My lovely 14 year old has been virtually off school since last November with severe pain in lower abdomen.
She was initially admitted thinking it was appendix, then they have trawled through other conditions, IBS etc. Dr didn't initially think it was Endo as she was, in his opinion, too young so referred to Paediatrician, back in early March, who immediately referred to a Gynecology, however the appointment didn't come through for ages so we arranged a private appointment (with the same consultant she will see on the NHS) last month. He felt it was Endo, however as she had just been put on Logynon by the GP suggested tricycling this and gave her Transexamic Acid and Provera in case of breakthrough bleeding (which she has had) She has been taking 40mg of Amitriptyline and Ibuprofen since January and is still in so much pain (I cannot remember a day since last November that she hasn't been in pain) and just recently almost every day is a 9 out of 10.
It is putting so much stress on her - next year is the start of her GCSE's and on me, seeing her in so much pain all the time.
Has anyone had a laporoscopy at 14? Will they do it? Will they take her seriously as she is so young? Is it worth trying diet as control (she is putting on weight through no physical activity and comfort eating).
She feels her friends are abandoning her as she never makes any of the 'gatherings' and even on better days dreads school as she is so far behind. It makes me cry just writing this.
Anyone out there got any good positives that I can offer a little girl who currently sees a very bleak future.