caram78 in Scleroderma & Raynaud's UK (SRUK)4 years ago
Hello there, does anyone have dermatomyositis? I am awaiting my blood test results and skin biopsy to find out if I have MCTD and just wonde...
educk in LUPUS UK3 years ago
Currently having a flare up of lupus symptoms and dermatomyositis symptoms. Was put on steroids last week when my lupus flared up but having...
Skid in LUPUS UK7 years ago
Has anyone been diagnosed with dermatomyositis ? I have sle,sjorgrens, connective tissue disease and now this. it would be good to...
Purpletop in LUPUS UK4 years ago
I've seen my rheumatologist recently and mentioned that I've been having some face swelling that doesn't seem to go away. I also showed him...
RA And Dermatomyositis
Zeke-17 in NRASa year ago
Hey, has anyone been diagnosed with RA and Dermatomatomyositis? I was diagnosed with RA in 2012 but have so many symptoms and doctors are ...
Juvenile Dermatomyositis - Information & links
Jo-Goode in Myositis UK2 years ago
◾Guide to Juvenile Dermatomyositis
Written by Professor Lucy Wedderburn, Great Ormond Street Hospital.
◾Frequently Asked Questions
Be the first to reply
Any Coeliacs out there with Dermatomyositis
Elisesmummy in Gluten Free Guerrillas5 years ago
I am currently in remission from Dermatomyositis, which is an autoimmune condition which affects the skin and muscles. It can be extremely ...
dermatomyositis is it related to lupus?
Carolha in LUPUS UK5 years ago
Hello folks, not been on here for a while as I've been very ill, had gallbladder removed which went terribly wrong, if you remember me repor...
RD vs. Dermatomyositis
shareasmile in NRAS3 years ago
Has any one of my good friends here been tested/diagnosed with dermatomyositis? I have always wondered if my RD diagnosis was off target, es...
Hashimoto's Hypothyroidism and Dermatomyositis
michaeloxon in Thyroid UK3 years ago
I was diagnosed with Hashimoto's hypothyroidism in May 2015 and began levothyroxine treatment. About the same time I developed muscle weakne...
Dermatomyositis - Information & links
◾Guide To Myositis - Written for Myositis UK by Les Oakley and updated by Dr Hector Chinnoy
◾General Guide About Myositis UK
ricky23 in My Ovacome5 years ago
I was diagnosed with Dermatomyositis last week. Feel so unwell at the moment. So much pain. My Ca125 levels have been going up. Now got to w...
Dermatomyositis & similar skin conditions in CLL
ThreeWs in CLL Support Associationa year ago
On a different forum a member of the CLL community, Eliot asked about patient experience with Dermatomyositis. Here was my reply to him and ...
Does anyone have SLE & Dermatomyositis??
Hidden in LUPUS UK6 years ago
New member here , recently diagnosed with Dermatomyositis 😐
Mark_A_UK in Myositis UKa year ago
Hello members , i'm Mark , i joined here at the weekend , at the end of May 2017 a bright red rash started covering my face ,which i presum...
Dermatomyositis v Fibromyalgia? Took my daughter to doctors!!
mystique in Fibromyalgia Action UK6 years ago
Hi all, Thankyou for your comments recently xx We have now been told that her doctor definately thinks she now has Mr Fibro!! so now she has...
Did you know?
It's the #OlivierAwards tonight
Did you know Laurence Oliver had Dermatomyositis?
\"Some artists have 10‐year spans of greatness — only to...
Myositis UK Afternoon Tea Meetup Manchester 19th May
Jo-Goode in Myositis UK8 months ago
*** LAST FEW PLACES AVAILABLE ***
Myositis UK Afternoon Tea Meetup - Manchester 19th May
Guest Speakers: Dr Hector Chinoy & Dr Liza McCann ?...
gillian1966 in Myositis UK2 years ago
Hi I'm gillian1966☺ I was diagnosed with dermatomyositis with ILD last year
Polymyositis - Information & links
New Study - Hiker’s Feet
A study lead by Lisa Christopher-Stine, M.D., M.P.H. identified “Hiker’s Feet” as a new skin finding in some p...
BBC Nicky Campbell 5 Live Radio Show
Jo-Goode in Myositis UK10 months ago
Michael spoke on BBC Nicky Campbell 5 Live radio show about Dermatomyositis and how the skin aspect is effecting his life.
Starts @ 18.00 to...
New here. One question
Anne_08 in Myositis UK10 months ago
Does anyone here have lesions like eczema with pain(or burn) in the skin of the knees and elbows? and do you know depigmented vitiligo-like ...
Social Media & website links
Myositis UK - the official charity Page on Facebook, administered by Paula Jordan (Trustee) and Jo Goode (Treasurer).
Idera IMO-8400 Clinical Trial - Video Chat Session
Lintilla in Myositis UK2 years ago
I picked this up from Twitter - Myositis Support in the USA and Idera are hosting a video chat session about a Phase 2 trial for Idera's dru...
Rsheppard in Myositis UKa year ago
Hi I have dermatomyositis, treated with rituximab 10 weekly but am recently- last few months - suffering severe eye pain anyone experiencing...
Information, links & Myositis specialist clinics
Information, links & Myositis specialist clinics:
Admin to Myositis UK Healthunlocked - Jo Goode.
Diagnosed in 1994 with Dermatomyositis aged...
So scared . . .
jean48 in Sticky Blood-Hughes Syndrome Support7 years ago
I went yesterday to see my Rheumy. I have a rash on my eyelids. He thinks it very well may be Dermatomyositis. I said it may take 5 or so...
In reply to all about my daughter xxxx
mystique in Fibromyalgia Action UK7 years ago
Hiya I would just like to say a very big thankyou to all who commented on my post about my daughter n(dermatomyositis) I have finally got h...
Butterfly54 in Behçet's UK3 years ago
Can I ask if any of you have Sjogrens syndrome along with Brechets.I`masking lots of questions as I see Doctor on Thursday and I`m trying to...
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