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Care Online Support Group -
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Counselling Service WhatsApp Service Our team is dedicated to ensuring a smooth transition
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Leukaemia
Care Online Support Group -
Leukaemia
Care AML group -
Leukaemia
Care APL group -
Leukaemia
Care CLL group Helpline (available Monday - Friday, 9 am - 5 pm) Information Booklets
Leukaemia
Counselling Service WhatsApp Service Our team is dedicated to ensuring a smooth transition
NicoleLeukaemiaCare
in
Leukaemia Support
5 months ago
Community Guidelines
Welcome to the
Leukaemia
Support Community for support of
Leukaemia
! We’re very glad you have chosen to be a part of our community. The
Leukaemia
Support community - offered by HealthUnlocked (HU) - supports individuals affected by
leukaemia
.
Welcome to the
Leukaemia
Support Community for support of
Leukaemia
! We’re very glad you have chosen to be a part of our community. The
Leukaemia
Support community - offered by HealthUnlocked (HU) - supports individuals affected by
leukaemia
.
BrettHU
HealthUnlocked
in
Leukaemia Support
30 days ago
On another subject …
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to
leukaemia
?
Inspired bya post on another site I’d like to ask if anyone has high risk mutations and has NOT had a stem cell transplant and has NOT progressed to
leukaemia
?
lizzziep
in
MPN Voice
2 months ago
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As my father died 3 days after his diagnosis of Acute Myeloid
Leukaemia
I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.
As my father died 3 days after his diagnosis of Acute Myeloid
Leukaemia
I am feeling concerned about the rapid changes I am experiencing. I have known my haematologist for over 14 years as he was also my husband's consultant for his Mantel Cell Lymphoma.
16Gardinia
in
MPN Voice
20 days ago
Cll back after 4yrs
Hospital found lymph nodes in neck and think my
leukaemia
is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.
Hospital found lymph nodes in neck and think my
leukaemia
is back. I have been cancer free for4yrs. Has this happened to anyone else. What happens next.
Daisy1993
in
CLL Support
5 months ago
Low vitamin d high serum ferritin
Is the high serum ferritin a sign of
leukaemia
as I have read it may be? Thanks in advance for any replies.
Is the high serum ferritin a sign of
leukaemia
as I have read it may be? Thanks in advance for any replies.
Debs4
in
CLL Support
2 months ago
Myelodydisplasia (?)Leukaemia
So can someone tell me if this is what CLL can turn into? and how much worse than CLL is it? Many thanks, Veronica
So can someone tell me if this is what CLL can turn into? and how much worse than CLL is it? Many thanks, Veronica
Veebeegeebee
in
CLL Support
3 months ago
A message to all community members
We want to let you know that
Leukaemia
Care will no longer be moderating this community. Over the past few years,
Leukaemia
Care has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.
We want to let you know that
Leukaemia
Care will no longer be moderating this community. Over the past few years,
Leukaemia
Care has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.
BrettHU
HealthUnlocked
in
Leukaemia Support
30 days ago
p17 deletion. Can anyone advise or cheer me up?!
I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic
leukaemia
(CLL) and suspected Chronic myelomonocytic
leukaemia
(CMML), I have been still at early stage and not needing treatment.
I’m 79, living in UK and 18 months into being diagnosed with Chronic lymphocytic
leukaemia
(CLL) and suspected Chronic myelomonocytic
leukaemia
(CMML), I have been still at early stage and not needing treatment.
Fogey
in
CLL Support
9 months ago
Struggling Financially with Leukaemia?
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
I was diagnosed with CLL in July 2013 and had already been registered with Macmillan in 2004 when I had bowel cancer, although at that time I didn't need much help other than problems with stoma bags and local support groups, both of which they helped me with. Financially I was okay being paid by my
clifflee
in
CLL Support
1 month ago
Just 5% of therapies tested in animals end up as as human drugs, new study shows. CLL research has particular challenges due to the TME
CLL cells are in their dormant stage in the blood, so while
leukaemia
cancer research has the huge benefit of providing easy sampling access to tumour cells through blood sampling, assessing the impact of therapies on CLL cells removed from blood samples is misleading regarding their effectiveness.
CLL cells are in their dormant stage in the blood, so while
leukaemia
cancer research has the huge benefit of providing easy sampling access to tumour cells through blood sampling, assessing the impact of therapies on CLL cells removed from blood samples is misleading regarding their effectiveness.
AussieNeil
Partner
in
CLL Support
17 days ago
Advice welcome
He is starting to walk more after lengthy treatment for
leukaemia
. Has anyone out there any advice as to how to manage this sometimes debilitating condition? Thank you in advance
He is starting to walk more after lengthy treatment for
leukaemia
. Has anyone out there any advice as to how to manage this sometimes debilitating condition? Thank you in advance
Limpet72
in
Lung Conditions Community Forum
3 months ago
confused!!!
Apparently all my tests just show low grade
leukaemia
and so was told if I was given treatment to reduce the CLL he doubts I would feel any better!
Apparently all my tests just show low grade
leukaemia
and so was told if I was given treatment to reduce the CLL he doubts I would feel any better!
Dragonfly766
in
CLL Support
7 months ago
If you have/have had an acute leukaemia, please help us by completing this survey
We’re working with ALAN (Acute
Leukaemia
Advocates Network) and OHE (Office of Health Economics) to understand the outcomes of people with acute
leukaemia
and in doing so we need to understand what aspects of treatment are most important to them.
We’re working with ALAN (Acute
Leukaemia
Advocates Network) and OHE (Office of Health Economics) to understand the outcomes of people with acute
leukaemia
and in doing so we need to understand what aspects of treatment are most important to them.
LCAlex
in
Leukaemia Support
1 year ago
Sweet syndrome following induction chemotherapy for acute myeloid leukaemia
An uncommon culprit of neutropenic fever: a case of Sweet syndrome following induction therapy for acute myeloid leukemia, 2023. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10660447/ Sweet's syndrome following induction chemotherapy (cytarabine and idarubicin) for acute myeloid
leukaemia
.
An uncommon culprit of neutropenic fever: a case of Sweet syndrome following induction therapy for acute myeloid leukemia, 2023. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10660447/ Sweet's syndrome following induction chemotherapy (cytarabine and idarubicin) for acute myeloid
leukaemia
.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
7 months ago
Jakafi - Chronic Myelofibrosis
I’m 72 years old hispanic female & was diagnosed with Chronic Myeloproliferative Disorder - Primary Myelofibrosis on January 2024. I started with Jakafi 10 mg (bid) on February 2024 & my symptoms have been very interesting. During the 1st two weeks I experienced nauseas & dizziness with both dosages
I’m 72 years old hispanic female & was diagnosed with Chronic Myeloproliferative Disorder - Primary Myelofibrosis on January 2024. I started with Jakafi 10 mg (bid) on February 2024 & my symptoms have been very interesting. During the 1st two weeks I experienced nauseas & dizziness with both dosages
Fresa7
in
MPN Voice
9 days ago
Myelofibrosis- GVHD graft, versus, host, disease.
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto your site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
10 days ago
Myelofibrosis - GVHD - graft, versus, host, disease
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
Hi, thanks for accepting me onto the site. My name is Gary, I am 64 years old and was diagnosed with Myelofibrosis in July, 2024. It all started when I began to feel lethargic and very tired, I had no inspiration to do anything. I was a taxi driver and was only managing to work one or two days a week
FreemanSaviors
in
MPN Voice
10 days ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
Hi everyone. As you may know, my husband was diagnosed with CLL back in 2013, treated with six cycles of FCR, and achieved a "full response with incomplete recovery of the bone marrow." He had severe complications after treatment, but the CLL never recurred. In November 2023 he began to experience
dwolden
in
CLL Support
13 days ago
Clinical impact of mutated JAK2 allele burden reduction in polycythemia vera and essential thrombocythemia
»The variant allele frequency (VAF) of driver mutations (JAK2, CALR) in myeloproliferative neoplasms is associated with features of advanced disease and complications. Ruxolitinib and interferon were reported to variably reduce the mutant VAF, but the long-term impact of molecular responses (MR) remains
»The variant allele frequency (VAF) of driver mutations (JAK2, CALR) in myeloproliferative neoplasms is associated with features of advanced disease and complications. Ruxolitinib and interferon were reported to variably reduce the mutant VAF, but the long-term impact of molecular responses (MR) remains
Manouche
in
MPN Voice
24 days ago
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