CLL Support Association
9,251 members14,622 posts

Get my CAR-T cells tomorrow

As you know, I’ve been blogging on my experience and we are adding interviews and research on CAR-T (see: cllsociety.org/car-t-and-ot... but that may slow down if I am part of the 90% that end up in hospital. Check out our CAR-T educational comic book while you are there on our site, but my wife may been doing much of the posting.

Anyway, I wanted to stay in touch and look forward to continuing our conversations when I am on the far side of this with no evidence of CLL left in my blood, marrow, and nodes.

Stay strong. We are all in this together

Brian

Brian Koffman MDCM DCFP, DABFM, MS Ed

Founder and Medical Director, CLL Society Inc.

cllsociety.org

Founder, bkoffman.blogspot.com

PO Box 1390

Claremont, CA

91711

37 Replies
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Brian, sending you thoughts and prayers- STAY STRONG J.R.

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Brian, you are in the thoughts of many of us. I wish you the best of everything tomorrow and the days to follow. Your commitment to educating us and sharing your experiences gives courage to many when we are facing yet another decision relating to our treatment. Thank you for continuing to give so knowledgeably and so generously.

gina2015

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Good luck to you Brian! May your CAR-T cells do what they are intended to.

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Love the positive outlook Brian, never a better time to get treatment.

UK Sparky

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Good Luck Brian!!! Special thoughts for your family too. They have to stay strong as well .

Jacqueline

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Wishing you well and that science brings you success. Looking forward to seeing positive news over the next months.

best, rob

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Thanks for sharing everything so openly for the benefit of others. Wishing you every success.

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Best of luck to you Brian. Looking forward to your successful recovery. Stay strong.

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Brian wishing you all the best good luck in your journey stay strong!

Chris

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Brian - Sending lots of positive thoughts for an easy time with this treatment. Love to you and Patty!

Pat

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Good luck Brian.

Ann

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Good luck Brian and love to your family 👍

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Wishing you all the best Brian! May those modified T cells work their magic and return you to a fabulous state of health. Hugs and good thoughts coming to you and your family.

Nan

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Hoping all goes well and good for you. Thank you for sharing your journey with us.

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Doc,

You can beat it’s ass. As you always say, “Stay Strong “.

Jeff

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Prayers going up for you that all goes well and with no bumps in the road ahead.

BeckyL USA

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We will be waiting for you, Dr. Koffman. Lots of positive thoughts coming your way!

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You are in my thoughts. Speedy recovery Dr. Koffman!

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Good luck Brian! You got this. We'll be looking forward to hearing from you!

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Thank you! You continue to post and concern yourself with us -

Amazing! “Stay strong”.

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Brian, even for a medic expert in this subject, it’s still scary, ground breaking therapy!

Wishing you well and hope the outcome is all you wish for yourself. Thinking of your supportive wife and family who will be willing you on all the way too with their own anxieties.

Newdawn

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Thumbs up as you take a giant step where few has gone. Wishing you the best.

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Thinking of you and also sending positive thought your way.

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Good Luck

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Good luck,Brian!

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🏆

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Slay the dragon. You’re a warrior for all of us. Thanks. Sally

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Sending good vibes your way Brian. So good to read your blog.

Peggy 😀

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Every bit of me wishes you the best outcome! Go get ‘em, doc!

Ash

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You must be getting the CAR-T as I type? I wish you all the best on this journey with little to no side effects and long lasting remission. Sending warm wishes/thoughts from sunny, mild Tampa, FL

Dianne

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Keeping you in my thoughts (and checking your blog every day). Good Luck!

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Good luck Brian, hope all goes well for you and all indications of cll are banished! God bless, Terry

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Brian, others have played this game well. But today is your very own run at the brass ring. Your very own March Madness. So picture this: Here you are in life’s championship, the seats are full of us screaming fans. And at the buzzer......from half court.......you swish it!!! As a wise man said, “You are strong and we are in it together!” Thanks, friend. Bud

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Someone told me that the new T cells have that new CAR smell.. can you confirm that?

Go Mustangs.. UWO!

~chris

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No smell. Some may smell of DMSO that is used a preservative.

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Read a lot about the smell of creamed corn for transplant patepiebpnts - for everyone in the room. While maybe not pleasant, if the transplant works, who cares. Just got the new CAR smell. A little slow tonight, obviously!

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Doc,

I hope things are on the upswing.

🙏🏻

Jeff

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