I have been suffering with pain since the age of 15, in my stomach with severe bloating, my back, hips, legs and when going to the toilet. I had lots of tests and was told it was growing pains or part of growing up. I also became tired very easily and found it difficult to drink alcohol and party all night. I fell pregnant at a young age and they then said a lot of my pain and tiredness was down to the fact I was of slim build and I had 2 children by the time I was 20! They put me on the depo injection in 1997 and my periods stopped and in October 2009 it was suggested I stopped the depo and have a mirena coil fitted. This was one of the most painful things I have ever had done! And I can take pain! I haven't had a period since 1997 but I do get the monthly symptoms!
I'm now 37 and in October 2011 my doctor referred me to gynae after really complaining and telling her I couldn't cope with the pain anymore especially in my left side. In January 2012 after a very painful internal examination the consultant booked me in for a laparoscopy. In March 2012 I went in to hospital and after surgery I was told I had extensive stage 4 endometriosis and the only thing they could do for me was a hysterectomy. My hospital could not remove any of my endo due to the extent of it.
I went back to see the consultant in May 2012 and after along discussion he referred me to Manchester hospital (a 2 hour journey from my home town). So in August 2012 I went to see my consultant along with photos taken during my laparoscopy, he was excellent and I was booked in for an MRI scan, an ultra sound scan of my pelvis, sigmoidoscopy endoscopy and a health check.
During this time the pain had become worse, this was due to me having my first laparoscopy and everything being moved about. I also lost the feeling of when I needed to go for a wee this was due to the fact my bladder was being pushed, I would just go and sit on the loo just to see if i needed to go! I travelled backward and forward to Manchester and in February 2013 I went back to discuss the findings with my consultant. It was confirmed I had extensive endo with a large cyst on my left ovary, both ovaries were stuck to the womb my bowel was pushed back on itself and was stuck to my uterus causing pressure on my bowel and bladder. I was given a depo injection to shrink the endo and put on Tibolone a HRT tablet and booked in for surgery in June this year.
It was discussed with me there could be a chance of a temporary iostomy or colostomy bag if they had to cut away part of my bowel and they arranged for the stoma nurse to come and see me so I could ask all questions and put my mind at ease before surgery. I was told surgery would be approx 3 to 4 hours and during surgery they would also replace my mirena coil.
So on the 14th June at 2.20 p.m I had my operation and I am now recovering at home. Everything went well and I do not have a iostomy or colostomy bag. I have four insertions on my stomach, I am still swollen but healing nicely. I still can't walk as fast I would like and get a really bad stitch if I over do it. Going to the toilet isn't too comfortable but I was told this could be the case as my bowel has been in the wrong place for years. I have no idea how long it will take me to fully recover from surgery but I'm taking each day as it comes. I am going back to see my consultant in January 2014 to see if there has been any improvement, I can only but hope!!!!!