ANA blood test results
chelsealouise33x in LUPUS UK3 years ago
Hi all I am just wondering if an ANA test sis a definite test for lupus. I have been having the odd aches and pains along with the odd heada...
Latest Advances In Connective Tissue Diseases: Myositis
APsnotFab in Sticky Blood-Hughes Syndrome Support6 years ago
Latest Advances in Connective Tissue Disorders
Simon Bowman, PhD, FRCP, Vijay Rao, MRCP
Ther Adv Musculoskel Dis. 2013;5(4):234-249.
Help for Daughter
Lifeback in Thyroid UK5 years ago
Hi all havent been on here for ages i wrote about my daughter she is 24 some time ago i have hashimotos and think my daughter is the same he...
IVIG experiences to share with a newbie?
IrishLupie in LUPUS UK5 years ago
I'm being put on IVIG in the next few weeks as a trial to improve my SLE but I don't really know much about it. The Wikipedia article is lac...
What other conditions do you have with your lupus?
Paul_Howard in LUPUS UK6 years agoPOPULAR
Tim_Thorpe in LUpus Patients Understanding and Support2 years ago
Any one else on aziophrine was recently up my dose from 100 mg daily to 125 mg daily due to my micro clots recently found on my brain 😐
I have just learned that I have Mytosis to add to the shopping list of diagnoses that i currently have. My rhumey tried to explain it to me
wotshernameagain in LUPUS UK5 years ago
But it kind of when over my head do i did some research well..
I understand that Mytosis causes weakening of the muscles but understand If it...
Colin B's intro.
fbcburnett in Myositis UK2 years ago
I am a 59 year old male living in london. I was formally diagnosed with Dermatomyositis in February 2017 having been admitted to The ...
educk in LUPUS UK3 years ago
For just over a month I've been suffering with intense headaches, pain in my right eye, and light sensitivity. I saw my GP this evening and ...
socold in Scleroderma & Raynaud's UK (SRUK)7 years ago
I have scleroderma, dermatomyositis, raynauds and mixed connective tissue disease. I have calcium deposits on the front of my hips, my elbow...
Aziophrine and prednisolone
Are these drugs just for treating lupus or for antiphosolipid symdrome (sticky blood )
Hello to every sufferer fighting his/her way back to a kind of normality
Anne88 in Myositis UK25 days ago
new to this group and new to Dermatomyositis (diagnosed 5 weeks ago).
Finding the whole thing and meds side effects (steroids...
Advise on a symptom
Hidden in Asthma UK community forum5 years ago
I'm new here but have had asthma since contracting another condition, dermatomyositis 2 years ago (DM causes muscle problems and various ...
I need some advice please .
Zohreh in LUPUS UK5 months ago
Hi , I have been suffering with my both hands skin and also my foot which is really painful and itching . It’s so hard to using my hand to d...
Can I just be 25?
Mishycake in LUPUS UK2 months ago
Hello all, I’m new to the community!
Ive been diagnosed with MTCD+polymyositis+dermatomyositis since I was 20 years old and many flare ups an...
Lupus/UCTD, Chemotherapy and Research
panda2 in LUPUS UKa year agoPOPULAR
I'm just wondering if anyone here has had a similar experience of developing a connective tissue disease (Undifferentiated, Lupus, Sj...
Building it back up
wotshernameagain in Myositis UK2 years ago
Has anyone found working out to be helpful in regaining lost strength?
MammaCass in AF Association5 years agoPOPULAR
Well, that's my pre op completed. Bloods, ECG, X-ray, INR at 2.5 and chat with the arrhythmia nurse. Everythings in order. I'm an ideal cand...
Emerging role of long non-coding RNAs in autoimmune diseases
helvella in Thyroid UK4 years ago
If anyone can explain this to me, please do!
The reason for posting is to highlight that there is research going on which might, eventually,...
Does anyone have SLE & polymyositis.
Renu in LUPUS UK7 years ago
Just wondering if anyone has polymyositis and how you are coping with it. I struggle more with this muscle disease I think then SLE?
Daisy1991 in Myositis UK21 days ago
Can you tell me your initial symptoms on onset thank you
REACTIVE LYMPHOID HYPERPLASIA
Hellybell in LUpus Patients Understanding and Support3 years ago
Last October I had a radical lingual tonsillectomy and a large mass removed from base of my tongue and back of throat. My biopsy of li...
A quick question
Hopey in LUpus Patients Understanding and Support5 years ago
I have been diagonisrd with conective tissue disease and fibro ( positive ana speckled, positive anti RNP and DsDna). I am on plaquenil 200...
Tim_Thorpe in Sticky Blood-Hughes Syndrome Support2 years ago
Are these drugs use to treat sticky blood or lupus or both ???
Amb23 in CLL Support Association2 years ago
My husband completed his chemotherapy forCLL 10 months ago, and is in total remission. He has been having skin \"erruptions\" which include ...
Lupus with overlaps
Annastearman in LUPUS UK4 years ago
I have recently been diagnosed with mysotis and anti synthetase syndrome. Ks there anyone else with the same diagnosis?
tracyxx in LUPUS UK4 years ago
just wondering if anyone else finds it difficult with family members.. I am extremely sun sensitive. went on holiday not well at all only we...
ramana42 in Diabetes Indiaa year ago
I request for your reaction on the following experience,so that I can improve my understanding regarding creatine:
My creatine reading ...
What do these mean (got the results for my blood (ana, etc) today
bengali in LUPUS UK2 years ago
Got the confirmation that I am on the rheumatology waiting list yesterday - but that the time before I get it will likely be 'considerable.'
Can someone with Wegener's granulomatosis survive for 25 years without treatment ?
a_Scot in Vasculitis UK5 years agoPOPULAR
I've read from various sources that without treatment Wegener's granulomatosis is rapidly fatal : that most sufferers die within a year of d...
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