Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

25,550 members • 26,870 posts

All posts for November 2017

Newby

75 years old. Pd for 4 years. Not on medication. Stiffness, balance issues, weakness on the right side, gait problems. Good days and bad days. Do no contact...

75 years old. Pd for 4 years. Not on medication. Stiffness, balance issues, weak...

ranger319

•7 years ago

16 Replies

Mom with Parkinson’s on Mannitol

My mom has been taking Mannitol for 1 month and 5 days. I am getting very excited because she has her voice back. She struggled to talk before and you...

My mom has been taking Mannitol for 1 month and 5 days. I am getting very excit...

Hidden

•7 years ago

9 Replies

How to reply

I have not directly replied to a post in a while because the reply button is not there can someone advise

I have not directly replied to a post in a while because the reply button is n...

Boyce3600

•7 years ago

1 Reply

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Living with an Uncertain Future

We know Parkinson's is incurable and progressive. What we don't know is how it will progress in our lives. How fast will my symptoms progress? Will I be...

We know Parkinson's is incurable and progressive. What we don't know is how it ...

btuma6

•7 years ago

16 Replies

Mannitol : a hint from CliniCrowd

Read this morning in the CliniCrowd Forum pages (dated October 29, 2017) "We can however already hint that we already see some statistics, such as : 88%...

Read this morning in the CliniCrowd Forum pages (dated October 29, 2017) "We can...

Xenos

•7 years ago

3 Replies

Help for PD

I am writing for my husband who has PD because he doesn't do computers. He has had it for several years and took the normal carb/levo. It helped some but now...

I am writing for my husband who has PD because he doesn't do computers. He has h...

Saude1

•7 years ago

12 Replies

Recent PD Diagnoses

I have been recently diagnosed with Parkinson Disease. The VA has recognized that I contacted the disease because of exposure to Agent Orange in Vietnam. I...

I have been recently diagnosed with Parkinson Disease. The VA has recognized th...

ranger6970

•7 years ago

4 Replies

I am new

I have cbd otherwise known as cortico basal degeneration. it has affected my right side and I am right handed. I am following people with parkinsons since...

I have cbd otherwise known as cortico basal degeneration. it has affected my rig...

donnapenrose

•7 years ago

1 Reply

Nilo - PD Study

MJFF announced an exciting second study to test Nilotinib ( The approved drug used for Cronic Myelogenous leukemia), repurposed for people with...

MJFF announced an exciting second study to test Nilotinib ( The approved drug ...

--Ton--

•7 years ago

7 Replies

Hi how fast does PD progress?

I am in my late 30's and was DX'ed about 2 year ago. I am currently on 5 sinemet 100mg a day and 1mg rasagiline a day. It started in my right hand/arm...

I am in my late 30's and was DX'ed about 2 year ago. I am currently on 5 sinemet...

T127

•7 years ago

15 Replies

Nausea

I was diagnosed with Parkinson’s 4 years ago. I have no tremor. My problems are poor coordination, agility and balance along with low blood pressure, poor...

I was diagnosed with Parkinson’s 4 years ago. I have no tremor. My problems are ...

Joynb

•7 years ago

3 Replies

Feel

Hi friends. Does anyone have good days. Or bad days Some days I feel good. Other days I feel awful Ty Dot

Hi friends. Does anyone have good days. Or bad days Some days I feel good. Othe...

Teafor22

•7 years ago

6 Replies

Has anyone else been though the ordeal of the tests for the brain stimulation only to be told you Carnt have it YET?...

I am 57 years old and I was diagnosed with pd 3 years ago but my doctor reckons I have had it for at least 2 years before that Back in April 2017 my...

I am 57 years old and I was diagnosed with pd 3 years ago but my doctor reckons ...

CarolCastile

•7 years ago

9 Replies

How to search on this board

Can someone tell me how to search for a particular word or topic within this community? The home page has a Search option but if I type in Azilect, it just...

Can someone tell me how to search for a particular word or topic within this com...

Mlitt0818

•7 years ago

6 Replies

Weight

Is anyone anyone gaining wt? Dr wanted me to lose 40#... less wt on my legs. I lost 22# and was doing really well, and out of blue couldn’t get enough...

Is anyone anyone gaining wt? Dr wanted me to lose 40#... less wt on my legs. I...

12Maxwell3

•7 years ago

27 Replies

What to do

Im suppose to take one 25/100 car.levo three times a day ..i tried...makes me sick in my stomach and does nothing for my hand tremor..so i tried 1/2 three...

Im suppose to take one 25/100 car.levo three times a day ..i tried...makes me si...

Rosabellazita

•7 years ago

7 Replies

Saying Goodbye

Hi all This is a link to my vlog about saying goodbye to my mum, who has advanced Parkinson's https://youtu.be/L6RVKkOIbos Cheers, Ian

Hi all This is a link to my vlog about saying goodbye to my mum, who has advance...

Ianfrizell

•7 years ago

13 Replies

HEART BURN

I am started having really bad heartburn. Could it be the siment 50/200 CR the neuro started me on to help sleep.

I am started having really bad heartburn. Could it be the siment 50/200 CR the...

cshamb

•7 years ago

3 Replies

Thank you - early survey findings

Thank you so much for your continued interest in this survey. We are still in the early stages of collecting responses, but we have begun to analyse sections...

Thank you so much for your continued interest in this survey. We are still in th...

CPT_Helen

Partner•7 years ago

Be the first to reply

Dyskenisia on very low dose of C/L

hello is it normal to have some dyskenisia while taking such a low dose? I take 25/100 3x day and was recently upped on my dose to 1 1/2 pills 3 x day. This...

hello is it normal to have some dyskenisia while taking such a low dose? I take ...

RS313

•7 years ago

5 Replies

23 day cycle and bad days

I'm having a bad day today, anybody else having a bad day? I marked on my calendar, it is 23 days from my last bad day.

I'm having a bad day today, anybody else having a bad day? I marked on my calend...

parkie13

•7 years ago

10 Replies

Foot focal dystonia

I've been a runner for a very long time and I was just diagnosed with foot focal dystonia in my right foot. This is so debilitating, as I have a difficult time...

I've been a runner for a very long time and I was just diagnosed with foot focal...

Hidden

•7 years ago

1 Reply

Nervous

Today has been odd to say the least. Typically I take 3-4 Ext Rls C/L, 2 Amantadine and maybe throw in 1 imm rls c/l... My last dose of any c/l was at 1:30...

Today has been odd to say the least. Typically I take 3-4 Ext Rls C/L, 2 Amanta...

Cbgs

•7 years ago

Be the first to reply

Who am I

I am French from the south of France I am 61 and retired and was diagnosed with Parkinson's 7 years ago.

I am French from the south of France I am 61 and retired and was diagnosed with ...

Roger78

•7 years ago

13 Replies

Exercise

Some days I have to do a lot of physical work For quite a few days after I am unwel and my symptoms are worse It seems that each time I never quite recover...

Some days I have to do a lot of physical work For quite a few days after I am un...

M-o-ggy

•7 years ago

9 Replies

ROCK STEADY BOXING IN MICHIGAN

I AM IN SHOCK...I JUST TALKED TO SOMEONE HERE ABOUT SIGNING UP FOR THE CLASSES AND THEY ARE $30 PER CLASS!!! OMG WHO CAN AFFORD THAT? AND YOU HAVE TO GO AT...

I AM IN SHOCK...I JUST TALKED TO SOMEONE HERE ABOUT SIGNING UP FOR THE CLASSES A...

RS313

•7 years ago

38 Replies

Buttons are no longer so difficult!

I have hope.

Hidden

•7 years ago

10 Replies

Stem Cell Fraud: A 60 Minutes investigation

https://www.youtube.com/watch?v=ovPZkQYee8Y

MBAnderson

•7 years ago

7 Replies

Different Med manufacturers

I take Carbidopa 25 along with my other meds. I had always been using manufacturer Alvogen. The pharmacist changed me to another manufacture for Carbidopa...

I take Carbidopa 25 along with my other meds. I had always been using manufactur...

sleddog

•7 years ago

5 Replies

Dissyness and sudden drop in blood pressure

My husband takes medication for high blood pressure and with PD medications experiences dizziness with sudden drop in blood pressure. Does anyone where...

My husband takes medication for high blood pressure and with PD medications expe...

Shirleyam

•7 years ago

3 Replies

Posts - Cure Parkinson's | HealthUnlocked

Cure Parkinson's

All posts for November 2017

Newby

Mom with Parkinson’s on Mannitol

How to reply

Living with an Uncertain Future

Mannitol : a hint from CliniCrowd

Help for PD

Recent PD Diagnoses

I am new

Nilo - PD Study

Hi how fast does PD progress?

Nausea

Feel

Has anyone else been though the ordeal of the tests for the brain stimulation only to be told you Carnt have it YET?...

How to search on this board

Weight

What to do

Saying Goodbye

HEART BURN

Thank you - early survey findings

Dyskenisia on very low dose of C/L

23 day cycle and bad days

Foot focal dystonia

Nervous

Who am I

Exercise

ROCK STEADY BOXING IN MICHIGAN

Buttons are no longer so difficult!

Stem Cell Fraud: A 60 Minutes investigation

Different Med manufacturers

Dissyness and sudden drop in blood pressure

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