Hello everyone! I have just joined and wanted to share my story and hear anyone else's, I'm Lucy, 28, no children and was finally diagnosed with severe endo two weeks ago!
Story starts 10 months ago I came off the only pill that controlled my horrendous period called *qlaira* I decided after being on the pill and so many others from the age 13 it was time to give my body a break as me and my boyfriend of 6 years would like a baby soon, and as you can all guess it started from there, I woke up one morning in August in a pool of my own blood and light headed, made my way to the bathroom and that was last thing I fully remember in and out of consciousness. Two days later they realised i had abscesses and cysts everywhere in my Fallopian tubes and all over my ovaries and had septicaemia. They operated and removed the cysts and abscesses, came home few days later and took me a couple of month to fully heal and get back to work. 2 months after I came on a horrendous period, sickness and the pain, I can't describe, doctors gave me butrans morphine patches as I couldn't keep any tablets down, then went away back to work again...my mum who is a nurse at a private hospital got me an appt with a gyny surgeon who does nhs patients, he went through all my symptoms and wanted me to go for an MRI scan, few weeks later my results came back, he said he could see something and wanted to do a laproscopy asap, so my appt was booked for 7/1/15, in that time I came on my period again, few days before Christmas eve, straight to A&E again, and on to the ward, pain relief through IV. I begged to go home Christmas Eve night and they allowed as I was already coming back for the operation. Had my operation couple weeks ago and his first words to me while I was recovering was, no wonder you've been such a mess, and in so much pain, you have severe endometriosis and everything is stuck together, natural conceiving will be difficult. I had my post op appt yesterday and he's put me on zoladex for the next six months, if anyone has any advice or stories of getting pregnant after this treatment please let me know, I know no one with this disease and feel quite lonely, no one knows how it all feels unless you suffer yourself I believe, it's an invisable disease to everyone else, many thanks.