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Dermatomyositis
I have a friend who was recently diagnosed with
Dermatomyositis
. Is this group appropriate for this diagnosis?
I have a friend who was recently diagnosed with
Dermatomyositis
. Is this group appropriate for this diagnosis?
Zompopo1987
in
Myositis UK
2 months ago
family member in ICU
They have diagnosed
dermatomyositis
. He’s not doing well. They wanted to put him in an induced coma but he has aware enough to say no. The family are terrified and don’t know what questions we should be asking. Any insight would be gratefully received.
They have diagnosed
dermatomyositis
. He’s not doing well. They wanted to put him in an induced coma but he has aware enough to say no. The family are terrified and don’t know what questions we should be asking. Any insight would be gratefully received.
Talulah23
in
Myositis UK
2 months ago
Life insurance with Dermatomyositis
Has anyone with
Dermatomyositis
taken out life insurance cover since their diagnosis and if so, who with please? I’ve tried a few different companies and it seems that no one wants to cover me! Thanks in advance 😊
Has anyone with
Dermatomyositis
taken out life insurance cover since their diagnosis and if so, who with please? I’ve tried a few different companies and it seems that no one wants to cover me! Thanks in advance 😊
amp0124
in
Myositis UK
6 months ago
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Getting blood test for nutrients not found in common blood test
I have hashimotos, CLL and they are well controlled and /or stable It’s the
dermatomyositis
and a few other disorders that seems to flare up. I will be going to a naturalpath & nutritionist/dietitian.
I have hashimotos, CLL and they are well controlled and /or stable It’s the
dermatomyositis
and a few other disorders that seems to flare up. I will be going to a naturalpath & nutritionist/dietitian.
Eliotf
in
Myositis UK
4 months ago
Getting blood test for nutrients not found in common blood test
I have hashimotos, CLL and they are well controlled and /or stable It’s the
dermatomyositis
and a few other disorders that seems to flare up. I will be going to a naturalpath & nutritionist/dietitian.
I have hashimotos, CLL and they are well controlled and /or stable It’s the
dermatomyositis
and a few other disorders that seems to flare up. I will be going to a naturalpath & nutritionist/dietitian.
Eliotf
in
Thyroid UK
4 months ago
Feeling so alone
I don't even know where to start after "getting better" when I was early teens from
Dermatomyositis
life has been pretty good I had two beautiful boys after being told I couldn't have children.
I don't even know where to start after "getting better" when I was early teens from
Dermatomyositis
life has been pretty good I had two beautiful boys after being told I couldn't have children.
Ho0lio76
in
Myositis UK
5 months ago
Is there a dr at Ninewells who deals with APS?
I have auto immune disease,
dermatomyositis
with anti Synthetase syndrome and also urticarial vascultis. I am at a loss as to what to do. I would have expected as a minimum to have had the blood tests repeated. I’m speaking to my GP on Friday about this as he informed me by text.
I have auto immune disease,
dermatomyositis
with anti Synthetase syndrome and also urticarial vascultis. I am at a loss as to what to do. I would have expected as a minimum to have had the blood tests repeated. I’m speaking to my GP on Friday about this as he informed me by text.
roony13
in
Hughes Syndrome APS Forum
5 months ago
Dermatomyositis self help group/ anyone in existence ?, please send me contact. I am based in Swansea, Wales. 07804849206
josecifuentes
josecifuentes
angelsue
in
Myositis UK
2 months ago
Covid Vaccination Study
Diseases that fall under this category include lupus, an autoimmune disease affecting the skin, joints, and internal organs, and myositis and
dermatomyositis
, which manifest as muscle and tissue inflammation. Two patients died of their conditions.
Diseases that fall under this category include lupus, an autoimmune disease affecting the skin, joints, and internal organs, and myositis and
dermatomyositis
, which manifest as muscle and tissue inflammation. Two patients died of their conditions.
noslak
in
PMRGCAuk
5 months ago
Phase 2 Trial Tests Daxdilimab as Potential DLE Therapy
“Daxdilimab is also being investigated in other autoimmune conditions that are driven by high levels of interferon, including alopecia areata,
dermatomyositis
, lupus nephritis and systemic lupus erythematosus,” Podrebarac said.
“Daxdilimab is also being investigated in other autoimmune conditions that are driven by high levels of interferon, including alopecia areata,
dermatomyositis
, lupus nephritis and systemic lupus erythematosus,” Podrebarac said.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
RAISE STUDY recruitment
RAISE STUDY recruitment (I have personally taken part in one focus group earlier this year) Are you a person with systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as
dermatomyositis
or polymyositis) or Scleroderma?
RAISE STUDY recruitment (I have personally taken part in one focus group earlier this year) Are you a person with systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as
dermatomyositis
or polymyositis) or Scleroderma?
zoe69
Vasculitis UK
in
Vasculitis UK
2 years ago
Anyone with an autoimmune, with a diagnosis of Endometriosis! Does periods flare your autoimmune too?
Just been diagnosed with highly suspected
dermatomyositis
! Awaiting to rule out what is causing the weight loss and rashes! Currently having infection, autoimmune and cancer ruled out! Anyway, I have noticed all this is linked to what Drs are calling Endometriosis!
Just been diagnosed with highly suspected
dermatomyositis
! Awaiting to rule out what is causing the weight loss and rashes! Currently having infection, autoimmune and cancer ruled out! Anyway, I have noticed all this is linked to what Drs are calling Endometriosis!
Heloo85
in
Endometriosis UK
2 years ago
Medication weight gain
Hi All, I have
dermatomyositis
diagnosed in November and started on meds in December. High doses of prednisolone at first but have now reduced to 10mg. I’m also on 200mg hydroxychloraquine daily and 25mg methotrexate weekly.
Hi All, I have
dermatomyositis
diagnosed in November and started on meds in December. High doses of prednisolone at first but have now reduced to 10mg. I’m also on 200mg hydroxychloraquine daily and 25mg methotrexate weekly.
Parisian13
in
Myositis UK
2 years ago
Dermatomyositis
Hi All, just been diagnosed with
Dermatomyositis
-been on my medication a month. I think I’m responding ok in relation to the side effects….so far, so good! Just wondering what things people might be using to make life easier? Has anyone applied for a blue badge, is there any help out there?
Hi All, just been diagnosed with
Dermatomyositis
-been on my medication a month. I think I’m responding ok in relation to the side effects….so far, so good! Just wondering what things people might be using to make life easier? Has anyone applied for a blue badge, is there any help out there?
Parisian13
in
Myositis UK
2 years ago
RAISE study - an opportunity to raise your voice
Are you a person who has systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as
dermatomyositis
or polymyositis), Scleroderma or Sjogrens syndrome? Would you like to help us plan better support for people?
Are you a person who has systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as
dermatomyositis
or polymyositis), Scleroderma or Sjogrens syndrome? Would you like to help us plan better support for people?
zoe69
Vasculitis UK
in
Vasculitis UK
2 years ago
Study by the Research Team at University of West of England
Are you a person who has systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as
dermatomyositis
or polymyositis), Scleroderma or Sjögrens syndrome? Would you like to help us plan better support for people?
Are you a person who has systemic vasculitis, systemic lupus erythematosus, inflammatory myositis (such as
dermatomyositis
or polymyositis), Scleroderma or Sjögrens syndrome? Would you like to help us plan better support for people?
Alida_Bennett
LUPUS UK
in
LUPUS UK
2 years ago
Symptoms have returned after picking up a bad cold -is that normal?
I was diagnosed with
Dermatomyositis
in November and I’ve been on my meds since late December. So far I have been doing really well, I’m on Prednisolone, Methotrexate & hydroxychloroquine. I’ve started with a bad cold this weekend.
I was diagnosed with
Dermatomyositis
in November and I’ve been on my meds since late December. So far I have been doing really well, I’m on Prednisolone, Methotrexate & hydroxychloroquine. I’ve started with a bad cold this weekend.
Parisian13
in
Myositis UK
2 years ago
Dermatomyositis Diagnosis in December 2021
Good afternoon, Having received my diagnosis in the middle of December this is all very new and to be honest quite scary. the Myositis has been found in my Paraspinal muscles and as yet I have not been advised of a treatment plan. Be very interested to hear from anyone - all hints tips and advise very
Good afternoon, Having received my diagnosis in the middle of December this is all very new and to be honest quite scary. the Myositis has been found in my Paraspinal muscles and as yet I have not been advised of a treatment plan. Be very interested to hear from anyone - all hints tips and advise very
AnnabelleLucy
in
Myositis UK
2 years ago
Researchers discover the cause of lupus
Carola adds: “There are other systemic autoimmune diseases, like rheumatoid arthritis and
dermatomyositis
, which fit within the same broad family as lupus. TLR7 may also play a role in these conditions.”
Carola adds: “There are other systemic autoimmune diseases, like rheumatoid arthritis and
dermatomyositis
, which fit within the same broad family as lupus. TLR7 may also play a role in these conditions.”
Thick_Blood
in
LUpus Patients Understanding and Support
2 years ago
Researchers discover the genetic cause of lupus:“While it may only be a small number of people with lupus who have variants in TLR7 itself,
Carola adds: “There are other systemic autoimmune diseases, like rheumatoid arthritis and
dermatomyositis
, which fit within the same broad family as lupus. TLR7 may also play a role in these conditions.”
Carola adds: “There are other systemic autoimmune diseases, like rheumatoid arthritis and
dermatomyositis
, which fit within the same broad family as lupus. TLR7 may also play a role in these conditions.”
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
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