Experiences with

Leukaemia

Hi all, to those of us that travel to see your MPN team ,I've just successfully applied for a grant for help with travel costs from leukaemia Care.They have given£150 so that will definitely help with the costs so far.It's open to all blood cancer patients they just needed a copy of my diagnosis letter

will be needed a stem cell transplant after my third round for Flagida Chemotherapy. Has anyone had similar?

Welcome to the Leukaemia Support Community for support of Leukaemia! We’re very glad you have chosen to be a part of our community. The Leukaemia Support community - offered by HealthUnlocked (HU) - supports individuals affected by leukaemia.

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with chronic lymphocytic harbouring complex karyotype[/i] written by a team from Padua, Italy.

As my father died 3 days after his diagnosis of Acute Myeloid Leukaemia I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.

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Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia?

I also have leukaemia any advice please. Thankyou Karen

Is the high serum ferritin a sign of leukaemia as I have read it may be? Thanks in advance for any replies.

hi all a bit of a random question here I suppose My mother in law has chronic leukaemia (diagnosed 5 years ago) and wanting to go the all natural route, what would be the prognosis with no treatment?

However, like MGUS, it is very possible that it will remain Chronic for years and at the age of 80 the likelyhood of dying from this Leukaemia is significantly less that dying with it. So I am not overly concerned about the future at the moment.

Hospital found lymph nodes in neck and think my leukaemia is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.

We want to let you know that Leukaemia Care will no longer be moderating this community. Over the past few years, Leukaemia Care has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.

Sorry to be a nuisance but I know more about Chronic Lympocytic Leukaemia as have had it since 2006 and that has always been my main concern.

So can someone tell me if this is what CLL can turn into? and how much worse than CLL is it? Many thanks, Veronica

"CDKI-73 is currently being investigated in Phase 2 clinical trials in patients with relapsed and therapy-resistant acute myeloid leukaemia, an aggressive blood cancer."

I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my

From what little I understand, Jakafi can and does reduce the fibrosis within the bone marrow while reducing the allele burden (number/percentage of dodgy blood cells producing cells) While taking Jakafi and Darbepoetin (an epo) there may be a conflict between the two drugs, one is reducing cells production

My husband has myelofibrosis after polycythemia. He has been taking ruxolitinib for 9 years. Over the past year, he has lost 23 kg, his already huge spleen continues to grow, he has anemia, shortness of breath. The doctor recommended switching to Momelotinib. Please write, does anyone have experience

I have been trying to decrease my Statin dose and my lipid panel was good except my HDL dropped to 31. I do not have any of the risk factors ( not overweight, don’t smoke ,eat well exercise etc) so I asked google “ Can CLL cause your HDL to droop and the answer was YES. Does anyone have any information