Hi, I'm desperate for some help and advice here for my beautiful 13 year old daughter. She started her periods over a year ago and was fine. They were pretty regular and she only had occasional mild pain. Then in February of this year, the pain got worse through her period and carried on after her period stopped. Her abdomen was tender, central and right, so I took her to the GP who suspected either an ovarian cyst or appendicitis. She was admitted to hospital and went in for surgery. Before surgery, the surgeon told us he suspected retrograde menstruation rather than appendix. Afterwards, he confirmed that this was indeed the case and that there was a considerable amount of blood pooling internally which is what was causing the pain. He took her appendix out anyway so that any future pain would be more easily diagnosed. He said that there was no sign of endometriosis and that he saw no reason to believe it would occur again.
In March, she was again in a considerable amount of pain and we took her to see a gynaecologist. (We're working in South Africa at the moment and have access to private - and therefore quick - medical care) Gynae confirmed via a scan that it did seem that there was blood pooling internally and put her on Visanne. She said that if this wasn't dealt with, then there is a real risk of endometriosis developing.
In April, she had a 4-5 days of pain, increasing in severity, then 5 days of bleeding but no pain, then a day of no bleeding or pain, then bleeding again for 3 days, then 3 days of less pain, manageable during the day but worse in the evening.
This month (May), she is now on her third day of pain, at a worse level than last month and severe enough for me to have taken pity on her and kept her home from school for two days. She says the pain is central and slightly to the right, around her belly button, and that the pain is much worse if she moves around. Ibuprofen doesn't really touch the pain at all. So I'm waiting to see if she is going to actually have any bleeding, but just wondering where we go from here.
I have had endometriosis myself and had a hysterectomy earlier this year. I also had ovarian cysts and polyps - to quote my gynae "there was a lot going on down there".
Just grateful for any advice and suggestions. I'm finding it so hard to see my daughter go through this and know that this probably isn't something that is going to just go away.
Thanks all.
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