Greetings from The Christie : Just trying to get... - CLL Support

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Greetings from The Christie

Sepsur
Sepsur

Just trying to get to the bottom of an infection - got admitted 11 last night. On special unit to check for Covid since I’ve had another hospital admission in a different hospital this week. I have to return my portable heart monitor to other hospital Monday morning - so I hope to get out of here tomorrow once IV antibiotics have done their trick

62 Replies
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Newdawn
NewdawnAdministrator

Sending best wishes and sincere hope it’s not Covid Sepsur!

It’s been a rough time for you with the severe cramps which had you falling and cutting your head.

Hope it’s a quick turn around this time and they quickly get the infection under control.

Time to keep away from hospitals!

Newdawn

Sepsur
Sepsur in reply to Newdawn

Yes I’m doing a grand tour

AdrianUK
AdrianUK in reply to Sepsur

I’m sure they will take great care of you. Keep us posted. We are all with you.

Sepsur
Sepsur in reply to AdrianUK

Thank you

Jm954
Jm954Administrator

Sending all my best wishes for a speedy exit from all hospitals for you! You certainly know how to do things with style!

Take care

Jackie

Sepsur
Sepsur in reply to Jm954

🙏

Hi sepsur

Hope your ok and out tomorrow, keep your spirits up

Best wishes

Stewie

Sepsur
Sepsur in reply to stewie

👍

Oh dear, you seem to have boarded the 'here we go again' train. Hope you are soon sorted and home again!

Cx

Sepsur
Sepsur in reply to chrisgrannyUK

Yes - there is a massive dose of deja vu going on here

Blimey, its beginning to sound like the Christie is your second home. Hope you are comfortable and that this infection situation is resolved. Keep well and hold on to your sense of humour

Sepsur
Sepsur in reply to fapumpkin

Thank you

JigFettler
JigFettlerVolunteer

Hiya! Admission with any infection at this time has to be uncomfortable. I am assuming this non Covid! Nevertheless The Christie is a remarkable hospital, so I am hoping you can relax and let the Docs take the strain!

Dig deep - it is the long view we need to take.

Thank you for sharing - the testimonies of others always inspires!

Here rooting for you!

Jig

In a dull (today) part of the UK - a tad south of you!

Sepsur
Sepsur in reply to JigFettler

Isn’t it always raining in Manchester?

Sorry to hear you're back in and infected again Sepsur. You deserve a break, hope this is easily dealt with!

Sepsur
Sepsur in reply to hawkeagle

Thank you -

Please keep us updated, Miles and hope this is infection is taken care of quickly. Not going to even think it could be COVID.

Hope your next post is written from home.

Big hug,

D.

Sepsur
Sepsur in reply to Mystic75

Thanks I will

JanEyre
JanEyre in reply to Sepsur

Oh no Sepsur, get well soon, sending hugs to you. 😘😘

Sepsur
Sepsur in reply to JanEyre

Good news Covid free but taking blood at 5am is a bit of an ask 😀

CLLerinOz
CLLerinOzVolunteer in reply to Sepsur

Great news you’re Covid free. That’s a relief. Hope they get to find out what caused the problem that led to this stint in hospital for you, though.

Sepsur
Sepsur in reply to CLLerinOz

Thank you

Tough times. Sending best wishes.

Peggy 😀

Sepsur
Sepsur in reply to Peggy4

I feel better in here, at least they treat me as the delicate flower that I am.....oh no wait, it’s because they think I have Covid 😀😳

mrsjsmith
mrsjsmith in reply to Sepsur

I am sure you are a delicate flower Miles, just like me.

Colette 🌸 🌼 🌺

Sepsur
Sepsur in reply to mrsjsmith

🤣🤣🤣😀😀

Peggy4
Peggy4 in reply to Sepsur

🤣🤣🤣🤣

Sending you healing positive energy and hoping it's not Covid.

Sepsur
Sepsur in reply to country76

Thank you

cllady01
cllady01Volunteer

You have had enough to break that wonderful sense of humour, yet you persist and we love the rapport. You make us smile with tears at your bravery in all the struggles you have had. Hoping for this stay to be quickly resolved and find you back home asap.

Sepsur
Sepsur in reply to cllady01

Thank you - they used the dreaded ‘b’ word today - so Monday’s treat is MRI, BMB & FKW.

Newdawn
NewdawnAdministrator in reply to Sepsur

What’s a FKW Sepsur?

Hope you’re managing to keep your spirits up. Sending huge best wishes.

Newdawn

Sepsur
Sepsur in reply to Newdawn

🤣🤣🤣🤣 - you walked into that one 😜

Jm954
Jm954Administrator in reply to Sepsur

Oh b***gger! 😕😕

cllady01
cllady01Volunteer in reply to Sepsur

So, the old spider to the fly--trap. Sorry for the until-Monday-at-least incarceration.

Thinking of u Sepsur, how you doing? Hope all is well.

Sepsur
Sepsur in reply to Sushibruno

Sore head, sore hip - been off ibrutinib for a week - so the joys of night sweats again - and they feed you so early like 5.30pm dinner - I’m just negotiating eating something - I’m in isolation for fear of Covid - The Christie has a couple of half decent cafes but I can’t go, I’m trapped in a torture chamber of culinary neglect.

Sushibruno
Sushibruno in reply to Sepsur

Hope u get to go home soon and get to rest. and get over this path you're going through.

Sepsur
Sepsur in reply to Sushibruno

Well tbh - I really want them to get to the bottom of what ‘switched’ my brain off Saturday morning - so if I need to stay it’s ok 😀

Sending you my best wishes. Hope you feel better soon.

Sepsur
Sepsur in reply to Ghounds

Thank you

Sending best my best wishes, I hope you will soon be out of the hospital.

jenny uk

Sepsur
Sepsur in reply to very

Thank you

Sepsur
Sepsur in reply to very

Thank you

Wishing you a speedy recovery Sepsur. You are currently in the best hospital in the UK, but you don't need me to tell you that. The spirit there is so different to any I have experienced in other hospitals, they are simply fantastic. You take care. Regards Eric.

Sepsur
Sepsur in reply to Eric70

You are so right 🙏

Wishing you better soon. Keep smiling .

Fran 😉

Sepsur
Sepsur in reply to Fran57

Thank you

Great news that it’s not Covid, Sepsur. I hope they get to the bottom of it soon and that it’s all ok! In the meantime thanks for keeping us posted and even providing a laugh or two!

Sepsur
Sepsur in reply to NaturalWaze

🙏👍

Hi Sepsur,

I’m a bit late to the party, but still hope things are getting sorted. The Christie is where I’m treated as well. It has a strange effect on me, a sigh of relief every time I’ve walked in since my first visit in July 2012. To me it is one of my ‘safe haven’ places. It always has made me feel very lucky to have the haematology team and the trials team there for me and so attentive.

atb, rob

Sepsur
Sepsur in reply to Oleboyredw-uk

Completely agree with you - I smile to myself because I always have moments that perplex them - right from day 1 of diagnosis - today was another one of those days. This is home for the next 7 days.

Hope things are on the mend now!🤞🏾🙏🏾

Sepsur
Sepsur in reply to DrARDS

Thanks - I’m here a week to run every test going- thanks everyone for their messages,

DrARDS
DrARDS in reply to Sepsur

God bless! Stay strong. Hopefully you be back soon and the angels will work their magic very soon 🤞🏾🙏🏽

Sepsur
Sepsur in reply to DrARDS

💪🤞🏻 - I’m know without a shadow of doubt that I’m in the best place - ibrutinib has transformed my day to day existence - but it does have side effects - one of those is mini seizure like episodes - I’m sort of hoping it’s not the ibrutinib because I’m very happy on it. Quite prepared for pace maker if necessary & everything else to retain the quality of life I have today.

A little bit daunted by being trapped in a white box for a week after 12 weeks of shielding.

Trying to get sketch pad & stuff over here to carry on with life.

Newdawn
NewdawnAdministrator in reply to Sepsur

Have they any theories yet Sepsur or relying on the tests to identify/confirm something?

Thinking of you. I’ve had my fair share of hospital food! 😳

Newdawn

Sepsur
Sepsur in reply to Newdawn

I think they are hoping that scans / procedures will reveal missing link.

They just mentioned PET scan too - so I’m having the full gamut

I hope it gets sorted out soon Sepsur.

Sepsur
Sepsur in reply to cyclist123

Thank you

Ferham
Ferham in reply to Sepsur

Hi Sepsur, I'm so late to the party, I hope you will be home very soon, you are in a great hospital and in safe hands . Delighted it's not covid.

Sepsur
Sepsur in reply to Ferham

Thank you / I’ve been in and out of here for about a year - it’s a unique place - you are absolutely right 😀

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