Study by the Research Team at University of West of England

[Alida_Bennett]

Are you a person who has systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as dermatomyositis or polymyositis), Scleroderma or Sjögrens syndrome?

Would you like to help us plan better support for people?

Our Research Team at The University of the West of England is running a study to explore what matters most to you and what types of support could be given to help with this.

Focus groups will be taking place on:

Weds 16 March at 3pm

Thurs 24 March at 3pm

Thurs 7 April at 3pm

Thurs 28 April at 3pm

If you are interested in hearing more, please get in touch for further details about taking part in one of our online focus groups this spring.

Contact: [e-mail]

[Quiettwerp]

You use the term “systemic vasculitis”.

Do you also include necrotising vasculitis, or systemic necrotizing vasculitis (SNV)?

[Alida_Bennett Partner LUPUS UK in reply to Quiettwerp]

Hi

Thanks for your reply. Please could I ask that you address your query to the clinician carrying out the research - her email address is in the post ([e-mail]) - as she would be best placed to answer your query. Many thanks.

Kind regards

Alida