What Do You Think?
HeatherMOttwell in LUPUS UK5 years ago
I am a 23 year old female.
I have lots of symptoms pointing to Lupus.
In fact the Dr. believes it's the route to all of my problems.
Now, I am ...
ricky23 in My Ovacome5 years agoPOPULAR
Hi .... Just wondering if anyone has had this alongside the cancer? Thanks .x
Dumpypug in LUpus Patients Understanding and Support6 years ago
Hi everyone, I think my story is a actually a very common one but though I would share anyway.
Since my periods started at age 11 I had prob...
Positive ANA, negative ENA
tenrec in LUPUS UKa year ago
Hi there, I moved house just over a year ago and when registering with the local doctor it was found I had proteinuria. I've had a renal ult...
What do you think of this facial redness in my photo?
Spookyfox in LUPUS UK2 years ago
I have other photos that I would like an opinion on if it looks like a butterfly rash. I have many symptoms of lupus but I also have thyroi...
Professor Graham Hughes' Monthly Blog - January 2019
MaryF in Sticky Blood-Hughes Syndrome Supporta month ago
many thanks for your replies where im up to next. at 20 weeks since onset of this thing
minka in LUPUS UK3 years ago
my next stuff is podiatry and phisio but i do get conserned about the toes going red and the weekness in the mussles of the leg like with de...
Itching from the inside
Libluce8 in NRAS3 years ago
So husband has started itching again and once again the rhuemy and dermatologist have no idea what causes it. He has had episodes of itching...
Unusual Presentation of Livedo? This is also happening right now during my “ clotting rush” along with my classic livedo. ( INR is at 4.0)
KellyInTexas in Sticky Blood-Hughes Syndrome Supporta year ago
I can get this at any time. Often a red pin prick dot will be in center of white balanced ring. Never itches.
This was last night at our pha...
Buffafly in AF Association3 years ago
I take Rivaroxaban even though I have had a successful ablation. A couple of days ago I had a fall in the evening and banged my face hard o...
Does your Doctor know about Autoimmune Disease's?
Papeena in Scleroderma & Raynaud's UK (SRUK)7 years ago
Because after the birth of my second son in 1995, I went back into the Hospital and was blind and paralysed and unresponsive to any Drs comm...
SLE/UCTD and now developed lung problems.
AngelaW in LUPUS UK7 years ago
I was diagnosed with SLE/Undiagnosed Connective Tissue Disease 6 years ago. Having tried hydroxychloroquin and Azathioprine I then settled ...
Lupus rash or rosacea????
Lisas_tired in LUPUS UK5 months agoPOPULAR
I have an appointment coming up with rheumatoid at the hospital due to high anti nuclear antibodies..
I already have hypothyroidism, hashimo...
Lupus & Rash?
LouLamb in LUPUS UK3 years agoPOPULAR
Do you always get the butterfly rash with lupus? As i'm not sure weather i have it or not.
As i have spots on my face so its red from them b...
Positive at last!
Dumpypug in LUPUS UK6 years ago
Just an update and some positive news.
Some of you might remember from previous posts that I've seriously struggled for many ye...
Cause of Parkinson's
laglag in Parkinson's Movement3 months agoPOPULAR
Before we find a cure, don't we first need to know what causes it??
Negative bloods could it still be SLE
Pantboyandpig in LUPUS UK2 years ago
For the past year or so I've had cycles of symptoms but the most constant has been fatigue, I've had swelling of the face and ulcers in the...
silverbeatl in LUPUS UK4 years agoPOPULAR
Can lupus cause nail issues like this picture?
Is this flare pattern normal?
LuckyJC in LUPUS UK2 years ago
I know everyone's disease is different, but I'm wondering if anyone has the same kind of flares as me.
I have episodes, usually about a week ...
Help MRI referral and scared 😢
MissFG in LUPUS UK2 years ago
Not sure who to ask or even if this is the right group but I know how kind you all are so need your advice! Sorry for the length of this but...
Rash appears overnight
mad4cavs in Scleroderma & Raynaud's UK (SRUK)2 years agoPOPULAR
Sorry for the photo I don't mean to scare you but overnight my face often flares up ,anyone else get this
Thighpain70 in Myositis UK5 months ago
Hi im new, 48 male i hope its ok to post as im awaiting diagnosis and my ck results.
Then i assume its EMG and biopsy. Am i right in thinkin...
Ankara in PMRGCAuka year agoPOPULAR
Well on reading the other posts I do not seem the only person to have had different diagnosis. At times I have wondered whether in fact my i...
whisperit in LUPUS UK2 years agoPOPULAR
I've been subject to episodes of uncontrollable shaking - especially my arms and upper body - for several months now. They have been gettin...
Friends and Family Need to do Research
joyceann in Parkinson's Movement4 years ago
In the past year, I have had my daughter and now 2 of my best friends tell me I take too many drugs. After being diagnosed with Early Onset...
cazrules2246 in Fibromyalgia Action UK6 years ago
hey everybody its my first time on this site so im a little nervous i have had fibro since I was about 16/17 and I am 21 now so if anyone wh...
Reports say Fibro occurs in families as they may have a genetic predisposition to the condition,so how many of your relatives have Fibro ?
Mdaisy in Fibromyalgia Action UK5 years agoPOPULAR
how many people do you know ??
_andy_ in NRAS6 years ago
in the real world not in cyber land .. how many people do you know ? who suffer with some form of arthritis .. someone you know personall...
Is there anyone with scleroderma who takes medication and is living at close to normal life?
NoWaySclero in Scleroderma & Raynaud's UK (SRUK)7 years ago
Smile & be Happy
kazp in LUPUS UK5 years agoPOPULAR
I do get so very disheartened when I read the posts, all so 'its the end of the world', 'the end of my life', I cant do this' and 'I cant do...
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