Questions to ask at pre op for excision surgery. Any advice greatly appreciated xxx

[Tina2609]

Hello Ladies

I have my pre op tomorrow . My op is on Thursday after years of suffering and having tried everything I feel like my life is on the line. I am so nervous they won't find any more endo. ( had diagnostic lap back in sept 12) most days are bad days now. I suffer bowel symptoms and often show signs of Urine infections. I was told after a sidmoidoscopy that my bowel is stuck to my abdominal wall and just last week was told my womb is tilted. I know this is common and it shouldn't cause any painetc but II never used to have a tilted womb I know that as I have two kids when I was pregnant there was never an issue with ultrasounds like there was last week. Could this be something to dowith the endo? Sorry going on a bit now. . But my worr are. As far as I have been told there will be no bowel prep? Would I need a multi discaplidisciplinary team. The surgeon assured me when he put me down for this that he would look at everything. I need thus to be successful so I have get my life back it has taken so Michael from me. Any comments would be amazing love to you all xxxxx

[Tina2609]

Sorry ladies just read this back. Can't believe how many mistakes I made hopefully it still makes sense xxx

[ashleyjane88]

Hi tina sorry to hear your having a tough time at the moment! Im having my lap tomorrow and i havent had any bowel preps (thank goodness that stuff is evil) i also suffer with bowel problems but until tomorrow i wont know if its related! The nurses that you see at pre ops are generally really great with their advice, as far as eating goes i have to stop at midnight and can only drink clear fluids till 5.30 in the morning! As far as the multidisciplinary question im afraid i dont know but the nurse tomorrow should be able to put your mind at rest! I totally get how your feeling about the importance of this op im totally there with you and my ultimate fear is the 'we didnt find anything much out of the ordinary' as i want a new start in life so bad too but saying that the ladies on these forums are amazing and we are all in it together i suppose (if im diagnosed of course lol)! Good luck tomorrow and let me know how you got on as you seem to have some interesting questions! Lots of love and do not forget to write down all your questions! I forget to ask really important things all the time!! Xxxxxx

[Mabes]

I am waiting for my first lap but wanted to say... I also have now got a retroverted uterus when I didn't used to have. I had ultrasound scans when I was 12/13 and 19/20 and everything was in place - normally placed uterus and ovaries could be seen with pelvic scan. Fast forward to aged 29/30 and suddenly they can't see my ovaries on pelvic ultrasound so give me a transvaginal one and take a long time of digging around with the probe to find them. I went for another scan in Jan aged 33 and now not only can they not find my ovaries but my uterus has retroverted so she does the transvaginal and eventually finds them.

I too was left wondering if this means something. It just seems odd that I'm in this 'state' now of terrible pain in lower back, rectum, bladder and bowel, and it's all happens after/around the time that all me bits and bobs seem to have moved around!

I'll be really interested to know what you are told about yours.

I hope your pre-op and laparoscopy go well and that you get the answers and help you need.

Xx

[millz82]

Hi there, I also have a retroverted uterus and something dodgy with the cervix, which I knew about before the endo. Thought it was all down to having an ovary removed at 22 because of a torted cyst but the endo could have played a part in it. There is no bowel prep before these - that tends to be before procedures inside the bowel; sigmoidoscopies and colonoscopies notably. Don't panic, they know what they're doing and they'll do what they can in the op.Maybe ask if they do find endo how soon after the lap you'll get treatment for it? I had my lap to remove endo from my pelvis, gynae organs and up the ureter up to the right kidney and also have alot of waterworks and bowel issues, like many of you other endo ladies. Endo is nasty and leaves very little untouched when it's on one! Good luck hun, hope it goes well, do let us know xx xx

[millz82]

Ooops meant to say I had my lapin march and I'm still awaiting treatment which is a bit of a joke being that it's blooming well spreading everywhere again. So try and ascertain maybe if they will follow the lap with treatment asap xx

[Tina2609]

Hi Ladies

I am so sorry that I have not replied before now.

I had the surgery- he removed my right Uterosacral Ligament as it had deep endo all over it. I did get some relief for about 5 weeks then it all started to go wrong again! Starting having extreme pain left and right side every time i put a foot down. I tried to contact my surgeon who I think is brilliant ( Dr Dewart) but he was on holiday so I was kinda just left the gp was no good, eventually I was sent up to ward I was in. They told me the endometriosis is back and I that i have ibs. I honestly feel like I have went back 2 years. I met with my surgeon on Friday, They are putting me back on Decapeptyl injections again and are going to try a different HRT, they have also upped the pregablin dose. I honestly cant believe it I am only 27 and this will be my second experience with the Menopause, I really thought I would be free of it all after my operation. Sorry for going on. xxxxx