Experiences with

Acalabrutinib

Hi there.Has anyone been on Acalabrutinib iam starting treatment today,1 tablet per day 100mg,then go for blood test end of month and see doctor to see if they can up it to 2 tablets per day. Thanks John.

I’m on my 3rd month of Acalabrutinib and I must say I’m doing very well. I solved my headaches with iced coffee. Have a few aches in my legs. And a bit of inflammation in my nose. But my white blood cells are coming down and my heamaglobin is rising. So I must say I’m pleased with the result.

https://cllsociety.org/2024/12/acalabrutinib-and-obinutuzumab-for-frontline-cll-treatment/

Hi I’ve been on Acalabrutinib for over two months now but feeling that my skin is getting a bit itchy like a heat rash. Can anyone suggest what I can put on it.

I’m taking Acalabrutinib with an antibiotic . I can’t understand that if I was to have infusion and a tablet I would only be on it for 7 months. But the same med in tablet form I am in it for life. Confused

I just started my treatment about a week and a half ago. So far doing great. Very minor diarrhea one day and several minor headaches. My question is about drug storage. If you go to calquence dot com it says to store at 66 to 77 degrees f. What do you do if you go on a multiple day trip and everything

A few days ago I read on here about people who are on Acalabrutinib are suffering with muscle and joint pain. My question is - did you stop taking the tablets or reduce the dose or continue to suffer with the pain? I haven't yet discussed this with Dr's so looking fir advise. Thanks.

He received treatment in the UK STELLAR trial which adds Acalabrutinib to the usual R-CHOP chemotherapy. He's had a spectacular response and his story is here http://digitaleditions.telegraph.co.uk/data/1838/reader/reader.html?social#!

Being a CLL patient and on Acalabrutinib is it best to stay away from people who are in contact with chickenpox?? My neighbour's grandchild who is 2 has it and so far i am avoiding contact with them as they look after her occassionally.

Another doctor is advocating for acalabrutinib plus antibody drip (rituximab) 375mg 1 dose every 28 days for 6 months.

Have had a runny nose for months and can only attribute this to either CLL- I am in remission- or continuous taking of Acalabrutinib (Calquence). Anyone have same experience?

Now I’m on Acalabrutinib will I have to stop taking it before the op and then after for a week or so, any experience would be appreciated, thanks Will

I posted recently that I had been diagnosed with gout in big toe and so came off Acalabrutinib for a week whilst I took the medication. Before the gout healed, I started with foot pain, quickly followed by hip pain (RHS).

In the meantime, he halved the acalabrutinib dose, but the symptoms have persisted. We have another appointment on Wednesday next week. My husband took the opportunity to get his bloods done on Friday so we have the results ready for the appointment.

I started on Acalabrutinib in September last year. At that time my lymphocyte reading was 287 . In December I contracted covid and had to stop the medication for 2 weeks. When I restarted the acalabrutinib in early January my lymphocyte readings were 88.

My question is does the cancer cause weight loss or the acalabrutinib. Weight started dropping right after started taking the med.

I’ve been in Acalabrutinib for 3 months now. At first I had a few side affects ie Headaches, Light headed. Feeling a little nauseous . But most of that has passed now. The worst were my headaches. But believe it or not I started taking iced coffee and it cleared it. Better than paracetamol .

I finally took the plunge and agreed to start acalabrutinib on October 7th. Comments from many of you were most useful in helping me make this decision, especially about finding oneself at the "sweet spot" to start.

Hello, My dad started 100mg/daily of Calquence for manle cell lymphoma on September 9, 2024- a smaller dose because of his age, and high risk status. He has lost a lot of weight and is always tired. Any one else experience extreme fatigue - and any suggestions on how to deal with it, and same with advice

I started Acalabrutinib in December 2022. After being on the drug I was able to switch to Zanibrutinib. During my time on Acalabrutinib I had daily headaches.