It's a long on girls so bare with me (: I just feel like letting it all out to some one who understands how I feel and not an idiotic Dr! I'm 20 years old and I've been having troubles for 3 years now, the first year I was palmed off with IBS and on one occasion, constipation! (I was not the one full of s**t).
The second year after I had a normal ultrasound done and nothing was found my Doctor told me I was fine and to just get over it. Year 3 and 16 visits to hospital later I see one beautiful Dr at A&E and I feel so lucky to have gotten him as he used to study gynecology! He feels my stomach and ask maybe 5 questions and says I need to see a Gyno. So as blessed as I felt to have had that guy, I went back to my GP and tell him what the ER Dr said and he reluctantly refers me for a transvaginal exam. I had the exam and my left ovary could not be found at all (coincidently the same side as the pain I've had for 3 years?) But my GP still said that was normal and nothing was wrong with me and it's just 'pelvic congestion' giving me all the pain and symptoms.
At that point I actually gave in and got on with it for a couple of months until one night when I was crying in bed in pain, clutching a heat pad my Fiance insists on taking me to A&E and asks to see the Dr we saw before, luckily enough he was on call! I saw him and let me tell you now I just sat there and cried to him, he said he didn't even need to examine me and he knows how much pain I'm in and he can see it in my face. And the one thing that made me feel normal again, he said 'Don't you ever feel like you're crazy or it's in you'r head because it's not.' He wrote a rather aggressive letter to my GP and a couple of months later my GP drops me and hands me over to another GP who then referred me to have a consultation with a specialist gyno! (There is a God!) That consultation was last week and I now have my laproscopy booked for the 20th May. It's crazy but I'm actually excited lol just to know that the past 3 years are all done with now.
I would also like to talk about my symptoms too as I always read these forums and relate so much to the things you all mention, yet if I mention something to my GP they just say 'no, endometriosis doesn't cause that'. So first symptom was pain in my lower left abdomen, that pain has stayed in the same place for 3 years now it just comes and goes, it feels like some one is trying to rip something out from inside of me at times. I have also always suffered with heavy periods all my life and clotting/ almost black periods. Back ache! I have had lower back ache all my goddam life but as of recently it has gotten worse.
Pain during sex, that comes and goes, some months it hurts and others it doesn't but we have been known to go 5 months without it is that painful. Ovulation pain, this one's weird because I only get it on my right but if/when I do I always have a 'good' month symptom wise, if I don't feel the ovulation pain and I'm assuming I ovulate on the left, the pain is a hideous as always.
Now the most recent ones, kidney pain and bladder problems. I have been in hospital over night a few times for my kidneys as I was in such terrible pain, Drs always put it down to UTI but it never was, they never found a UTI they just fobbed me off with meds. Anyway I've had a CT done to check on my kidneys and other tests run due to very faint traces of blood in urine but they all came back fine. I have asked numerous Drs if Endo can spread to your kidneys and bladder (as I know it can, I have read loads of your stories) and they all flat out said no! Some days I am on and off the toilet every 2 minutes, I may as well live there I just can't get any relieve from it. There is a alternating constipation and diarrhoea cycle aswell.
Also in the past 3 months I have noticed on my 4th cycle week I get sciatica pains, my lower back will be worse than normal, when i sit down my right leg will go numb and so will my arm. Tingling sensations all over my body and sometimes shaking if i try to do too much. I have had spinal xrays and CTS done to check for any nerves, or muscles or disks and they were all fine. I only get these symptoms on my last week before my period, when I start my period they all vanish until the same time next month. As per usual though my GP said 'no, endo doesn't cause that' and sent me to physiotherapy.
I can pretty much draw a diagram of the symptoms and the cycle they follow now as I'm so used to it. I only get 5-10 days after my period pain free and it totally sucks but we all know that eh :/ The only way I can find relife is from a cocktail of painkillers; buscopan, ibuprofen and diahydrocodien. Though if i take them they will knock me unconscious so I try not to. And of course heat pads and water bottles, I'm permanently attached to mine.
I have also chosen to have the Mirena coil fitted during my lap as treatment as I didn't want the shot as you can only be on it for 6(?) months. And I've been on the combined pill for the past 5 years and that clearly hasn't helped, if anything it's made matter worse. I know there are some bad reviews about it but there are also some great ones so I just hope it can help me. Even if it just gets me through until after October when I come back off holiday, I'm so worried it's going to come back again.
Thanks to every single one of you that has read all this and I'm sorry that it's so long I just needed to get it off my chest to someone that understands. Thanks again, Nichola <3