Second Rituximab infusion.

[Jacksc06]

Had my 2nd infusion today. Initial blood test showed low Haemoglobin. It took three attempts to insert the cannula so a bit sore. Antihistamine and steroids made me a little drowsy but infusion went smoothly with no dramas. The suite was full and looking around I felt fortunate seeing how poorly a lot of the patients looked. Had a couple of hours sleep when I got home. Third infusion next week. Feeling fatigued but reasonably OK. Love and strength to all.

[johnliston]

Jack I had 8 weeks of Rituxan and 4 months of steroids (Prednisone) when I was being treated for AIHA last winter/spring. My Hemoglobin was 8.3 when I started. If it had been much lower they would have given me transfusions. I started at 80 mg Prednisone a day and it took 4 months to taper off. Now I'm getting Rituxan once every 2 months as maintenance. Your symptoms sound similar to mine. Good luck.

john

[Jacksc06 in reply to johnliston]

Hi John. There was talk about a transfusion prior to the infusion but it was decided against. Best wishes.

[Mystic75]

Hope the soreness elevates soon, Jack. All the best,

D.

[Jacksc06 in reply to Mystic75]

Thanks D.

[CLLCalifornia-USA]

Praying that each day gets easier. Hang in there. 🙏 Sally

[Jacksc06 in reply to CLLCalifornia-USA]

Thanks Sally. I'm coping so far.

[Ballyhoo777]

🙏

[Jacksc06 in reply to Ballyhoo777]

Thank you.

[HopeME]

Hi Jack:

Are you still taking Ibrutinib? What is your treatment plan if you don’t mind me asking. I hope you feel better.

Mark

[Jacksc06 in reply to HopeME]

Hi Mark. I am feeling a little groggy but ok.Yes I am still taking IB. I will be seeing my haematologist soon to discuss the way forward. Prior to this treatment he was looking at me having a break from Ibrutinib so I will see what comes to be. Best wishes.

[HopeME in reply to Jacksc06]

Good Luck Jack. I know you have had a lot thrown at you recently. I hope you get some breaks soon.

Mark

[Jacksc06 in reply to HopeME]

Thank Mark, Appreciated.

[Fran57]

Glad to hear you coped at least.

Hopefully a bit easier next time.

Chin up,

Fran 😉

[Jacksc06 in reply to Fran57]

Thanks Fran.

[CycleWonder]

It’s not fun to go through some of the treatments. Your attitude of just keeping going is admirable. I hope your bone marrow starts to recover with these treatments.

[Jacksc06 in reply to CycleWonder]

Thanks, you have to keep going.

[Walkingtall62]

Jack you are amazing going through this. All the very best and hope you have a good outcome, as I know you will!!!