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Weight Gain Acalabrutinib?

Hi Fellow Acalabrutinib Friends Since beginning to participate in a Acalabrutinib clinical trial several months ago, I have experienced a slow but steady increase in weight. I have cut back on calorie intake and exercised more, yet my weight continues to increase? All advice welcome. Thanks
Hi Fellow Acalabrutinib Friends Since beginning to participate in a Acalabrutinib clinical trial several months ago, I have experienced a slow but steady increase in weight. I have cut back on calorie intake and exercised more, yet my weight continues to increase? All advice welcome. Thanks
spanish36 profile image
spanish36
in CLL Support

Acalabrutinib

I'm now only taking Acalabrutinib plus Co-codamol and Tramadol for headaches and pain but am seeing my Consultant on Thursday to see where we go from here. Has anyone else had similar problems?
I'm now only taking Acalabrutinib plus Co-codamol and Tramadol for headaches and pain but am seeing my Consultant on Thursday to see where we go from here. Has anyone else had similar problems?
BethIlia profile image
BethIlia
in CLL Support

Acalabrutinib

Good morning folks. My consultant, Dr Munro rang yesterday. All good, I had had a CT scan a few weeks ago to check progress of lymph nodes and spleen. She said that the CT scan just showed a small ovarian cyst not changed from last time and all lymph nodes had reduced considerably. White cells are down
Good morning folks. My consultant, Dr Munro rang yesterday. All good, I had had a CT scan a few weeks ago to check progress of lymph nodes and spleen. She said that the CT scan just showed a small ovarian cyst not changed from last time and all lymph nodes had reduced considerably. White cells are down
kitchengardener2 profile image
kitchengardener2
in CLL Support
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ANYONE WITH LOW BLOOD PRESSURE ISSUES WHILE TAKING ACALABRUTINIB?

I started treatment with Acalabrutinib June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking Acalabrutinib. In October and November 2021 I had gallbladder issues and suspended treatment.
I started treatment with Acalabrutinib June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking Acalabrutinib. In October and November 2021 I had gallbladder issues and suspended treatment.
CADreamer profile image
CADreamer
in CLL Support

Anybody is gaining weight on acalabrutinib?

I am wondering if acalabrutinib can be a contributor. I would appreciate any feedback.
I am wondering if acalabrutinib can be a contributor. I would appreciate any feedback.
Belkin123 profile image
Belkin123
in CLL Support

Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?

I was diagnosed in October 2021 with CLL, and will be starting treatment with Acalabrutinib in two weeks. I asked my doctor if Acalabrutinib would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.
I was diagnosed in October 2021 with CLL, and will be starting treatment with Acalabrutinib in two weeks. I asked my doctor if Acalabrutinib would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.
Luv2Craft profile image
Luv2Craft
in CLL Support

Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?

I was diagnosed in October 2021 with CLL, and will be starting treatment with Acalabrutinib in two weeks. I asked my doctor if Acalabrutinib would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.
I was diagnosed in October 2021 with CLL, and will be starting treatment with Acalabrutinib in two weeks. I asked my doctor if Acalabrutinib would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.
Luv2Craft profile image
Luv2Craft
in CLL America Support

Understanding Acalabrutinib

My understanding of Acalabrutinib is that it is a more recent form of ibrutinib in which various side effects have been eliminated or reduced. Does it have more curative properties, or lose any of the properties that ibrutinib currently contains? Am I understanding this correctly? Thanks - Dan
My understanding of Acalabrutinib is that it is a more recent form of ibrutinib in which various side effects have been eliminated or reduced. Does it have more curative properties, or lose any of the properties that ibrutinib currently contains? Am I understanding this correctly? Thanks - Dan
CCgroup profile image
CCgroup
in CLL Support

Coming off medication

I’ve been on Acalabrutinib for 10 months. WBC has dropped from 101 to 12.1 which is obviously good news. However my haematologist tells me even if/when WBC reaches normal I will continue on treatment. Has anyone had a similar experience and eventually come off treatment?
I’ve been on Acalabrutinib for 10 months. WBC has dropped from 101 to 12.1 which is obviously good news. However my haematologist tells me even if/when WBC reaches normal I will continue on treatment. Has anyone had a similar experience and eventually come off treatment?
julianlydes profile image
julianlydes
in CLL Support

Treatment advice after calquence fails? Pain relief advice?

She was admitted to hospital given steroids and acalabrutinib upon her return home. The acalabrutinib (calquence) was like a miracle!! After thinking we were losing her she was well again.
She was admitted to hospital given steroids and acalabrutinib upon her return home. The acalabrutinib (calquence) was like a miracle!! After thinking we were losing her she was well again.
SimmiP profile image
SimmiP
in CLL Support

request for advice on experiences with acalabrutinib treatment for CLL

I am about to start CLL treatment with acalabrutinib and would welcome comments from other people with experience of using this treatment, especially with regard to the incidence of side effects, their severity and how to cope with them or, if possible, reduce them.
I am about to start CLL treatment with acalabrutinib and would welcome comments from other people with experience of using this treatment, especially with regard to the incidence of side effects, their severity and how to cope with them or, if possible, reduce them.
giraffe162 profile image
giraffe162
in CLL Support

Acalabrutinib

Hi all, had my appointment with my consultant this afternoon. All good news. Heamaglobin 116 up from 106 so normal now and no anaemia. White cell count 24.5 Red cell count 3.60 Neutrophils 3.3 Lymphocytes 20.5 Everything else was fine. My doctor doesn't want to see me again for 8 weeks but she
Hi all, had my appointment with my consultant this afternoon. All good news. Heamaglobin 116 up from 106 so normal now and no anaemia. White cell count 24.5 Red cell count 3.60 Neutrophils 3.3 Lymphocytes 20.5 Everything else was fine. My doctor doesn't want to see me again for 8 weeks but she
kitchengardener2 profile image
kitchengardener2
in CLL Support

Information on the side effects of ibrutinib

In uk mostly starting new patients on acalabrutinib due to this and price https://patientpower.info/what-are-the-heart-risks-associated-with-ibrutinib-for-cll/
In uk mostly starting new patients on acalabrutinib due to this and price https://patientpower.info/what-are-the-heart-risks-associated-with-ibrutinib-for-cll/
Bartlet profile image
Bartlet
in CLL Support

Acalabrutinib or Ibrutinib.

Doctor suggested to take either Acalabrutinib or Ibrutinib. Which one is good and which diet need to follow?What precaution need to take? Input is really helpful. Please suggest. Thx :)
Doctor suggested to take either Acalabrutinib or Ibrutinib. Which one is good and which diet need to follow?What precaution need to take? Input is really helpful. Please suggest. Thx :)
pbaddi profile image
pbaddi
in CLL Support

Ibrutinib, Acalabrutinib, or Zanubrutinib

If you had your choice, for initial treatment in low risk CLL, which would you choose Ibrutinib, Acalabrutinib, or Zanubrutinib ? I ask because, some health care organizations are offering a change from ibrutinib to their patients.
If you had your choice, for initial treatment in low risk CLL, which would you choose Ibrutinib, Acalabrutinib, or Zanubrutinib ? I ask because, some health care organizations are offering a change from ibrutinib to their patients.
Davidcara profile image
Davidcara
in CLL Support

Acalabruitinib and Obinutuzumab

Acalabrutinib Dr is suggesting adding Obinutuzumab would like to know more about it.
Acalabrutinib Dr is suggesting adding Obinutuzumab would like to know more about it.
Porter01 profile image
Porter01
in CLL Support

How long before Acalabrutinib kicks in?

How long (days, weeks, months) on Acalabrutinib before some of you folks started seeing improved blood #'s and how long/severe did things go backwards before blood started going in the right direction?
How long (days, weeks, months) on Acalabrutinib before some of you folks started seeing improved blood #'s and how long/severe did things go backwards before blood started going in the right direction?
lpac profile image
lpac
in CLL Support

Reaction to 5th covid jab

I am being treated with Acalabrutinib.
I am being treated with Acalabrutinib.
kitchengardener2 profile image
kitchengardener2
in CLL Support

Anyone have experience with Molnupiravir?

Commenced Acalabrutinib in a clinical trial August 2020. Progress going reasonably well. I am triple vaccinated against covid19. Immunity if any is questionable?
Commenced Acalabrutinib in a clinical trial August 2020. Progress going reasonably well. I am triple vaccinated against covid19. Immunity if any is questionable?
spanish36 profile image
spanish36
in CLL Support

Acalabrutinib and dry skin etc

I started treatment with Acalabrutinib in September and have been fine, no real side effects. My white blood count is now down to 24.1 and Heamaglobin in normal range. I just have a question for anyone else who is a Acalabrutinib user.
I started treatment with Acalabrutinib in September and have been fine, no real side effects. My white blood count is now down to 24.1 and Heamaglobin in normal range. I just have a question for anyone else who is a Acalabrutinib user.
kitchengardener2 profile image
kitchengardener2
in CLL Support
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