Experiences with

Leukaemia

Hi all, to those of us that travel to see your MPN team ,I've just successfully applied for a grant for help with travel costs from leukaemia Care.They have given£150 so that will definitely help with the costs so far.It's open to all blood cancer patients they just needed a copy of my diagnosis letter

will be needed a stem cell transplant after my third round for Flagida Chemotherapy. Has anyone had similar?

On 6 January 2025, the journal [i]BJ Haem[/i] published a review article titled [i]Management strategies for patients with chronic lymphocytic harbouring complex karyotype[/i] written by a team from Padua, Italy.

Welcome to the Leukaemia Support Community for support of Leukaemia! We’re very glad you have chosen to be a part of our community. The Leukaemia Support community - offered by HealthUnlocked (HU) - supports individuals affected by leukaemia.

The survey was commissioned by a collaboration of advocacy groups (Acute Leukaemia Advocates Network, ALAN; CML Advocates Network, CMLAN; and CLLAN). It was released online in 13 languages to international respondents aged 18 years or more, distributed via the advocacy networks.

I also have leukaemia any advice please. Thankyou Karen

As my father died 3 days after his diagnosis of Acute Myeloid Leukaemia I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.

hi all a bit of a random question here I suppose My mother in law has chronic leukaemia (diagnosed 5 years ago) and wanting to go the all natural route, what would be the prognosis with no treatment?

Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to leukaemia?

- Leukaemia Care Online Support Group - Leukaemia Care AML group - Leukaemia Care APL group - Leukaemia Care CLL group Helpline (available Monday - Friday, 9 am - 5 pm) Information Booklets Leukaemia Counselling Service WhatsApp Service Our team is dedicated to ensuring a smooth transition

Is the high serum ferritin a sign of leukaemia as I have read it may be? Thanks in advance for any replies.

Hello all. Looking for some insight or maybe just a glimmer of light today. So, I was diagnosed ET at 47, progressed to PV at 53 or so. Did Peg, then Besremi for 5 years, but could not tolerate interferon. On Jakafi now for almost a year. Platelets down from 1.1 mill to just over 400,000. But other

Hi I have been taking Ruxolitinib for 2years. The dose was decreased from 10mg to 5mg once daily, I was pottering along quite fine . Then my h/c lowered to. .37 ,fatigue etc,WBC 12.6/neutrophils 10.5 : This is followed a chronic viral/ flu infection ,which eventually caused bilateral ear drum

In an interesting turn of events, my Mom (75f) just had preliminary cytology results come back indicating B cell related lymphoma or leukemia. They are leaning towards chronic lymphocytic leukemia (CLL)/ small lymphocytic lymphoma but she will need a BMB/additional diagnostics to be sure. I've been

Hello Friends, I hope you are all well. I need your advise for the following situation: I am having a graft surgery on my leg in a few days that requires total anesthesia. The anesthesiologist called me the other day to tell me to quit taking Rux 3 days before the surgery (he said he did some research

Had some blood test results given to my wife who has MF and is feeling particularly weak, now six months after starting Jakafi, though the weakness and ascites began after 2 and half months.

Hi everyoneI've just read Foostra's post about travelling while on Rux, and I have a related question re travel insurance. I have Myelofibrosis (on Rux) and standard questions here in the UK to get a quote for travel insurance are a) Do you have cancer? And b) Do you have a terminal illness? I really

🎉Finally out🎉 Allogeneic Stem Cell Transplant for Myelofibrosis and Myelodysplastic Syndromes: A Contemporary Review https://onlinelibrary.wiley.com/doi/10.1002/ajh.27660 Thank to Nico Gagelmann M.D.

Hi all Hope all OK I've been on here for a while. Haven't had my appointment yet has I had to get intouch to ask when I be having my 3 months appointment which was due 7th of February, so the receptionist for haematology said there hasn't been one sent out for me yet , this was 2 weeks before end of

I'd like to understand my recent ferritin and iron profile results, with unbound iron capacity and TIBC HIGH --and ferritin, iron saturation and iron LOW. My hematologist says it is due to the body producing too many red cells, but mine have improved quite a bit. Are there other common causes than PV