Endometriosis UK
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Are prostap injections as bad as people say?

Hi there. I was diagnosed with endo three years ago, had laser surgery two years ago, but have now been advised by my consultant to try prostap injections. However, I have read so many bad reviews about them and am a bit anxious to go down that path. Any information would be great.

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No not at all. I'm 26 due to have my last of 6 zoladeX next week. I don't have any numb cream or anything. They hurt a little but by the time you actually feel it its over with. Also I found that not taking the hrt improved my moods.

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Thank you for replying :)

I haven't been offered HRT with mine, instead I've been advised to continue taking my contraceptive pill. Just worried about people saying zoladex can cause bad anxiety as I suffer from panic attacks and anxiety already.

Nice to hear that the injections can have a positive result though :)

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I just want to chip in here and say that anxiety and panic attacks go hand in hand with menopause symptoms... yes, you 'may' get them taking zoladex/prostap but the HRT is designed to releive that symptom.

NO one can say with any certainty if you will feel better or worse because you are unique. My advice would be to try, on the understanding you will likely have hiccups but know that these can be manageable.

IF nothing else, it gives you an idea of whether a hysterectoy would be the right choice in the longterm....

xx

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There's a period where you might feel grim between when you have an injection and before they put you on HRT or stop the injections. I'm experiencing that now. I am feeling really tired, I get migraines, feel sick and get hot flushes. I am like a week off having the HRT though. I don't want to scare you, just be honest. I've been feeling like this for about a month or so. I am still in pain from the Endo but mine is really severe and might take a year or so on prostap. Hugs and good luck to you.

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I get a lot of them symptoms already, just worried that the injections will make them worse.

Sorry to hear that yours is severe, it's such a horrible pain :( I hope the prostap work for you.

Thankyou :)

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I have been on prostap for 2mths and so far so good. Hot flushes, night sweats, achy knees dry skin and frizzy hair are my side effects along with forgetfulness - literally mid sentence you forget what you are saying. But all this is copeable compared to Endo. I don't take hrt. Ask for the monthly injection so that you can stop taking it if it doesn't agree with you, whereas if you have the three mthly one you will obviously have to wait longer to get it out of your system. Good luck!

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Yeah, endo symptoms are just as bad as the symptoms people say they get on prostap, just worried that they'll be doubled.

It is the monthly one that has been recommended for me, so I would definitely stick to that rather than try three months.

Thankyou :)

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You need to stop using it hun. It's chemotherapy. I run a group called Lupron warriors on facebook send a request to join and you can see the evidence for yourself hun. I'm disabled now because of it and very ill.

#Lupronwarriors on Facebook

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I took prostrap for 5 months, most amazing 5 months ever since i was diagnosed. I was symptomatic of menopause within a week (my consultant deciding expect this until atleast month 4) but I had no endo pain :)) I went straight over to the implant, which isnt working at the moment as I started bleeding Wednesday and have been off work most of the week. Good luck xxx

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Its such a breath of fresh air to hear that it worked for five months. Must be nice to get some relief :)

Were the menopause symptoms very bad?

I keep having to take time off due to the endo, just want to get back on track and find something that works.

Thank you. You too.

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It might give you relief for a little while but after it will get . It's chemotherapy. I run a group called Lupron warriors on facebook send a request to join and you can see the evidence for yourself hun. I'm disabled now because of it and very ill.

#Lupronwarriors on Facebook

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Had my first injection last Friday, I have had no side effects so far, don't know when they will kick in, if anyone can enlighten me would be much appriciated. I am on them for 3 months, to see if they stop the pain that has returned after having my ovary last year, endo clusters removed and my bowel detached from my womb, after all this, endo was only discovered at the lap, I was pain free for the first 2 months. If this works then it will a hysterectomy, as I have a cysts on my other ovary x

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Hope this works for you :)

Hearing a lot of positive feedback which is nice. Hopefully you'll be symptom free. Good luck :)

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Yes I too am on progesterone only pill. I have got flushes and night sweats but I'd rather put up with that than be anxious panicking and down in the dumps. Oh and curly you've probably just answered a question I hadn't even considered. My hair is a nightmare at the minute had no idea the two could be related!!

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Yeah, anxiousness is awful, definitely agree that hot flushes are a better option.

Sounds like the prostap have different affects on different people.

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You need to stop using it hun. It's chemotherapy. I run a group called Lupron warriors on facebook send a request to join and you can see the evidence for yourself hun. I'm disabled now because of it and very ill.

#Lupronwarriors on Facebook

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I would have them done its the best think I did I'm on my 4th injection now and I've only started bleeding today

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Yes ,Its ruined mine. Come to me at Lupron Warriors on Facebook my name is Cheryl Newton I'm disabled because of it and I'm running an awareness campaign to help others stop ruining their lives too.

So sorry you are the same Xxx

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