Advice needed please - bowel endo?

Hi all,

I was diagnosed with endo a few years ago and I have had a few ops to remove endo and cysts previously.

I have been fortunate enough to have 12/18 months pain free but I have been brought back to the world of endo pain with a bang. I am in a lot of pain in my abdomen but it is a really deep almost achy like pain, my stomachs feels really heavy and I am getting pain in my groin and down my legs. The pain is worse when i open my bowels or pass water.

My GP thinks it could be endo on my bowel...has anyone here been diagnosed with endo on the bowel/bladder? What symptoms do you have?


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6 Replies

  • Hi, i have endo on my bowel and my symptoms are similar to yours as in i have pain down my legs, and around to my back because of it, i also have a lot of pain while going to the toilet but saying that i dont pass stool often, because of my endo on my bowel ive gone a month without going to the toilet so I definitely know your pain!

    Personally i think its endo on your bowel ( sorry to say that i know its not what you want to hear).

    Good luck xx

  • I have Endo on the outside of my bowels not on the inside so they left it. I do have some pain but it's nothing compared to what it was before. The endoscopy is really quick and was given the all clear straight away. Have it checked.

  • Hi, I've just recently had surgery and been diagnosed with endo, it covered my bowel but didn't perforate aswell as my bladder, apparently the endo stopped the sigmoid from mobilising. what i experienced was feeling heavy in the stomach, loss of appetite/never hungry, constipation, diarrhoea (would vary day to day), pain when passing, lots of gas issues, abdominal pain (severe - needed strong painkillers just to sleep) and vomiting if i ate foods with certain sugars, i had to go on the fodmap diet to stop the vomiting but these are all the symptoms which were related to my bowel having endo and stooping it mobilising. i had pain when passing water too and constant urgency and was not emptying the bladder fully - this was related to endo being on my bladder. i had the gynae issues too - it's an awful thing really. My surgery was very successful though and no more issues gynae, bowel or bladder wise - but i'm on week 4 post op so ....wait n see i guess! Hope the bowel symptoms don't get much worse and they sort something soon!


  • I've had severe endo on bowel. I had a bowel resection last Feb and so far felt better but it took a while to for bowel to recover after op. It can take up to 12 months for bowel to heal. Prior to op I was in excruciating pain when going to loo. I'd be shaking, hot sweats and unbearable pain that would come on suddenly which I knew I had to go to the loo urgently. It took over my life for years, leaving me exhausted and drained each time x

  • Morning all, thank you so much for your replies.

    I will call my GP to book an appointment and get referred back to my gyn asap then as I am feeling worse each day, hopefully they can resolve it before it gets as bad as you guys have had it!


  • Hi - can you click on my name and have a look at my posts of rectovaginal endo and on how to find a specialist centre. It is vital and required by NHS guidelines that you are dealt with only in a specialist centre wherever you are in the UK. Feel free to send me a message if you need help getting proper care.

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