Sidewhacked by Richter’s transformati... - CLL Support Assoc...

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Sidewhacked by Richter’s transformation twice: epilogue

flyingfats
flyingfats
50 Replies

About 5 short weeks ago I posted about my hubby being sidewhacked by RT for the 2nd time. His treatment using R-GDP was deemed best and he received 1 cycle. He had several bouts of confusion subsequently with a bleed in the brain as the likely culprit due to his low platelets. Alas, a head CT scan revealed several lesions. The aggressive lymphoma had spread! He now had DLBCL with CNS (central nervous system) involvement! R-GDP was stopped and palliative care commenced.

My dearest hubby passed away peacefully on 12/9/19.

The wonders of modern medicine advances over the last 20 years such as autologous stem cell transplants and Ibrutinib allowed us to have many more years than we expected. For this I am truly grateful and feel blessed.

I wish all the souls who have CLL the very best outcomes from whatever treatments you have and for all their loved ones be their rock but be kind to yourselves too.

I now am closing my time on this fantastic source of knowledge and support. Thank you for being there.

50 Replies
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PlanetaryKim

My heart goes out to you, flyingfats. Sympathies on your loss.

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cajunjeff

I am so sorry to read about your loss. Thanks for sharing your story, it was helpful for me to read. Jeff

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HailMary-USA

Oh, God bless you--what a difficult path you have walked!

Thank you so much for sharing your story with the group, especially in your very hour of loss and grief.

Sending heartfelt prayers for comfort and peace to you and your loved ones.

Mary

7 likes
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jeandorinski

I'm so very sorry for your loss. Thank you for sharing this with us. May you find peace in the Lord our God. Prayers for you and your family.

2 likes
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AussieNeil
AussieNeilAdministrator

Thank you for letting us know your sad news. I'm sorry that you and your husband had to endure what, if we are honest, is a worry for all of us with CLL. CLL might be curable now for some of us and for many more of us shortly, but as you know treatment options for Richter’s transformation need a huge breakthrough. I admire your grace in accepting such challenging times not once but twice. Your husband was blessed to have you there for him.

Neil

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Justasheet1

May he be at peace and may you find your own peace. Life isn’t fair.

Jeff

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Yuck

Dear flyingfats,

Thank you for taking time to share your story. You write with kind and wise words.

Please accept my condolences.

Take care,

~ Yuck

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AuntHelen

I’m so sorry for your loss. He was a lucky man to have wonderful, supportive wife by his side. I hope the memory of good times with your husband brings you the strength to move you through this sad time in your life.🌼

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terryI_uk

I'm very sorry to hear of your loss flying fats, you have my deepest sympathy, God bless, Terry

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Fowey2009

So sorry to hear this and send my sympathy and best wishes to you and your family.

It sometimes feels that we are so near and yet so far from achieving a cure for this disease

Beryl

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mrsjsmith

I am so very sorry to hear of your loss. You and your husband went through so much with years of different treatments.

Deepest sympathy.

Colette x

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camper2

Thank you for letting us know about your husband. I too cared for a very sick husband until he passed away last year. The strain this has had on you cannot be underestimated and I wish you well as you cope with the future. Be kind to yourself

7 likes
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Newdawn
NewdawnAdministrator

Thank you for being there for your dear husband and all of us who depend so much on devoted partners.

I’m so sorry to hear of his passing but am glad treatment advances secured you increased valuable years together.

Please be kind to yourself too and know this site is always here if you need us.

Warmly,

Newdawn

10 likes
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Jm954
Jm954Administrator

I'm so sorry to hear this sad news. Sending my heartfelt sympathy and best wishes.

Jackie

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MFThorses

I'm so sorry to hear this, please accept my condolences. Thank you for taking the time to inform us.

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Kokobean

What a wonderful post! You sound like a sweetheart and I am so happy you had those extra years with your husband. My heartfelt sympathies and take care!

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studebaker

I am so sorry for your loss. It was a difficult path for your husband and your family.

R.T. is the scary road to take once and to go through it twice, my heart aches for you.

Your husband was blessed with having you by his side, I hope and wish for you to have good supportive family and friends to help you as much as you need.🙏🏻🤗

Dana

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nvp815

I am so very sorry to hear of the passing of your husband. Sending you prayers for continued strength.

Warm regards,

Nan

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Hoffy

Very sorry. But glad you have positive thoughts about what did go OK as well.

Hoffy

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dmmck

So sorry for your loss. A supportive spouse is a priceless treasure. I am glad your husband’s treatment brought you those extra years together.

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bkoffman
bkoffmanCLL CURE Hero

So sorry for your loss.

1 like
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1ofakind

So sorry for your loss..Hope those good memories of the years you shared together can be a source of some comfort at this tough time.

Please take care of yourself , and call on this site if you need a bit of support .... We do care and you may even be able to help some of us with your knowledge .....

Be well!

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Root65

Dear flying fats, this was a difficult post to read, but thank you for sharing it. It has made me consider the journey my husband will have as he supports me through my coming treatment and the times that will follow. Those of us who have partners like you are truely blessed and your post reminds me I have much to be grateful for. My hope is you are now supported in your time of need.

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very

So sorry for your loss flyingfats.

Jenny UK

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chrisgrannyUK

You are so brave and good to be able to appreciate that extra time you had together, and hope this strength will carry you through a difficult time. Thank you for your warm and lovely post.

Cx

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mickimauser11

Wishing you all the best

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MGirl-Aust

Thank you flyingfats for sharing your and your husband’s experience, greatly appreciated. I’m so sorry for your loss, but also glad that you had 20 years together after your husband was diagnosed. I wish you well in future. xxx

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BeckyLUSA

So sorry for your loss. Lifting you up in thoughts and prayer for you. Thank you for letting us know.

BeckyL USA

1 like
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VaCooper63-NY-USA

Sending you strength on this part of your journey. Such a loss for you...

Virginia

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Smakwater

Thank You for sharing your strength, compassion, and kindness.

JM

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Billhere

Thank you.

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bayside64

So sorry to hear of your loss.

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lexie

Very sorry to hear of your loss. You were both trailblazers for the rest of us facing an unknown future as patients and caregivers.

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FeisalH

My condolences. May your husband RIP and God give you the strength to bear the loss and carry on.

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Smac29

Thank you for sharing your story. I’m so sorry for your loss. My heartfelt prayers are with you!

Sheryl

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manzelka

So sorry for your very sad loss.

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Cindi73

My thoughts and prayers are with you. May you find peace in your wonderful memories you shared. God bless. Cindi

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fussybritches

sorry to hear your sad news.

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Chic789

So sorry for your loss...such a meaningful part of your life lost but truly never forgotten. Sending you strength and love for all the memories of the times spent together and lived which will never be forgotten.

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kathymac52

Please don’t disappear from the group. My husband has cancer, CLL and it really does it help to know how other spouses have dealt with this. Your wisdom, courage and strength can still help all of us here. God bless you in this difficult journey and know that our sincere condolences are sent out to you

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UK-Sparky

May you both find peace and be rejoined in a better place one day. He was blessed to have a partner of your strength and outlook

God Bless

UK Sparky

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Rose_fancier

So sorry for your loss. My heart goes out to you. Sending prayers for comfort and peace. It must have been difficult for you to share this with us. We truly appreciate you sharing your experience. It is a reminder for all of us that despite the new treatments available that have helped so many, our story may have an unexpected ending. My hope is that my spouse will be as supportive, kind and loving as you were for your husband. Cherish your happy memories.

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Enice

My condolences for your loss. You were a great support for your husband. Blessings. Enice

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Peggy4

So sorry to hear this.

Peggy

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SeymourB

Oh, I'm so sorry to hear this. I hope you have loved ones to support you through this trying time.

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DaveGH

I am so sorry for your loss. Your husband was so lucky to have you at his side. I am so sorry your husband and you had to endure this and thank you for sharing your story.

Dave

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DisneyMom

So very sorry for your loss. Praying you find peace and comfort.

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Jemorgen

So sorry for your loss. ❤️

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noeagaman

I'm so sorry to hear of your sad news. I'm sure that your husband felt very blessed to have such a caring wife by his side through those very tough years. Try to rest easy in knowing that he is no longer suffering.

This an all other cancers can be so cruel at times. My cousin who is only in his ealy 50's is sitting by his wifes side who is a few years younger than him waiting for her to pass. She has been through about 8 years of breast cancer hard times and it has now matasticized throughout her body and her doctors say there is nothing else they can do for her. I feel for you and or my cousin and his wife. These are sad times indeed.

Chris

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BellaBee10

I’m so sorry for your loss. Reading your posts leaves me full of admiration for you and your husband. I wish you the very best. Nic

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