Advice please : Got diagnosed with... - Endometriosis UK

Endometriosis UK

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Advice please

Laurakr profile image
16 Replies

Got diagnosed with Ednometrosis in December last year! Had a laparoscopy do discover this. Been good only had a few times but it's lasted like a few hours but I didn't sleep last night been bed bound all day part from doctors and nhs community hospital tonight and still can't sleep cause the pain is so bad!

I'm taking 30/500 co-codomal and tramdol and also naproxen but the pain is getting worse has anyone tried something else that's worked for them? Just want the pain to go away :(

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Laurakr profile image
Laurakr
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16 Replies
Kayleigh1985 profile image
Kayleigh1985

Hi Laurak

I take cocodamol and tramadol together but when this is not enough the doctor has prescribed oramorph. You can't take this with Tramadol as far as I'm aware but my GP gave it me as an alternative when the pain is very bad. I also use a heat pad on my back all the time and raise my legs as it puts less pressure on the abdomen. I'm actually sat like this as I'm writing as I'm in pain xxx I do think if the pain relief you taking isn't enough to at least reduce your pain a visit to the hospital may be needed as they can prescibe morphine which is a lot stronger plus they can check you over. All the best and I hope the pain improves xxx

Laurakr profile image
Laurakr in reply to Kayleigh1985

Thanks Kayleigh! I've never had the oramorpth! Been on a lot of different pain killers. Im currently lying with a hot water bottle on my belly will try raising my legs to see if that's helps. Didn't know about that! Hope your pain goes away soon too!

Got to go see my Gp again tomorrow so trying to hold off till then. Thanks again for your advice xxxx

Kayleigh1985 profile image
Kayleigh1985 in reply to Laurakr

I really hope your GP is good and you have their support to get some relief as pain is so draining and uncomfortable. I find leg raising can help me as I get pain in my hips and it relieves that as well. I hope it helps and the hot water bottle is always a good shout.

All the best and keep smiling there are ways and means of managing this with the right support and drugs he he xxx

Brownlow profile image
Brownlow in reply to Kayleigh1985

I only learnt last week that raising your legs helps with abdominal pain. I was in hospital and the nurse raised the end of the bed. Within a few minutes the pain had eased. I'd far rather do this than take pain meds. A few pillows would do the trick.

Laurakr profile image
Laurakr

Hi Linda. I've not had my follow up appointment yet at gyne. All I know is it was lasered off. It's constantly sore worse than period pain it's like tooth ache but constantly with shooting pains. It was a gyne specialist that done the lapaocospy x

Laurakr profile image
Laurakr

It was done in the hospital didn't go to any specialists for it. I've been keeping a diary of when it does flare up but this is the worse it's been since my op. Got to go back to the doctors today so hopefully they will be able to help me out as my follow up isn't till August x

Rrl12345 profile image
Rrl12345

thank you so much for sharing I have exactly the same mine wasn't lasered off by a specialist and it has got worse since the lap end of 2013 and he has now retired and when you mention his name everyone raises their eyebrows so I am constantly worried what he put me through and done to my isnides! He just oh all better now yes ive got rid of it but he didn't explain anything or talk to me at all, absolutely useless! going back to doctor next week to see if will listen and try again to get referral, are there specialists in endo then I can mention to him rather than the gynae who never listen to me? thanks everyone for sharing, feeling very low today and reading the posts and knowing not alone really helps xx

Laurakr profile image
Laurakr in reply to Rrl12345

I was at doctors yesterday and ended up at the out of hours last night as the pain got worse. Have to go see my doctor again today as it's not getting any better and I only got my op done in December 2014. Hope your gp will be able to help you. I'm thinking of looking at going to a specialist for it too. As I'm only 22 nearly 23 and they ain't doing much to help me

Rrl12345 profile image
Rrl12345

it is the fighting all the time, I'm 41 and when I look back I've had it years but took 2 years of fighting to get taken seriously then diagnosed end of 2013 but since then had no support or help just fobbed off. sorry about the pain getting worse and doctor not really helping, did she offer any advice on the pain when you saw last night? stupid thing is now is when they should be helping you hun rather than you suffering another 20 years like us oldies have (I didn't feel old til you said 22 now I feel a right old mare!!!) 41 years young really! ;) xx

Laurakr profile image
Laurakr in reply to Rrl12345

It took me 2 years of fighting for them to finally do something too! All they done was gave me naproxen but it's not helped any. 41 is not old! Hopefully they do something for you too! Will let you know how I get on today and see if it helps you any!! X

Rrl12345 profile image
Rrl12345

thanks hun think just feeling old today with endo pain and granny cardigan and hot water bottle when everyone else is outside in the sunshine!! ;) keep us posted hun and keep smiling x

Laurakr profile image
Laurakr in reply to Rrl12345

I'm curled up back on my sofa with a blanket and hot water bottle! I've to keep taking my pain killers and if it's not any better by Friday I've to go back and it will be a trip to hospital for morphine and possibly surgery again!

Hope you feel better soon x

Rrl12345 profile image
Rrl12345

oh hun sorry to hear, have you tried rubbing some lavender on your wrists and temples or burning a relaxing candle and putting on some meditation music while resting with our dear friend the hot water bottle? failing that how about a good chick flick to distract for a bit? x

Laurakr profile image
Laurakr in reply to Rrl12345

Going to go for a bath with lavender bubble bath hopefully that helps and I will be able to get some sleep. My wee sister is patiently waiting on me to watch a chick flick with her x

Rrl12345 profile image
Rrl12345

bless glad someone there looking after you, it may sound hippie but meditation or calming music can help but lavender definitely does that or chamomile, pukka do great teas as well liquorice and mint which I find help the cramps - try and find a bubble bath that is more natural so no SLS in (nasty chemicals) or Epsom salts are supposed to be really good for relaxing muscles and can put drops of natural essential oils in - xx

Laurakr profile image
Laurakr

I've got a lavender candle that I put on earlier. Just hoping that I get a decent sleep now! Aw my wee sister has been great at helping me even having to help me get dressed which I never thought I would need help with xx

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