caram78 in Scleroderma & Raynaud's UK (SRUK)5 years ago
Hello there, does anyone have dermatomyositis? I am awaiting my blood test results and skin biopsy to find out if I have MCTD and just wonde...
educk in LUPUS UK3 years ago
Currently having a flare up of lupus symptoms and dermatomyositis symptoms. Was put on steroids last week when my lupus flared up but having...
Skid in LUPUS UK8 years ago
Has anyone been diagnosed with dermatomyositis ? I have sle,sjorgrens, connective tissue disease and now this. it would be good to...
Lucy_4 in Myositis UK6 months ago
Hello I was diagnosed with Dermatomyositis in 2018 and still believe I’m not receiving the right care. I am in hopes to connect with others ...
Purpletop in LUPUS UK5 years ago
I've seen my rheumatologist recently and mentioned that I've been having some face swelling that doesn't seem to go away. I also showed him...
Could this be Dermatomyositis?
Soylatte14 in LUpus Patients Understanding and Support2 months ago
So I have the red bumps that come and go every so often, I have been diagnosed with Reynaud syndrome in the past. My fingers look puffy and ...
RA And Dermatomyositis
Zeke-17 in NRAS2 years ago
Hey, has anyone been diagnosed with RA and Dermatomatomyositis? I was diagnosed with RA in 2012 but have so many symptoms and doctors are ...
Juvenile Dermatomyositis - Information & links
Jo-Goode in Myositis UK3 years ago
◾Guide to Juvenile Dermatomyositis
Written by Professor Lucy Wedderburn, Great Ormond Street Hospital.
◾Frequently Asked Questions
Be the first to reply
Could I have dermatomyositis?
Chancery in Myositis UKa month ago
Firstly let me apologise for the length of this. I know it's not a good idea to ask for diagnoses on here, but I have a VERY long wait ahead...
Dermatomyositis - Information & links
◾Guide To Myositis - Written for Myositis UK by Les Oakley and updated by Dr Hector Chinnoy
◾General Guide About Myositis UK
Any Coeliacs out there with Dermatomyositis
Elisesmummy in Gluten Free Guerrillas6 years ago
I am currently in remission from Dermatomyositis, which is an autoimmune condition which affects the skin and muscles. It can be extremely ...
dermatomyositis is it related to lupus?
Carolha in LUPUS UK6 years ago
Hello folks, not been on here for a while as I've been very ill, had gallbladder removed which went terribly wrong, if you remember me repor...
ricky23 in My Ovacome6 years ago
I was diagnosed with Dermatomyositis last week. Feel so unwell at the moment. So much pain. My Ca125 levels have been going up. Now got to w...
RD vs. Dermatomyositis
shareasmile in NRAS3 years ago
Has any one of my good friends here been tested/diagnosed with dermatomyositis? I have always wondered if my RD diagnosis was off target, es...
Hashimoto's Hypothyroidism and Dermatomyositis
michaeloxon in Thyroid UK4 years ago
I was diagnosed with Hashimoto's hypothyroidism in May 2015 and began levothyroxine treatment. About the same time I developed muscle weakne...
Recently diagnosed with Dermatomyositis
Jazzy_hands in Myositis UK6 months ago
I’m new here and I’m trying to make sense of Dermatomyositis and me. Was diagnosed in March and ended up in hospital for almost a month not ...
Does anyone have SLE & Dermatomyositis??
Hidden in LUPUS UK7 years ago
Dermatomyositis & similar skin conditions in CLL
ThreeWs in CLL Support2 years ago
On a different forum a member of the CLL community, Eliot asked about patient experience with Dermatomyositis. Here was my reply to him and ...
Not lupus now but dermatomyositis and overlap syndrome!
Woods01 in LUPUS UK6 months ago
Does anyone on this group suffer with the above. My initial diagnosis was cutaneous lupus as it was my skin swollen and red and Pat...
New member here , recently diagnosed with Dermatomyositis 😐
Mark_A_UK in Myositis UK2 years ago
Hello members , i'm Mark , i joined here at the weekend , at the end of May 2017 a bright red rash started covering my face ,which i presum...
Dermatomyositis v Fibromyalgia? Took my daughter to doctors!!
mystique in Fibromyalgia Action UK7 years ago
Hi all, Thankyou for your comments recently xx We have now been told that her doctor definately thinks she now has Mr Fibro!! so now she has...
Have you been diagnosed with dermatomyositis as well as thyriod issues?
BitterSweetS in Thyroid UK9 months ago
Is this common and any advice would be of help? Early days and could find its all worry for nothing...keeping positive whatever the results,...
I’ve gone from being a possible mental case to full on bombardment with different specialist appointments 😥 possibly Dermatomyositis
Lisalou19 in LUPUS UK10 months agoPOPULAR
So I’m just another case with the same old story “symptoms are in your head” “you need a mental health referral” You’d think this day in age...
Myositis UK Afternoon Tea Meetup Manchester 19th May
Jo-Goode in Myositis UK2 years ago
*** LAST FEW PLACES AVAILABLE ***
Myositis UK Afternoon Tea Meetup - Manchester 19th May
Guest Speakers: Dr Hector Chinoy & Dr Liza McCann ?...
Did you know?
It's the #OlivierAwards tonight
Did you know Laurence Oliver had Dermatomyositis?
\"Some artists have 10‐year spans of greatness — only to...
Rash On the Chest with Muscle Weakness
lupus-support1 in LUpus Patients Understanding and Support2 months ago
Rheumatology Network Editorial Staff
October 5, 2019
Dermatomyositis is a multisystem autoimmune connective ti...
gillian1966 in Myositis UK3 years ago
Hi I'm gillian1966☺ I was diagnosed with dermatomyositis with ILD last year
Polymyositis - Information & links
New Study - Hiker’s Feet
A study lead by Lisa Christopher-Stine, M.D., M.P.H. identified “Hiker’s Feet” as a new skin finding in some p...
BBC Nicky Campbell 5 Live Radio Show
Michael spoke on BBC Nicky Campbell 5 Live radio show about Dermatomyositis and how the skin aspect is effecting his life.
Starts @ 18.00 to...
Partner with us
Start a Community