Newly diagnosed just before Christmas

[Sepsur]

Due to another condition, I have monthly immunoglobulin IV infusions, periodic courses of steroids - this combination seems to have flipped me into diabetes. I started to have very blurry vision 2 days after finishing last course of steroids. Blood sugar test in hospital showed 15-21 over following week.

I came home 4 days before Christmas and started to control my diet getting my figures down from 15.9 to a mean average of 6.8.

I am now neutropenic which again reduces what I can eat.

I lost about 3kg in a week & am concerned that I’m struggling to put weight on. I have chemo starting in 2/3 weeks.

I am starving constantly- what food is best for me to eat to bulk out meals beyond usual carbohydrates

[Activity2004 Administrator]

Hi Sepsur ,

Has your doctor suggested eating a low carb. diet to deal with the blood sugars? Are you allergic to any specific foods? Take a look at the free leaflets from the DRWF site and please show them to your doctor at the next appointment. All leaflets can be downloaded/read/listened to for free anytime. I hope this helps. drwf.org.uk/understanding-d...

[Sepsur in reply to Activity2004]

Thank you. Everyone one barring diabetes nurses at hospital & GP have been useless. Diabetes nurse from The Christie couldn’t believe that I had been discharged with such high sugars & lack of preparation. GP took 3 wks to give me an appointment. I cut out white bread, white pasta, white rice & potatoes to try and get my sugars down to a sensible level & fearing something catastrophe over Christmas period. It was more the lack of informed explanation & advice.

I will read links that you attached.

[Activity2004 Administrator in reply to Sepsur]

Thank you for letting us know what is going on with your blood sugars and what you have been eating. I’m sorry to hear that you’re having trouble with your doctor and nurse at the hospital. Are they saying that you’re type 2?

Do you eat sweet potatoes? They have lower amounts of carbs. than a normal non-sweet potato. Same with brown rice.

If you have any questions about anything, please let us know. No one wants anyone getting sick or worse. No one should be scared, too.😀👍

I hope this helps. Sorry for the delay in getting back to you. Just got done with my lunch now.

[Sepsur]

Yes I eat sweet potato - thank you for your reply - I’m feeling slightly more in control of it now - I see diabetes nurse on Wednesday & eye screening.

I’ll get better idea of diabetes type too.

I wondered how everyone deal with constant hunger. I’m doing my best not to snack between meals & cut down portion size. As I said though, my weight is an issue - I dropped from 77.80kg to 75 in a week & half. Couple this with starting chemo in 2 weeks & being neutropenic- I’m not that straightforward

[Activity2004 Administrator in reply to Sepsur]

You can take your time and let us know what you want to talk about. If you have high blood sugars constantly, you will have weight loss because the food isn’t being used the correct way. Lower/better blood sugars will help you gain weight. Do you test your blood sugars when you’re hungry after 2 hours of eating?

[Sepsur in reply to Activity2004]

At present I’m testing daily before breakfast, lunch, dinner & bed as instructed by nurse

[Activity2004 Administrator in reply to Sepsur]

Do you have bedtime snacks to hold you over night? Depending on the numbers, I have a 30 gram protein bar and a Greek yogurt when the blood sugars are low 200’s and upper 100’s. I also have a CGM( Continuous Glucose Monitor) system.

[Sepsur in reply to Activity2004]

I’ve only been doing finger prick test at present - the monitor reads 5.3 etc etc

[Activity2004 Administrator in reply to Sepsur]

95.4 is good before a meal. Is that the same range of numbers at bedtime?

Take a look at my postings I've done dealing with my CGM. healthunlocked.com/drwfdiab...

[Activity2004 Administrator in reply to Sepsur]

Please check your private messages on HU. I have sent a message now. It’s okay!😀👍👍