Who am I

[Roger78]

I am French from the south of France I am 61 and retired and was diagnosed with Parkinson's 7 years ago.

[Hidden]

Welcome RogerChe

[Roger78 in reply to Hidden]

Thank you for your welcome message

[faridaro]

Welcome! With your 7 years of PD experience it would nice to hear about what kind of treatments/therapies you've tried and their benefits.

[Roger78 in reply to faridaro]

My current therapy is

-azilect 1 mg (from the beginning)

- neupro 8 (for the last 5 years)

- modopar L dopa ( for the last 6 months min dose)

I would like to try supplements to slow down the evolution of my condition

Do you have experience in this topic?

[maulparking in reply to Roger78]

Bienvenu. J’ai PD Depuis nov 2009. Je ne prends que le carb/levo 25-100 4 à 6 pj.

Près de St Paul de Vence?

[Roger78 in reply to maulparking]

Bonjour J'ai effectivement Parkinson depuis 2011 et ma neuro qui travaille à la Salpetriere a préféré commencer par Azilect puis Neupro J'ai l'impression que cela permet de limiter les périodes down ???

J'habite près de Grignan

Cordialement

[faridaro in reply to Roger78]

I was diagnosed 7 months ago (with about 1 year of prior symptoms of increasing left hand tremors). Started on rasagiline (generic for azilect) 1mg, was very foggy and spaced out, so reduced it to 0.5mg. Was ok for a while then 1 month ago started having daily mild headaches and quit the medication. Also, have been taking mannitol according to research by Clinicrowd.com. Considering cbd oil - gathering information on it. Taking bioavailable B complex for MTHFR mutation and probiotics to restore intestinal flora after antibiotic treatments for Lyme disease with few mineral supplements.

[soup]

It’s good to meet you. My husband has had Parkinson’s for 10 years. We live in Cornwall in the South West of the U.K. he was diagnosed at 54.

It would be good to hear more about others in the group.

[Roger78]

Thank you for your welcome message

[ddmagee1]

Welcome to this forum, Roger Che, It has been very helpful to me. The perspectives of people with PD, is more of a practical and understanding base, rather than what one finds in clinical assessment reports and studies of PD.

[Bayane8753]

Hello ,im hind from Morocco ,i'm here to understand and find a good treatement for PD ,because i wanna help my mom with This desease ,i have hope one day she will recover ,she had it for almost 4 years at early age in 46

Thanks

[Nmcleanreid]

Hi RogerChe

My husband was diagnosed with PD 3 years ago at the age of 49. We also live in the South of France but we are from England. Have you found much support here in France?

[Roger78 in reply to Nmcleanreid]

Hi

What do you mean by support in France ?

We are helped by our neurologist but we do not have so many blogs and forums.

Speaking for myself I prefer anglo saxon groups of discussion