Nilo - PD Study: MJFF announced an... - Cure Parkinson's

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Nilo - PD Study

--Ton-- profile image
7 Replies

MJFF announced an exciting second study to test Nilotinib ( The approved drug used for Cronic Myelogenous leukemia), repurposed for people with Parkinson's. This study is called Nilo-PD. It's restricted to the USA, they're looking for 75 PEOPLE with Parkinson's, between the ages of 40 to 79, who have moderate to advanced PD (Diagnosed five+ years).

To find out if you qualify and would like to participate log into Fox Trial Finder foxtrialfinder.michaeljfox.com

Tell them Toni referred you.

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lempa_nik profile image
lempa_nik

I fail to see what's so charming about a drug that costs $12,000 for 28 capsules in the US:

goodrx.com/tasigna

--Ton-- profile image
--Ton-- in reply tolempa_nik

Great question! Nilo has not been approved for PD. If you're comparing it to Leukemia, the doses are far greater, therefore, more expensive. The first study Nilo reduced the buildup of alpha - synuclein. The Nilo-PD study would cost you $0. For more information contact Fox Trial Finder.

--Ton-- profile image
--Ton-- in reply to--Ton--

@Andy did you continue to investigate the Nilo-PD study?

Andy19 profile image
Andy19

does anyone tries Nilotinib?

--Ton-- profile image
--Ton--

During the study, yes! the distribution will be (1-1-1 150 mg, 300 mg, placebo). Contact Fox Trial Finder to learn more.

Andy19 profile image
Andy19

I meant outside the study

--Ton-- profile image
--Ton-- in reply toAndy19

No, not for PD.

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