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CLL Support Association
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Rituximab infusion 1 so far so good

Hi everyone just got back from hospital after my first infusion of Rituximab. All went well no hiccups thank goodness. Started Ibrutinib the day before. I know I am not out of the wood reaction wise yet but so far so good.🤞for the road ahead. Thank you to everyone on this site who have helped me to get this far.

Ann

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So glad to hear your good news. All the best for continued wellness!

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Thank you. You too.

Ann

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Great news!

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Thank you.

Ann

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Hi. I had the word today that the Flair trial option for me is FCR and start my first two Rituximab infusions next week. Your post is encouraging as an pretty anxious . Thank you. Jan

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Glad my post reassured you. Keep us informed of your progress.

Good luck

Ann

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Hi. Had first Rituximab today as part of FCR (Flair) Half an hour in had a reaction ending in sickness so infusion stopped and anti emetics and steroids repeated. Settled down within half an hour and infusion continued until the end of the dose with no more problems. Taking C and F in an hour. Hoping to sleep ready to do it all again tomorrow.

Slight headache but this is usual. Day one almost done!

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Good luck for tomorrow.

Ann

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Thank you. I believe if it's going to happen it will be on the first I fusion. Fingers crossed. Jan

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Yes that what they told me. Good luck.

Ann

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Thank you. Jan

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Day 2 done. No reaction to Rituximab today or chemo! Such relief.

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Great news.

Ann

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Good news, Ann.

You must be relieved.

I hope all goes well.

David

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Thanks David. Hope all is well with you.

Ann

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We like good news. Great.

Sue

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Thank you Sue glad to share it.

Ann

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Just brilliant! Well done you x keep in touch xxxx

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That’s good to hear Ann...onwards with optimism!

Newdawn

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Thanks Newdawn.

Ann

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Thanks Bethan will do.

Ann

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Thanks David I am. Hope we can get that support group off the ground.

Ann

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Pleased it went well for you, I found the first one to cause problems then the others were ok. So you should be alright from now on.

Best Wishes, Ian

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Thank you so much for your good wishes wiganfan I hope you are right. Sorry you had problems with your first infusion but glad the rest went well. Hope you are making great progress with your treatment.

Ann

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Excellent news. I started IR on the FLAIR trial a year ago. I’ve been lucky enough to have had no real issues with either drug.

Results recently of scan and bone marrow were better than anyone expected.

Hope all goes well for you

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So pleased to hear this Gillian great news for you well done. Very reassuring to me and others on the same journey.

Ann

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Great to hear, all the best 😊 x

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Thank you so much.😘

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Glad to hear you had no reactions Ann, I didn't have any when I started either, we must be very lucky, Terry

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Thanks Terry. Yes I guess we are lucky. I am so relieved.

Ann

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Ann, so glad things went well for you! Getting past the first time must feel very reassuring. Mine is coming early next month, so you give me courage. Hope all continues to go very well for you as you press on. Thanks for keeping us posted.

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Thank you so much for your reply. I am relieved so far so good. Glad it has helped you.

Good luck

Ann

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Great news Ann - fingers crossed for the rest of your treatment.

Netty

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Thank you Netty.

Ann

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Hi Dear Ann,

Any update on your treatment? Are you still taking Ibrutinib?

Hope all is well.

Best Regards.

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Hi Paula I am still on Ibrutinib and all is well apart from a persistent cough which appears to be unrelated to my treatment.

I am to get my 9 month CT Scan in November so will know more about my status then.

Thank you for asking. I hope all is still well with you?

Take care

Ann

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