Mirena removal

[Jess256]

Hi ladies,

I had my mirena removed today and just wanted to share my experience in case anyone is thinking about having it out and worried about the pain. It was not half as bad as I expected. The speculum hurt more than the removal! Just a short, sharp pinching feeling and it was out. I'm feeling quite sore and swollen at the moment but I'm sure that will go down quickly.

I had it removed because my endo has come back over the last few months which tells me the mirena isn't doing its job in preventing the endo. So while I'm waiting to see my new gynaecologist, I thought I'd have it out. I also gained a tonne of weight on it and my skin is horrid. Additionally, I didn't really want it put in in the first place but I was kinda of steam-rollered by my surgeon.

Anyway, feel free to ask any questions. Sending you all love x

[Sam341]

Please keep me updated if you don't mind.

My endo is very much growing with the coil but I haven't had it out because I currently do not get periods and I'm worried that if I get it out then things might be worse than they already are. I am also struggling with losing weight and having skin problems (first time in my life)

Would love to know how you get on.

[Jess256 in reply to Sam341]

Hi there,

I rationalised getting it taken out because it clearly wasn't stopping the endo from growing and that was the whole reason for putting it in to begin with. I didn't get periods with it in either. I suppose there is a chance it may get worse without it now, but it may also get better.

I will keep you updated

[Jess256 in reply to Sam341]

Hi there! I have written an update for you xx

[Angie205276]

Hi thank you so much for sharing your experience.

My surgeon put a Mirena in during my lap 18 months ago. It has completely stopped my periods which has been amazing for me. I have not had weight gain (besides monthly bloating) or skin problems however i have dreadful bouts of depression and anxiety that have gotten progressively worse in the last 12 months. This has really affected my whole life and at times I have considered taking it out but am hesitant because I'm concerned the endo will return.

How long did you have the Mirena and what stage endo did you have when it was put in? I was stage 4 and all my organs were fused together including my bowel.

I had been experiencing pain on my left side for a couple of months and have been told that the Mirena has caused a blocked Fallopian tube so I have a big German sausage shaped tube on one side which I can feel a lot of the time however the pain is not severe.

I am going back for another scan next month.

I'm worried to hear that your endo has come back whilst you have had the Mirena. I was told it was the best preventative measure...

Thanks again to you and others who are so honest with this info. It really helps us all xx

[Jess256 in reply to Angie205276]

Hi there,

I'm so sorry to hear about the side effects you've experienced. I can't imagine how difficult that must be. Obviously I'm no doctor but, from what I've gathered, there are so many different ways to manage endo. That's why I didn't really hesitate to get the coil removed. Everyone reacts differently to things, sadly it's trial and error as to finding one that suits you. If the treatment you're on (the coil) is affecting your life so awfully, perhaps it is worth trying something different. My cousin had fantastic success with the injections that mimic menopause.

I had the mirena fitted during a lap in April this year. My doctor actually never told me what stage I was. My left ovary had fused to my bowel and they found a "small" piece of endo on my pelvic wall (but I'm told even a small amount can cause extreme pain). So I'm not sure what stage that makes me - sorry!

Gosh, I'm so sorry to hear that. That sounds really uncomfortable. I'm quite shocked that it's the mirena that caused that.

I was also told that about the mirena but it goes back to the simple fact that women react differently to different modes of treatment, especially when it comes to hormones. The mirena works for some, and not for others. Sadly, you don't know if it will work unless you try!

You're very welcome. I love this forum and the support it provides so thought I'd share my experience xx

[Jess256 in reply to Angie205276]

Hi there! I have written an update for you xx

[n0pity]

Thank you for sharing the experience, I have been contemplating it but I'm terrified that the random bleeding will return. Please keep me updated!

Good luck xxx

[Jess256 in reply to n0pity]

That is something I've considered but I weighed it up and, for me, the pain and side effects outweigh keeping it in.

I will keep you updated xxx

[Jess256 in reply to n0pity]

Hi there! I have written an update for you xx

[n0pity]

By the way, my new gynaecologist (endo specialist) wasn't happy about me having the Mirena, but she told me to keep it because it stopped my bleeding. I'm taking the pill next to it to avoid getting my period and ovulation for 6 months (had to start after my lap, which was two months ago). She told me that with the Mirena the chance of endo growing was quite big, so maybe this could help other in their decision of getting/removing the Mirena.

[Jess256]

*A little update for those interested*

Hi ladies!

So the mirena has been out for a month and I'm pleasantly surprised at how I've been!

I came on my period only two days after the removal. It wasn't especially painful at all. I haven't had periods for so long and it almost felt "good" (as good as it can be!) to have them back again - normal, if you will. I did spot for a good while afterwards. I think it will take a while before my cycle returns to normal because I've used different forms of contraception for so long my hormones are all over the place. My skin is also really bad at the moment. However, I've put that down to my hormones having to rebalance themselves.

Most importantly, however, is the endo-saga. I've only had pangs of the endo pain since having the mirena removed. This happens especially when my bladder or bowel (sorry!) is full and applies pressure to what I expect is the endo. I actually haven't taken my codeine painkillers since the mirena has been out.

Sadly, I still haven't had my referral to a new gynaecologist. However, given that things are (touch wood!) okay at the moment, I'm prepared to wait.

As before, feel free to ask my any questions I may not have addressed. If it would be of use to you, I can update you all again in another month or so - just let me know!

I hope you are all well xx

PS. I'm not sure that you are automatically notified about this update so I'm just going to write a little message to your previous replies to alert you to this

[Sam341 in reply to Jess256]

Thank you for the update. Do you feel it has made things better? I have a coil check on the 8th and planning to have mine removed with the hope that Maybe having periods will balance my hormones.

[morningnoonannight]

Hi ladies, realise this is an old post but can any of you let me know how you are getting on without Mirena and what happened in the time between then and now? Seriously considering having Mirena removed for similar problems and side effects...