Nothing found on laparoscopy!

[Laura8397]

Has anyone got any advice? Both my GP and Endo specialist have said that all of my symptoms match endometriosis. I had a diagnostic laparoscopy in January 2019 but no evidence of endometriosis was found. I'm at a loss with what to do, my mental health is diclining, i've been off work for 6 months and I'm dreading my wedding next month due to the pain.

Severe pelvic pain, long and painful periods, difficult bowel movements, painful sex, the list goes on.

Any advice would be appreciated! I'm losing the plot

[EndoJaz]

Was it an endo specialist that did the lap? I get how you feel as I was diagnosed with a femoral hernia which showed on 3 scans but when operated on, they couldnt find it..u just need answers. What has the doc said since the op?

[Laura8397 in reply to EndoJaz]

Specialist from a BSGE centre, it’s so frustrating knowing there’s something wrong but they can’t find it.

He prescribed Prostap injections which haven’t done anything so far, only cause heavy bleeding, been on the injections two months now.

[EndoJaz in reply to Laura8397]

Its so unfair that in this day and age we are treated like this. I have been told its imagined pain in the past 😬 felt like punching the doc!

[Laura8397 in reply to EndoJaz]

The same has happened to me, it’s ridiculous!

[AllthatGlitters]

Hello I couldn’t read your post then not reply. Your symptoms match mine & I have large clots, flooding and very heavy periods too. They gave me a lap and doc and consultant were sure it was endometriosis however it was clear. I knew I had adenomyosis prior to this as I was diagnosed via MRI. Have you had an MRI scan? I would really push for that. Please PM if you need to chat xx

[Laura8397 in reply to AllthatGlitters]

Thank you for replying! Nothing on MRI either, I’ve been put on Prostap injections but so far they’re not doing much and I’m losing the will at this point xx

[Hannah0091]

Hey! I really feel for you! Is there any chance the endo is in a place they could not access? It must be so frustrating for you. The one thing I would suggest is to just ensure they treat you properly and treat you for Endo anyway. Have you ever looked into the possibility of andenomyosis? I don’t know loads about it but understand the basics it’s was described to me as a sister illness of endo. Don’t give up! Stay strong! 😊 x

[SL01]

I have not had laparoscopy yet but had pelvic MRI that found nothing.. I can relate to the mental health aspect. It is draining constantly advocating for yourself but getting no where. Sending love and prayers your way, hope you figure it out. Stay strong.