with all the responsibilities and work,housework etc. But having that much before you even get your period, that doesn't leave you many pain free days, does it? ><

I feel for you, and yes this lockdown has disrupted so many tests, i am wondering when things will go back to normal...not that I even know what normal is anymore 😁

Stay safe and i wish you relief and joy in your life.

M 💕

[Rosie_Eliz]

Hi Mulan64

I’m sorry to hear about how you’ve been suffering, it sounds like you’ve had a really difficult time.

If you ever find you want to talk to someone about it, we do have a free hotline run by volunteers with a personal experience of endometriosis.

Here is a link to the opening times:

endometriosis-uk.org/helpline

Best wishes,

Rosie_Eliz

Endometriosis UK