Experiences with

Acalabrutinib

Hi Fellow Acalabrutinib Friends Since beginning to participate in a Acalabrutinib clinical trial several months ago, I have experienced a slow but steady increase in weight. I have cut back on calorie intake and exercised more, yet my weight continues to increase? All advice welcome. Thanks

I'm now only taking Acalabrutinib plus Co-codamol and Tramadol for headaches and pain but am seeing my Consultant on Thursday to see where we go from here. Has anyone else had similar problems?

Good morning folks. My consultant, Dr Munro rang yesterday. All good, I had had a CT scan a few weeks ago to check progress of lymph nodes and spleen. She said that the CT scan just showed a small ovarian cyst not changed from last time and all lymph nodes had reduced considerably. White cells are down

I started treatment with Acalabrutinib June 2020. During first 2 months my only side effect was lightheadedness due to low Blood Pressure (BP), especially during first few hours of taking Acalabrutinib. In October and November 2021 I had gallbladder issues and suspended treatment.

I am wondering if acalabrutinib can be a contributor. I would appreciate any feedback.

I was diagnosed in October 2021 with CLL, and will be starting treatment with Acalabrutinib in two weeks. I asked my doctor if Acalabrutinib would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.

I was diagnosed in October 2021 with CLL, and will be starting treatment with Acalabrutinib in two weeks. I asked my doctor if Acalabrutinib would treat both my CLL and MGUS. He said CLL makes the MGUS protein and that the treatment should apply to both conditions.

My understanding of Acalabrutinib is that it is a more recent form of ibrutinib in which various side effects have been eliminated or reduced. Does it have more curative properties, or lose any of the properties that ibrutinib currently contains? Am I understanding this correctly? Thanks - Dan

I’ve been on Acalabrutinib for 10 months. WBC has dropped from 101 to 12.1 which is obviously good news. However my haematologist tells me even if/when WBC reaches normal I will continue on treatment. Has anyone had a similar experience and eventually come off treatment?

She was admitted to hospital given steroids and acalabrutinib upon her return home. The acalabrutinib (calquence) was like a miracle!! After thinking we were losing her she was well again.

I am about to start CLL treatment with acalabrutinib and would welcome comments from other people with experience of using this treatment, especially with regard to the incidence of side effects, their severity and how to cope with them or, if possible, reduce them.

Hi all, had my appointment with my consultant this afternoon. All good news. Heamaglobin 116 up from 106 so normal now and no anaemia. White cell count 24.5 Red cell count 3.60 Neutrophils 3.3 Lymphocytes 20.5 Everything else was fine. My doctor doesn't want to see me again for 8 weeks but she

In uk mostly starting new patients on acalabrutinib due to this and price https://patientpower.info/what-are-the-heart-risks-associated-with-ibrutinib-for-cll/

Doctor suggested to take either Acalabrutinib or Ibrutinib. Which one is good and which diet need to follow?What precaution need to take? Input is really helpful. Please suggest. Thx :)

If you had your choice, for initial treatment in low risk CLL, which would you choose Ibrutinib, Acalabrutinib, or Zanubrutinib ? I ask because, some health care organizations are offering a change from ibrutinib to their patients.

Acalabrutinib Dr is suggesting adding Obinutuzumab would like to know more about it.

How long (days, weeks, months) on Acalabrutinib before some of you folks started seeing improved blood #'s and how long/severe did things go backwards before blood started going in the right direction?

I am being treated with Acalabrutinib.

Commenced Acalabrutinib in a clinical trial August 2020. Progress going reasonably well. I am triple vaccinated against covid19. Immunity if any is questionable?

I started treatment with Acalabrutinib in September and have been fine, no real side effects. My white blood count is now down to 24.1 and Heamaglobin in normal range. I just have a question for anyone else who is a Acalabrutinib user.