Ezetimibe: I've just had 3 days of... - Diabetes Research...

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Ezetimibe

Soundwell1 profile image
23 Replies

I've just had 3 days of heck with this cholesterol lowering drug. It could be all the E numbers or the povidone but my bs has been high for the three days along with many side effects. I certainly couldn't go through another day of it, so I'm giving up. The reason I was trying it is because I can't tolerate other statins. Does anyone else know about this drug?

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Soundwell1
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23 Replies

Yes it’s a good cholesterol lowering therapy, my latest bloods have definitely evidenced this. I have had zero side effects from it.

Soundwell1 profile image
Soundwell1 in reply to

That's good if you can take it. I was hoping for some replies from people who cannot tolerate it.

Catmad10 profile image
Catmad10

Hi Soundwell, I haven’t heard about this drug but have tried many statin variations in the past, all of which gave me severe memory loss. 6 years ago I made the decision to stop taking any form of cholesterol drugs and will not be persuaded to return to them. I’ve had to adjust my diet because of recent diabetes diagnosis plus with having bad side effects with the medication associated with diabetes I’ve reached the point where I’ve said enough is enough. I will get the diabetes under control but I’m not going to add memory loss to the equation.

I hope you get this sorted.

Soundwell1 profile image
Soundwell1 in reply to Catmad10

How interesting, so you made the decision. I haven't read that before.

I've got type1 and also had heart attack and bypass op when I was 52 years. The cardiologist is always trying to push those meds on me. I haven't taken statins for a few years now but I have micro vascularcular probs.that give me shortness of breath and heavy chest.

My memory is also not so good without them. We just can't win.

Thanks for replying.

Catmad10 profile image
Catmad10 in reply to Soundwell1

If it’s one thing that’s come out of our conversation is that we are all different.

I had acute pancreatitis and was hospitalised for 7 months. My diabetes was classed as type 3 (pancreas related) and is now type 2. The Metformin tablets give me severe bowel problems (I’m trying to be ladylike here) and the Empagliflozin give me thrush and if I’m not careful incontinence. I told the doctor that the only positive to taking statins is I would forget what was going on down below. 🤣🤣.

Soundwell1 profile image
Soundwell1 in reply to Catmad10

🤔🤣🤣

in reply to Soundwell1

Soundwell are you on the British heart foundation forum lots and lots of people of there suffer with MVA & VA

Soundwell1 profile image
Soundwell1 in reply to

Thanks, yep

ling profile image
ling in reply to Catmad10

Statins. My cardio informed me that one of the rare side effects is early onset dementia. The other is diabetes.

Catmad10 profile image
Catmad10 in reply to ling

Hi Ling, many thanks for the information. After my experience with statins I flatly refuse to take them again. I knew my memory loss couldn’t be dementia because it came on so suddenly, and once I stopped taking statins my memory returned within 24 hours. It’s interesting what you say about diabetes.

ling profile image
ling in reply to Catmad10

You're welcome.

Yes, these were the two rare side effects she informed me of as part of prescribing astorvastatin.

Best wishes.

Catmad10 profile image
Catmad10 in reply to ling

And I got both of them 😩😩. How ironic is that?

I work on the principle that my cholesterol has been high for decades and it hasn’t killed me yet. What is really disappointing is that I managed to just about reversed my diabetes before covid hit us. Now because of my unhealthy eating during isolation I have to start all over again. I will get a grip though and reverse it again.

ling profile image
ling in reply to Catmad10

😅

U can do it !

Are u still on any diabetes meds?

Does it bother u to not be on any cholesterol medication?

Catmad10 profile image
Catmad10 in reply to ling

Thanks, I’m determined to do it. I take failure badly.

Yes with diabetes meds, insulin and Metformin. Prior to covid I had stopped taking Metformin and had reduced my insulin to 5 units once a day.

As far as cholesterol meds. If side effects were anything but memory loss then I would take them. I can’t cope with memory loss though, it was horrible and was very stressful. I can’t go through that again and even the doctor eventually agreed with me.

ling profile image
ling in reply to Catmad10

😊

Did your doc not suggest an alternative to statins?

I understand re the memory loss. It is very stressful and unsettling. I get memory issues from my thyroid condition and before learning the thyroid could cause memory issues, I thought I was developing dementia.

These memory issues are making me reconsider starting statins and to consider ezetimibe which the cardio suggested as an alternative.

Catmad10 profile image
Catmad10 in reply to ling

I will mention that if cholesterol is brought up when I go for a mid January check-up. Thanks for the heads up.

ling profile image
ling in reply to Catmad10

I'm not up to speed on cholesterol and diabetes but there's a connection there somewhere, which means it may be helpful to keep a lid on the cholesterol.

In any case, u know what's best for yourself.

All the best with wrestling that diabetes into the mud!

With best wishes and a happy healthier new year : )

Catmad10 profile image
Catmad10 in reply to ling

Thanks Ling, and I wish you and your family a happy, safe and healthy 2021 too. xx

ling profile image
ling in reply to Catmad10

Thank you very much!

Gail1967 profile image
Gail1967

I’m 7 days into taking ezetimibe & feel awful - ache across my shoulders - feel weak & pathetic - was blaming it on feeling fed up working from home etc- but today thought I wonder if it is this new med. very emotional (poor hubby) - don’t know if I should stick with it or give up. Sorry no much help to you as think we both looking for answers!!

ling profile image
ling in reply to Gail1967

Hi Gail, are u still taking the ezetimibe? If yes, how's it been?

Thank you

Gail1967 profile image
Gail1967 in reply to ling

Hi- yes it all seems to have settled on the whole. I do notice my limbs, fingers etc ache from time to time but not enough to concern me. How are things with you?

ling profile image
ling in reply to Gail1967

Thank you for your reply.

I was prescribed a statin but for various reasons, am considering asking to switch to ezetimibe. Thank you for asking.

Best wishes.

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