Severe Hip Pain

[BenitaDaSilva]

Good evening All, I am currently under investigation for Endo and had a Pelvic scan, just waiting for the results. I currently suffer from severe hip pain (already excluded hip problems with X-ray). I have all the normal symptoms of Endo but over the last six months have severe hip pain, almost as if I pulled or torn a muscle/tendon where the pain is on the outside of my hip and goes up and over my left side to my abdomen. I cannot lie on this side at all the pain is excruciating it almost feels like appendix pain. I cannot sit for long periods. Does anyone else experience this sort of stabbing burning sensation in the hips, buttocks, lower back etc.?

[Laura_T]

Yes it’s like I’ve wrote this. It all started with feeling like my hip needed to pop, like that sharp pain you get. So I started getting my friend to pull at my leg to click it. Well it wasn’t that 😬

It would hurt walking, laying on the right side, getting out of the car everything hurt it. Went for X-ray, mri with dye test nothing found. I had 2 laps for endo removal when this new pain came on. After a while my hip started throbbing and radiating to groin, felt like pins and needles down side of hip and thigh, when walking I’d get shocks of pain going down my lower back, down to right buttocks and then numbness. This would normally happen before a period but now it’s happening more frequently. Told my consultant about this and he mentioned maybe the endo has attached to the sciatic nerve. I feel your pain. I am waiting for my 3rd lap hopefully in the next few months x

[Peebles2sarah]

I get similar pain in my right hip! My ovary is inflamed and covered in adhesions so it’s compressing my sciatic nerve on that side and that is what is causing my hip pain. Could be a similar thing for you.

[rae02]

I’ve been experiencing the exact same in my right side. I’ve always been told it was muscular I’ve seen numerous NHS physios, was referred to a muscoskeletal specialist who sent me for an MRI which showed nothing. I’ve seen private physios, chiropractors even an osteopath, had to attend a 6 week back pain session and nothing has helped. My doctor just last month has referred me as he thinks I may have endometriosis and I’m now awaiting my first laparoscopy 31st May. What you are describing is exactly the pain I’ve experienced, it was all in my hip until then it seemed to be more where I had appendix pain. I’ve struggled walking as it just hurt my hip so much, can’t seem to ever get comfortable when sitting or driving.

[emmaquinny]

I had really bad pain in my left hip before I had a lot of endo excised from the left of my pelvis. I have barely had any since then.

[eew_notts]

Hey!

Sorry to hear you’re feeling so unwell. It won’t necessarily help you other than to offer reassurance, but I had a cyst on my left ovary (removed 3 weeks ago) and it was fairly large, so much so that I woke up one morning with the most horrendous back pain in my upper back but my cyst pain felt significantly less intense. I went to a chiropractor, I didn't actually mention my Endo cyst until the middle of the appointment when she mentioned my pelvis alignment, but the pain was actually as a result of my pelvis being pushed out of alignment, causing muscle spasms right up my back. Once I’d been clicked back into place, the back spasms stoppimmediately but the cyst pain came back as the cyst was obviously being compressed again. Anyway! I hope you get answers soon and your pain eases.

[Tillyfloss]

hi. Sorry your so uncomfortable, I know exactly how it is ☹ . For me it was both hips, I was needing to take 29 pills a day to even get slightly comfortable and would often end up in hospital for pain management. For me it turned out to be stage 4 endometriosis and a full frozen pelvis, with cysts. I had a brilliant surgeon and I literally could tell the difference the day after and 4 days later i was just taking paracetamol for the uncomfortable soreness from surgery. My scans were clear, only showing the cysts. It felt like something was being screwed into my hips it was excruciating. Ask to be seen by the pain team and look into the Endo diet as this helped a little. Are you under a bsge specialist? Xx

[BrightLights88]

Yes I do, I was diagnosed with endo last year September 2018. Since then I have a flare up with all these pelvis, lower back, abdominal pain every 3 months which I am admitted in hospital for a week and half managed with high dose of pain killers. After discharge I am pain free till the next flare up.