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Acalabrutinib
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Weight Gain Acalabrutinib?
Hi Fellow
Acalabrutinib
Friends Since beginning to participate in a
Acalabrutinib
clinical trial several months ago, I have experienced a slow but steady increase in weight. I have cut back on calorie intake and exercised more, yet my weight continues to increase? All advice welcome. Thanks
Hi Fellow
Acalabrutinib
Friends Since beginning to participate in a
Acalabrutinib
clinical trial several months ago, I have experienced a slow but steady increase in weight. I have cut back on calorie intake and exercised more, yet my weight continues to increase? All advice welcome. Thanks
spanish36
in
CLL Support
Acalabrutinib
I'm now only taking
Acalabrutinib
plus Co-codamol and Tramadol for headaches and pain but am seeing my Consultant on Thursday to see where we go from here. Has anyone else had similar problems?
I'm now only taking
Acalabrutinib
plus Co-codamol and Tramadol for headaches and pain but am seeing my Consultant on Thursday to see where we go from here. Has anyone else had similar problems?
BethIlia
in
CLL Support
Acalabrutinib
Good morning folks. My consultant, Dr Munro rang yesterday. All good, I had had a CT scan a few weeks ago to check progress of lymph nodes and spleen. She said that the CT scan just showed a small ovarian cyst not changed from last time and all lymph nodes had reduced considerably. White cells are down
Good morning folks. My consultant, Dr Munro rang yesterday. All good, I had had a CT scan a few weeks ago to check progress of lymph nodes and spleen. She said that the CT scan just showed a small ovarian cyst not changed from last time and all lymph nodes had reduced considerably. White cells are down
kitchengardener2
in
CLL Support
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ANYONE WITH LOW BLOOD PRESSURE ISSUES WHILE TAKING ACALABRUTINIB?
I started treatment with
Acalabrutinib
June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking
Acalabrutinib
. In October and November 2021 I had gallbladder issues and suspended treatment.
I started treatment with
Acalabrutinib
June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking
Acalabrutinib
. In October and November 2021 I had gallbladder issues and suspended treatment.
CADreamer
in
CLL Support
Anybody is gaining weight on acalabrutinib?
I am wondering if
acalabrutinib
can be a contributor. I would appreciate any feedback.
I am wondering if
acalabrutinib
can be a contributor. I would appreciate any feedback.
Belkin123
in
CLL Support
Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?
I was diagnosed in October 2021 with CLL, and will be starting treatment with
Acalabrutinib
in two weeks. I asked my doctor if
Acalabrutinib
would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.
I was diagnosed in October 2021 with CLL, and will be starting treatment with
Acalabrutinib
in two weeks. I asked my doctor if
Acalabrutinib
would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.
Luv2Craft
in
CLL Support
Did anyone have MGUS progress into CLL, and after treatment for CLL, did your MGUS improve or no longer exist?
I was diagnosed in October 2021 with CLL, and will be starting treatment with
Acalabrutinib
in two weeks. I asked my doctor if
Acalabrutinib
would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.
I was diagnosed in October 2021 with CLL, and will be starting treatment with
Acalabrutinib
in two weeks. I asked my doctor if
Acalabrutinib
would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.
Luv2Craft
in
CLL America Support
Understanding Acalabrutinib
My understanding of
Acalabrutinib
is that it is a more recent form of ibrutinib in which various side effects have been eliminated or reduced. Does it have more curative properties, or lose any of the properties that ibrutinib currently contains? Am I understanding this correctly? Thanks - Dan
My understanding of
Acalabrutinib
is that it is a more recent form of ibrutinib in which various side effects have been eliminated or reduced. Does it have more curative properties, or lose any of the properties that ibrutinib currently contains? Am I understanding this correctly? Thanks - Dan
CCgroup
in
CLL Support
Coming off medication
I’ve been on
Acalabrutinib
for 10 months. WBC has dropped from 101 to 12.1 which is obviously good news. However my haematologist tells me even if/when WBC reaches normal I will continue on treatment. Has anyone had a similar experience and eventually come off treatment?
I’ve been on
Acalabrutinib
for 10 months. WBC has dropped from 101 to 12.1 which is obviously good news. However my haematologist tells me even if/when WBC reaches normal I will continue on treatment. Has anyone had a similar experience and eventually come off treatment?
julianlydes
in
CLL Support
Treatment advice after calquence fails? Pain relief advice?
She was admitted to hospital given steroids and
acalabrutinib
upon her return home. The
acalabrutinib
(calquence) was like a miracle!! After thinking we were losing her she was well again.
She was admitted to hospital given steroids and
acalabrutinib
upon her return home. The
acalabrutinib
(calquence) was like a miracle!! After thinking we were losing her she was well again.
SimmiP
in
CLL Support
request for advice on experiences with acalabrutinib treatment for CLL
I am about to start CLL treatment with
acalabrutinib
and would welcome comments from other people with experience of using this treatment, especially with regard to the incidence of side effects, their severity and how to cope with them or, if possible, reduce them.
I am about to start CLL treatment with
acalabrutinib
and would welcome comments from other people with experience of using this treatment, especially with regard to the incidence of side effects, their severity and how to cope with them or, if possible, reduce them.
giraffe162
in
CLL Support
Acalabrutinib
Hi all, had my appointment with my consultant this afternoon. All good news. Heamaglobin 116 up from 106 so normal now and no anaemia. White cell count 24.5 Red cell count 3.60 Neutrophils 3.3 Lymphocytes 20.5 Everything else was fine. My doctor doesn't want to see me again for 8 weeks but she
Hi all, had my appointment with my consultant this afternoon. All good news. Heamaglobin 116 up from 106 so normal now and no anaemia. White cell count 24.5 Red cell count 3.60 Neutrophils 3.3 Lymphocytes 20.5 Everything else was fine. My doctor doesn't want to see me again for 8 weeks but she
kitchengardener2
in
CLL Support
Information on the side effects of ibrutinib
In uk mostly starting new patients on
acalabrutinib
due to this and price https://patientpower.info/what-are-the-heart-risks-associated-with-ibrutinib-for-cll/
In uk mostly starting new patients on
acalabrutinib
due to this and price https://patientpower.info/what-are-the-heart-risks-associated-with-ibrutinib-for-cll/
Bartlet
in
CLL Support
Acalabrutinib or Ibrutinib.
Doctor suggested to take either
Acalabrutinib
or Ibrutinib. Which one is good and which diet need to follow?What precaution need to take? Input is really helpful. Please suggest. Thx :)
Doctor suggested to take either
Acalabrutinib
or Ibrutinib. Which one is good and which diet need to follow?What precaution need to take? Input is really helpful. Please suggest. Thx :)
pbaddi
in
CLL Support
Ibrutinib, Acalabrutinib, or Zanubrutinib
If you had your choice, for initial treatment in low risk CLL, which would you choose Ibrutinib,
Acalabrutinib
, or Zanubrutinib ? I ask because, some health care organizations are offering a change from ibrutinib to their patients.
If you had your choice, for initial treatment in low risk CLL, which would you choose Ibrutinib,
Acalabrutinib
, or Zanubrutinib ? I ask because, some health care organizations are offering a change from ibrutinib to their patients.
Davidcara
in
CLL Support
Acalabruitinib and Obinutuzumab
Acalabrutinib
Dr is suggesting adding Obinutuzumab would like to know more about it.
Acalabrutinib
Dr is suggesting adding Obinutuzumab would like to know more about it.
Porter01
in
CLL Support
How long before Acalabrutinib kicks in?
How long (days, weeks, months) on
Acalabrutinib
before some of you folks started seeing improved blood #'s and how long/severe did things go backwards before blood started going in the right direction?
How long (days, weeks, months) on
Acalabrutinib
before some of you folks started seeing improved blood #'s and how long/severe did things go backwards before blood started going in the right direction?
lpac
in
CLL Support
Reaction to 5th covid jab
I am being treated with
Acalabrutinib
.
I am being treated with
Acalabrutinib
.
kitchengardener2
in
CLL Support
Anyone have experience with Molnupiravir?
Commenced
Acalabrutinib
in a clinical trial August 2020. Progress going reasonably well. I am triple vaccinated against covid19. Immunity if any is questionable?
Commenced
Acalabrutinib
in a clinical trial August 2020. Progress going reasonably well. I am triple vaccinated against covid19. Immunity if any is questionable?
spanish36
in
CLL Support
Acalabrutinib and dry skin etc
I started treatment with
Acalabrutinib
in September and have been fine, no real side effects. My white blood count is now down to 24.1 and Heamaglobin in normal range. I just have a question for anyone else who is a
Acalabrutinib
user.
I started treatment with
Acalabrutinib
in September and have been fine, no real side effects. My white blood count is now down to 24.1 and Heamaglobin in normal range. I just have a question for anyone else who is a
Acalabrutinib
user.
kitchengardener2
in
CLL Support
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