Experiences with

Leukaemia

Welcome to the Leukaemia Support Community for support of Leukaemia! We’re very glad you have chosen to be a part of our community. The Leukaemia Support community - offered by HealthUnlocked (HU) - supports individuals affected by leukaemia.

Hi all, to those of us that travel to see your MPN team ,I've just successfully applied for a grant for help with travel costs from leukaemia Care.They have given£150 so that will definitely help with the costs so far.It's open to all blood cancer patients they just needed a copy of my diagnosis letter

- Leukaemia Care Online Support Group - Leukaemia Care AML group - Leukaemia Care APL group - Leukaemia Care CLL group Helpline (available Monday - Friday, 9 am - 5 pm) Information Booklets Leukaemia Counselling Service WhatsApp Service Our team is dedicated to ensuring a smooth transition

As my father died 3 days after his diagnosis of Acute Myeloid Leukaemia I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.

Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia?

Is the high serum ferritin a sign of leukaemia as I have read it may be? Thanks in advance for any replies.

I also have leukaemia any advice please. Thankyou Karen

Hospital found lymph nodes in neck and think my leukaemia is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.

We want to let you know that Leukaemia Care will no longer be moderating this community. Over the past few years, Leukaemia Care has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.

However, like MGUS, it is very possible that it will remain Chronic for years and at the age of 80 the likelyhood of dying from this Leukaemia is significantly less that dying with it. So I am not overly concerned about the future at the moment.

So can someone tell me if this is what CLL can turn into? and how much worse than CLL is it? Many thanks, Veronica

I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my

"CDKI-73 is currently being investigated in Phase 2 clinical trials in patients with relapsed and therapy-resistant acute myeloid leukaemia, an aggressive blood cancer."

CLL cells are in their dormant stage in the blood, so while leukaemia cancer research has the huge benefit of providing easy sampling access to tumour cells through blood sampling, assessing the impact of therapies on CLL cells removed from blood samples is misleading regarding their effectiveness.

Sorry to be a nuisance but I know more about Chronic Lympocytic Leukaemia as have had it since 2006 and that has always been my main concern.

"The JAK2 V617F mutation is the most common driver gene in myeloproliferative neoplasm (MPN), which means that the JAK/STAT signaling pathway is persistently activated independent of cytokines, and plays an important part in the onset and development of MPN. The JAK inhibitors, although widely used in

« Patients with polycythemia vera (PV) achieved greater hematocrit control and improvement in symptoms with ruxolitinib compared with best available therapy (BAT), according to the results of a systematic review and meta-analysis published in the journal APMIS. Ruxolitinib was also associated with higher

I had a face to face meeting with the Health Board CEO. To start with he quoted the Patient Experience answers to my concerns but I soon stopped that showing photographic evidence that they were lying. As the meeting progressed he became very quiet and obviously shaken. His PA took a lot of notes and

Hello everyone! I will be grateful if you share your experience of combining anesthetics and Jakavi. I have myelofibrosis and take Jakavi 15 mg 2 times a day. I will have an open surgery for an inguinal hernia with anesthesia with novocaine (procaine) very soon. I wanted to see if there is an interaction

Post by MPN-MATE Admin » Thu Nov 07, 2024 10:21 am Morning everyone... I recently received this new article that emanates out of a German Laboratory in Munich. It purports to have more accurately found a way to simplify the MPN Tree of Classifications of MPN illnesses. It uses computer modelling &