I had total peritoneal excision, with ligaments removed, organs and nerves shaved just over a month ago, after years of unexplained pain. After the surgery I had great results, was in pain from the surgery but saw improvement.
The first few weeks I was over the moon and felt positive that my life was getting back to normal. But now I aren’t seeing any further improvement and some days I am back crying with pain.
I can’t take anti inflammatory tablets as they make me ill. So I am still on codeine everyday and odd oromorph now and then. So it’s disheartening that I am can’t function through the pain without codeine.
My surgeon did say it will take a year to know what pain I am left with and I know I am still early days but was hoping I would no longer be on strong pain relief.
I am meant to be going back to work in the new year (now) but I don’t know if I can manage it! I am so upset with myself and don’t want to be ill in bed for another year. Over Christmas I have tried to put a smile on my face and enjoy it but it is so difficult 🙁 At the back of my mind I can’t stop wondering if the endometriosis has spread somewhere else.
Has anyone else had this surgery or similar and able to put my mind at rest. Inform me how long till they were back working or how long till it all subsided. Also should I have the doubt in my head that I have more endometriosis grown. I fully trust my surgeon did a great job and got rid of any he saw. But obviously could only shave my bowel and bladder and there was a lot of endo there. My womb and ovaries were the only things that looked okay but I worry that it could be growing there or on the inside.
Thank you in advance and sorry it’s so long, all my worries just keep building up!