Help with cod stage 3: Hi just been told I... - Early CKD Support

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Help with cod stage 3

Mjm192 profile image
7 Replies

Hi just been told I have chronic kidney disease stage 3 and been referred to renal doctors at hospital but no other information has been given to me about what I should or could be doing to help myself I see on here about diet ect

Would be great full if any one can help with what I could be doing

Thank you

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Mjm192 profile image
Mjm192
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7 Replies

Hi,

I'm not in the UK but I can give you some of the basics. davita.com will give you recipes for kidney-friendly meals. Many are seasonal and can be adjusted for growing seasons and to not get tired of anything.

My suggestion would be that when you see your nephrologist ask for a referral to a Renal Dietitian. When you go to meet the RD bring all of your lab values and let that specialist help you develop a meal plan that will work for you. You should be concerned about the intake of sodium, calcium, protein, phosphorous and potassium. You don't want to eliminate them but it's necessary to cut down. A lot will also be dependent on any other health issues you may have beyond CKD.

Make sure you review your exercise routine and keep at it. That is critical for those of us with CKD.

Best of luck.

Mjm192 profile image
Mjm192 in reply to

Thank you so much I have not been given any advice or information I see a different GP the other day and she said to me I wouldn't be to concern about it yet other doctors said I should be so I don't know how or what I should be doing

One minute I had blood tests and was told that my kidneys would have to be monitored and 2 more blood test later I got told I had chronic kidney disease stage 3

Also I am worried if they found out at stage 3 can it stay at that or can it go to 4 or 5

Thank you again

in reply to Mjm192

Yes, it can go both up and down. You want to hold off the slide into dialysis, Stage 5 ESRD. That's why it's important to learn all you can about CKD and the impact any other health issues you may have and those effects on CKD.

All of us have pet peeves but without a doubt, mine is the doctor who tells his/her patient that not to worry about kidney function/CKD. It's not their health, it's yours. Knowledge is Power and the more you know the better you can chart the course to slowing down the progression.

Your doctor should be there to give you the medical information you need to make the decision you want with their support. Anything less and I'd suggest you find another doctor. My grandfather always used to tell me, "Never go to a bald barber. They have no respect for your hair".

lowraind profile image
lowraind

Hi, I was diagnosed in November, with stage 3. Am not pleased with the nephrologist (plan on switching), and after seeing the so-called dietician, know very little more than what I have found through my reading. As has been said before, there is money when they diagnose and there is money when you have to have an implant or dialysis. In between, there is no money, so there is very little for us. davita.com has electronic classes, so you may get help there. That is my next step.

lulubelle6766 profile image
lulubelle6766

I have a GFR of 34......very low. I went on the Davita.com site. I have changed my diet as a result. No dairy products including ice cream. No bananas, no cantaloupe, and no potatoes. No extra potassium at all. Check it out.....you will feel better.

Mjm192 profile image
Mjm192

Thank you so much I will have to have a look

Mind you all the things you have mentioned are the only things I eat

I thought that the GFR was high in kidney disease

If you have any information regarding GFR being low or high and know why could you please tell me about it and the effects it has

Thank you

Marcelle

toeragthecat21 profile image
toeragthecat21

hi mjm..i had transplant 16 months ago and all going well..it is important what you eat..avoid eating red meat and reduce any meat intake.keep fat intake low no cheese etc..just eat healthy food veg etc..this will help when you have transplant because fat in arteries hampers the work..work up for transplant starts at about 16 egfr..dialisis starts at about 10 egfr..and the most important thing is to try and keep positive ..take care chris

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