Oopherectomy or Hysterectomy?

[BluePanda7]

Hi everyone, I have been recently diagnosed with endometriosis and adenomyosis. I saw a gynaecologist at my local hospital who said my choices for treatment are either oopherectomy or abdominal hysterectomy as I've had 2 c-sections. There was no mention of a laparoscopy.

I also have hypermobility (EDS) and have been told having a hysterectomy can make it more likely for bladder/bowel prolapse whereas the oopherectomy would preserve the ligaments and prevent this...

I asked if I need an MRI to see how deep the endo is and if it's spread and she said no. I feel very confused as to what would be better and if the oopherectomy would be enough to stop the chronic pain.

Should I get referred to a specialist endometriosis centre for better advice or do you think this sounds accurate? Have any of you had success with an oopherectomy for endo and adenomyosis? Xx

[Jade2006]

Don’t take any advice from general gynaecologist they have no clue , yes a mri will show up things just make sure you have the contrast die.

I’m sorry your suffering, don’t let them touch you x

[BluePanda7 in reply to Jade2006]

Thank you Jade 2006. That was my gut feeling too! Xx

[Blue1745]

I guess it varies from person to person and gynae to gynae. However I had a right sided salpingo-oophorectomy by laparoscopy 7 years ago and it helped with the endometriosis. I had it due to an endometrial cyst on the ovary.

It took around 2 weeks for me to recover.

An abdominal hysterectomy usually has an 8-12 week recovery period and you will be advised not to drive or do any heavy lifting in this period too.

I can’t advise on adenomyosis.

You may want to get a second opinion before going ahead.

[BluePanda7 in reply to Blue1745]

Thank you Blue1745. Did the oopherectomy help as I have an endometrioma on my right ovary too? Has your endo eased since having the laparoscopy? Xx

[Blue1745 in reply to BluePanda7]

They told me I had stage 4 endometriosis. I still have endometriosis as there isn’t a true cure.

Yes the removal of my right ovary and Fallopian tube helped for about 5 years. Now I can’t tell you if it’s peri menopause symptoms or endometriosis. I suppose everyone is different and what works for one may not work for someone else.

I had a good gynaecologist she completely got it and sorted my pain out. However this was after multiple A&E attendances and a whole investigation by surgical team to rule out non gynae issues, then 6 months of medically induced menopause.

Nothing ever seems to be simple but after all that yes it massively helped my symptoms and meant I could function again xx

[Jade2006]

You will just end up needing more surgery more than likely.

I had my right ovary removed and large cyst and I can tell you now I still suffer and there is something that needs removing in that side still , I could tell as soon as I had my next period straight after I was still in lots of pain and I was right as it showered on my mri that was done at the endo center

I have adenomyosis too .

I will not deal with general gynaecologist .

Good luck with it all and keep pushing xx