About 5 short weeks ago I posted about my hubby being sidewhacked by RT for the 2nd time. His treatment using R-GDP was deemed best and he received 1 cycle. He had several bouts of confusion subsequently with a bleed in the brain as the likely culprit due to his low platelets. Alas, a head CT scan revealed several lesions. The aggressive lymphoma had spread! He now had DLBCL with CNS (central nervous system) involvement! R-GDP was stopped and palliative care commenced.
My dearest hubby passed away peacefully on 12/9/19.
The wonders of modern medicine advances over the last 20 years such as autologous stem cell transplants and Ibrutinib allowed us to have many more years than we expected. For this I am truly grateful and feel blessed.
I wish all the souls who have CLL the very best outcomes from whatever treatments you have and for all their loved ones be their rock but be kind to yourselves too.
I now am closing my time on this fantastic source of knowledge and support. Thank you for being there.
Written by
flyingfats
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Thank you for letting us know your sad news. I'm sorry that you and your husband had to endure what, if we are honest, is a worry for all of us with CLL. CLL might be curable now for some of us and for many more of us shortly, but as you know treatment options for Richter’s transformation need a huge breakthrough. I admire your grace in accepting such challenging times not once but twice. Your husband was blessed to have you there for him.
I’m so sorry for your loss. He was a lucky man to have wonderful, supportive wife by his side. I hope the memory of good times with your husband brings you the strength to move you through this sad time in your life.🌼
Thank you for letting us know about your husband. I too cared for a very sick husband until he passed away last year. The strain this has had on you cannot be underestimated and I wish you well as you cope with the future. Be kind to yourself
What a wonderful post! You sound like a sweetheart and I am so happy you had those extra years with your husband. My heartfelt sympathies and take care!
I am so sorry for your loss. It was a difficult path for your husband and your family.
R.T. is the scary road to take once and to go through it twice, my heart aches for you.
Your husband was blessed with having you by his side, I hope and wish for you to have good supportive family and friends to help you as much as you need.🙏🏻🤗
So sorry for your loss..Hope those good memories of the years you shared together can be a source of some comfort at this tough time.
Please take care of yourself , and call on this site if you need a bit of support .... We do care and you may even be able to help some of us with your knowledge .....
Dear flying fats, this was a difficult post to read, but thank you for sharing it. It has made me consider the journey my husband will have as he supports me through my coming treatment and the times that will follow. Those of us who have partners like you are truely blessed and your post reminds me I have much to be grateful for. My hope is you are now supported in your time of need.
You are so brave and good to be able to appreciate that extra time you had together, and hope this strength will carry you through a difficult time. Thank you for your warm and lovely post.
Thank you flyingfats for sharing your and your husband’s experience, greatly appreciated. I’m so sorry for your loss, but also glad that you had 20 years together after your husband was diagnosed. I wish you well in future. xxx
So sorry for your loss...such a meaningful part of your life lost but truly never forgotten. Sending you strength and love for all the memories of the times spent together and lived which will never be forgotten.
Please don’t disappear from the group. My husband has cancer, CLL and it really does it help to know how other spouses have dealt with this. Your wisdom, courage and strength can still help all of us here. God bless you in this difficult journey and know that our sincere condolences are sent out to you
So sorry for your loss. My heart goes out to you. Sending prayers for comfort and peace. It must have been difficult for you to share this with us. We truly appreciate you sharing your experience. It is a reminder for all of us that despite the new treatments available that have helped so many, our story may have an unexpected ending. My hope is that my spouse will be as supportive, kind and loving as you were for your husband. Cherish your happy memories.
I am so sorry for your loss. Your husband was so lucky to have you at his side. I am so sorry your husband and you had to endure this and thank you for sharing your story.
I'm so sorry to hear of your sad news. I'm sure that your husband felt very blessed to have such a caring wife by his side through those very tough years. Try to rest easy in knowing that he is no longer suffering.
This an all other cancers can be so cruel at times. My cousin who is only in his ealy 50's is sitting by his wifes side who is a few years younger than him waiting for her to pass. She has been through about 8 years of breast cancer hard times and it has now matasticized throughout her body and her doctors say there is nothing else they can do for her. I feel for you and or my cousin and his wife. These are sad times indeed.
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