Anyone any experience?

[Weeshortie]

Hi ladies, I've just found this forum and looking for some help. I was diagnosed with severe endometriosis all over my pelvis including my bladder and bowel after 8 years of investigations, dismissals and operations, a lot of which sadly continues in my health care. I was incredibly lucky to have a successful third attempt at IVF in 2013 and was blessed with beautiful boy/girl twins. I continue tonsured with awful pain and symptoms including joint pain. Last (and fourth!) lap was Dec 2014 where excursions were made and top layer of bowel removed. I had relief for three months and was on depo at this time. By the march symptoms returned and I tried mini pill, things continued to deteriorate and in July this year I had the mirena coil fitted with high hopes. Things have gotten steadily worse and now I've been told I'm almost out of options ( loving the positivity eh?!) and been prescribed 6 months of Decaptyl which if successful will lead to surgery to remove ovaries. My question after this huge story is have any of you been told it's ok to keep the coil in during this treatment? I've been assured it's fine but always thought you shouldn't have any contraception during the treatment? Please help before I go completely insane!

[Tboag]

Hi there, God you do sound like your going through it,

I don't have your answer I'm afraid, but have you been being treated at a BSGE specialist centre?

I wish you every luck, xxx

[Weeshortie in reply to Tboag]

Hi! Thanks for replying, no I live just outside Glasgow and think the nearest centre is 60 miles away. This is a different nhs area so not sure how I would be referred or funded? Will discuss with my gp. Just couldn't believe doctors are still pedalling the old nothing more they can do line. I felt so low and I'm lucky I'm someone who knows there are options. Are these centres providing better outcomes for endo?

[Tboag in reply to Weeshortie]

Hi there, I've been seeing a genral gyne, had a lap in April diagnosed with endo and Adenomyosis endo excised and then in July hysterectomy for the Adenomyosis, I'm still in pain so got referred to a specialist BSGE centre (50miles) as I font think my surgeon got all my endo,

So yes I do believe it could be worth you while, don't know how you go about it in Scotland, but I think I've read that there is one their,

My gp knew nothing about these centres so I took all the details to him and he referred me.

I'd drive to Scotland if I thought it would help me, so bloody fed up with it all lol.

Let me know if you need any help

Xxx

[ab24601]

I'm also out of options (just made a post about it)

What is Decaptyl? Is it like prostap\zoladex?

[BellLady]

Sounds like you need some non chemical forms of healing! Wobenzym can get rid of endo and change of diet can help loads!!! Start looking online for natural ways to get rid of endo its much more effienct than the cut it out but its going to grow back methods the drs trust... Decreasing your estrogen intake gets rid of these problems a good natural progesteron cream like nat pro or fertilica will help a ton use like 4× the reccomended dose though if you read wray white she explains why good luck!