Total Pelvic Peritoneal Excision - Has anyone had this?

[MrsCocco]

Hi guys.

So I'm pretty new to this and I've seen a few people mention Total Pelvic Peritoneal Excision. I was just wondering if anyone would be helpful enough to share there experiences with me?

I've tried prostap, multiple pills and had the coil fitted in January. I'm due to see my consultant next week and the pain hasn't really changed at all. I was going to ask if this is an option, but wanted to check a few things first.

Has anyone had this procedure on the NHS?

If you have had this, have your symptoms now gone/got any better?

I'm in a situation at work where I could ask for some funding towards surgery depending on a few things but I want to know a bit more information first.

If people have had it privately, would you mind advising me on a rough cost of this?

And did you have to go see a specific consultant for this? If so, does anyone know of one around South Wales area?

Thanks guys

[someone1986]

Hi,

I have gone to appointments to the 2 doctors Lindle is mentioning in the last month.

Please feel free to send me a private message for details on names, fees and experiences with them.

Regards.

Someone

[skt68 in reply to someone1986]

Hi someone1986

I was very interested to read your post re appointments to the docs lindle mentioned. May I send you a pm for details etc as well as seriously going to go down that route myself as not much joy from my consultant gynie skt68 xx

[MB63 in reply to someone1986]

Hi someone 1986,

I am very interested in your experience with those Drs too so hope you won't mind if I pm you too for further information. Many thanks xx

[someone1986 in reply to MB63]

Not a problemas, sending you a pm

[minty04]

Hi someone 1986 could you send me a pm also about the two doctors please.

[someone1986 in reply to minty04]

Hi. Give me a few hours and I will reply you today

[minty04]

Thank you

[MrsCocco]

Hi Lindle,

Still waiting on my notes from the hospital but spoke to his secretary on Friday who said she had received the request and worst case scenario is I can pick it up when I see him on Wednesday. Better late than never!

I have a list of questions to ask him ie what stage, how much was removed last surgery and where and if any was left.

I went back to the doctors on Friday because I had been back on Tramadol last week to help relieve the pain and needed more. doctors refused to give me anymore Tramadol but gave me Norethisterone to take on top of the coil and told me this should relieve my symptoms and co-codamol 30/500 just in case. Still in agony today and co-codamol isn't touching it at all tbh.

Just not sure what I can do to make it better