I finally saw a Pulmonologist on Friday for my recently diagnosed COPD. He said I without a doubt have COPD, but suspects I have had also untreated Asthma for years which has lead to the COPD, so he switched me from the Anoro inhaler my GP had put me on, to Breo. I have a methacholine challenge test on 7/6/18 to verify for sure on the Asthma, but having not admitted the true extent of my breathing difficulty for years, I'm pretty sure what the test is going to show, but only time will tell.
I used the Breo for the 1st time yesterday 6/30/18 and it appeared to open my airways much better than the Anoro had been doing, so I was pleased with that aspect of it.
It was actually several hours later that my scary issues began. Without any warning at all I started shaking, sweating, started having chest pain, had shortness of breath, it was like I had drank 5 pots of pure caffeine and they had all decided to kick in at the same time. It felt like my heart was going to pound and race right out of my chest, my blood pressure (which is normally low) increased too 200/120, one of my arms and one side of my face went numb. Folks, I kid you not, I literally felt like I was dying, so after 3 nitroglycerin tablets didn't relieve the chest pain, etc. (although the nitro did help lower the sky high blood pressure some), off to ER I headed. All the tests at the ER appeared to be negative on it being related to actual heart or breathing issues that were causing these particular symptoms, and all signs pointed to me having a very bad reaction to Breo. Also at ER they took my temperature when I arrived and it was 98.1 about 10 mins later another girl came in and took it again and it was then 99.4 which I thought was very odd, but after reading some Breo reviews several people noted running a low grade temp when they were using it, so I guess that must have been what was going on with me too? These symptoms in all total lasted about 3 very loooong and scary hours, and then finally as oddly as they had started they started to go away.
After I was released from ER last night I did have multiple muscle spasms in my legs the entire rest of the night. Today I feel absolutely horrible from last night's ordeal. My entire body hurts, I feel like a block of concrete is sitting on my chest and lungs, I have pain and tightness between my shoulder blades, in my shoulders and back, my legs are super sore from the muscle spasms in them, and the one arm, and side of my face that was numb last night still feels numb today, but thankfully to a much lesser degree. Anyway Breo is apparently not going to work for me, so I'm wondering what the Dr. will decide to put me on next. I read in the reviews that a lot of people who had issues with Breo were able to take Symbicort successfully and that it seemed to help their breathing issues
Do you all have any opinions on Symbicort or any other long acting inhaler with steroids in it for both COPD and Asthma?
Thanks for listening to me whine, it was just really scary and not something I want to repeat ever again. Have a nice day!!