Experiences with

Leukaemia

Hi all, to those of us that travel to see your MPN team ,I've just successfully applied for a grant for help with travel costs from leukaemia Care.They have given£150 so that will definitely help with the costs so far.It's open to all blood cancer patients they just needed a copy of my diagnosis letter

will be needed a stem cell transplant after my third round for Flagida Chemotherapy. Has anyone had similar?

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with chronic lymphocytic harbouring complex karyotype[/i] written by a team from Padua, Italy.

Welcome to the Leukaemia Support Community for support of Leukaemia! We’re very glad you have chosen to be a part of our community. The Leukaemia Support community - offered by HealthUnlocked (HU) - supports individuals affected by leukaemia.

As my father died 3 days after his diagnosis of Acute Myeloid Leukaemia I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.

The survey was commissioned by a collaboration of advocacy groups (Acute Leukaemia Advocates Network, ALAN; CML Advocates Network, CMLAN; and CLLAN). It was released online in 13 languages to international respondents aged 18 years or more, distributed via the advocacy networks.

I also have leukaemia any advice please. Thankyou Karen

Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia?

- Leukaemia Care Online Support Group - Leukaemia Care AML group - Leukaemia Care APL group - Leukaemia Care CLL group Helpline (available Monday - Friday, 9 am - 5 pm) Information Booklets Leukaemia Counselling Service WhatsApp Service Our team is dedicated to ensuring a smooth transition

hi all a bit of a random question here I suppose My mother in law has chronic leukaemia (diagnosed 5 years ago) and wanting to go the all natural route, what would be the prognosis with no treatment?

Is the high serum ferritin a sign of leukaemia as I have read it may be? Thanks in advance for any replies.

However, like MGUS, it is very possible that it will remain Chronic for years and at the age of 80 the likelyhood of dying from this Leukaemia is significantly less that dying with it. So I am not overly concerned about the future at the moment.

Sorry to be a nuisance but I know more about Chronic Lympocytic Leukaemia as have had it since 2006 and that has always been my main concern.

We want to let you know that Leukaemia Care will no longer be moderating this community. Over the past few years, Leukaemia Care has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.

I take ampyra to help me pick up my legs however I sometimes can’t wait to get to a shopping cart at the store. It makes me feel like I’m walking more normal

First - THANK YOU all for your input on this Fortunately my itching is not as bad as some of you reported. - PHEW! but nonetheless very aggravating..... I talked to my Haematologist and he declined to recommend an increase in my Fexofenadine dosage or an alternative and referred me back to my GP whose

Hello everyone, it's been a while since I last posted, today I received the saddest news ever, my hematologist told me probably progression to myelofibrosis, diagnosed with ET since 2014. I was just treated with HU once a day and blood counts stable, but lately I becoming anemic, RBC(3.94) Hemoglobin

Hi everyone, It’s been months since I posted here. My husband had an allogenic stem cell transplant last August 22 to treat high risk “treatment related” MDS that he developed 9.5 years after completing 6 months of FCR chemotherapy for CLL. The transplant process was every bit as challenging and demanding

Hi All, lost the plot again because of hospital stay and info coming at me from all sides. Is Jakafi actually a chemo treatment for my PV diagnosis? TIA for your insights. Hope you’re all doing well.

Saw my consultant on Wednesday. Told her I was having a liver biopsy the following day. She told me to stop the interferon I was on immediately! I am injected every Sunday with 90.mg. Later I wondered why ( when they referred me to the Liver specialist 5 months ago) they didn’t take me off it then?