A little confused

[Vickysponge357]

Hello,

I think I’m just looking for somewhere to air my confusion about what is happening.

At the end of nov I began to get awful pain in my left pelvis/abdo and left side of my lower back. The pain had me back at the GP 4 times in a week and a trip to a&e. My GP first diagnosed kidney infection and then kidney stones which were proved wrong my lab results and CT scan, though there has been blood in my urine since.

In December my bowels started to play up, over Christmas week I was living on loperamide as it was all just blood, liquid and mucous coming out! So Dr requested a stool sample and prescribed buscopan which did nothing but stool came back with elevated calprotectin. But bowel symptoms resolved so she went to the gynaecology route quieting endometriosis.

Blood tests have also come back as raised inflammation markers.

The last two weeks have been absolute hell. I have had diarrhoea for 2 weeks, all blood and mucus again and going about 8-10 times a day! To say I’m exhausted is an understatement!

GP is now putting endometriosis on the back burner and is now querying IBD. I just feel drained from all the back and forth misdiagnosis, I feel like I’m going mad!

Sorry for the long one! Just needed to vent and talking about my poo with my friends and family is a bit cringey!

[Valbaty54]

Hi, I think your GP is finally on the right track! Your change of bowel habit involving blood and mucus, raised calprotectin and raised inflammation markers are all IBD symptoms. What you need is a gastro referral and a colonoscopy as soon as possible to see what's happening, and some meds to control it. Try not to use loperamide regularly as blocking up the system can be risky. Good luck!

[willow24 Administrator]

Believe it or not hormones can cause probs with bowels esp IBD, a lot of women find around a period their IBD symptoms are worse. Endometriosis tissue can also be found elsewhere in the body, and again produce symptoms within the menstrual cycle. Your symptoms sound very much like IBD, and it is possible that you have endometriosis which is impacting on the IBD. Unfortunately specialists stick to their area of expertise and its hard to get them to work in conjunction with each other. I think you need to request a colonoscopy with biopsies in relation to the IBD and go from there. Good luck and dont let GP fob you off xx