Today’s the Day!: Good morning! My husband, who... - CLL Support

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Today’s the Day!

laurieq profile image
32 Replies

Good morning! My husband, who has Richter’s, is finally getting his hip replacement done today. I have watched him be in pain for almost a year- and I’m so glad he is healthy enough to get it done. He had to stop the Pirtobrutnib one week ago and will hold for another week post-op. He was allowed to continue the Venetoclax. I have been so anxious about “what’s going to happen while he’s off the meds” but this morning, I feel a sense of calmness. Wishing everyone a good day, and if you think about it, say a quick prayer or good thought for Pete! Much appreciated!❤️

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laurieq
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32 Replies
Newdawn profile image
NewdawnAdministrator

Hoping that the hip op goes well for Pete. You’ll be in our thoughts.

I’ve just had to stop Zanubrutinib for nearly a week after just starting it 5 weeks before to treat a fairly aggressive remission. This was to allow emergency abdominal surgery. Thankfully it seems to have been fine and I’m sure his will be too 😊

Venetoclax is a very good mono treatment (a real heavy lifter) and I was on mono V for quite some time with good effects.

Best wishes and having had a hubbie that’s had this op, make sure all the equipment is in place because it’s tough to use ordinary chairs etc. The worst part my hubbie found was having to sleep on his back (something I’ve just experienced myself) 🥴

Newdawn

laurieq profile image
laurieq in reply toNewdawn

Thank you! I hope we have everything in place at home. Hoping to be able to go home later today.

Jm954 profile image
Jm954Administrator

Sending every best wish for everything to go smoothly for Peter 🙏

SeymourB profile image
SeymourB

laurieq -

I wish him all the best. I can imagine how much pain he has been in that he felt he had to take this chance to go off of therapy to get the hip replacement.

I'm not sure how they track Richters progression in the study. Maybe you could explain that for us.

I wish you all the best, too, Laurie. It's very hard for the caregiver as well, I'm sure.

=seymour=

CycleWonder profile image
CycleWonder

I have had a hip replacement after my CLL diagnosis. It was much, much easier than a knee replacement. I was not being treated at the time but am now (on Pirtobrutinib as well).

He just needs to get physical therapy and start walking.

laurieq profile image
laurieq in reply toCycleWonder

Thank you!❤️

Spark_Plug profile image
Spark_Plug

Wish you both the best outcome. 🙂

laurieq profile image
laurieq in reply toSpark_Plug

Thank you!❤️

Fran57 profile image
Fran57

Sending lots of positive wishes for it all to go very smoothly!

Fran 😉

laurieq profile image
laurieq in reply toFran57

Thank you!❤️

Dragonfly2007 profile image
Dragonfly2007

You are in my thoughts, good luck 🤗

laurieq profile image
laurieq in reply toDragonfly2007

Thank you!❤️

Praying that Pete has the best of care and will finally get some relief from his hip replacement.🙏Sally

laurieq profile image
laurieq in reply toCLLCalifornia-USA

Thank you!!❤️

PaulaRichmond profile image
PaulaRichmond

prayed for your hubby’s healing on both matters.

laurieq profile image
laurieq in reply toPaulaRichmond

Thank you so much!❤️

Stamphappy profile image
Stamphappy

I prayed for Pete's recovery and gave thanks that he has you for his care, love, and support. Just knowing someone has your back through thick & thin strengthens ones resolve to persevere. God bless you both.

laurieq profile image
laurieq in reply toStamphappy

That almost made me cry. Some days are harder than others to be the caregiver. I’m a nurse so everyone depends on me for all the answers. I feel your strength and compassion through your post - thank you.

Stamphappy profile image
Stamphappy in reply tolaurieq

I am a retired oncology nurse with cll. I've seen the devastation created by the lack of loving support. I've also seen the enormous strength loving support gives. It feeds our heart, mind, and very soul. One of the doctors I worked with said, about 70%+ ( to the best of my recollection) of fighting cancer is a positive attitude. For Pete, you are a tremendous source of positivity. Keep up the good work and, please, keep us posted. Remember, take care of yourself first. You need to stay strong to be strong. ❤️

spi3 profile image
spi3

Prayers are being sent up for a successful operation and a faster recovery.

laurieq profile image
laurieq in reply tospi3

Thank you!❤️

Thundercat2 profile image
Thundercat2

Wishing you both strength and Pete an excellent recovery!!

laurieq profile image
laurieq in reply toThundercat2

Much appreciated!❤️

Poodle2 profile image
Poodle2

Also sending prayers and good wishes to Pete. Hope it all goes well and he recovers quickly.

laurieq profile image
laurieq in reply toPoodle2

Thank you!❤️

bayside64 profile image
bayside64

Sending healing prayers for both of you.

laurieq profile image
laurieq

Thank you!❤️

Fant1924 profile image
Fant1924

not sure it was necessary, and I think the recovery is slower, but I chose resurfacing rather than THR. I did not want to risk messing with the marrow. No doctor suggested that to me, just my idea.

Dennis

laurieq profile image
laurieq in reply toFant1924

Just interested to see why you are not sure it was necessary? Re-surfacing was not an option for him.

Cindi73 profile image
Cindi73

Wishing him the best for a speedy recovery. I'll be joining him with a new hip in January. Here's to walking without pain. 😀

laurieq profile image
laurieq

Best of luck to you, Cindi!!

MIMama profile image
MIMama

Blessings to him.

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