I’m a bit apprehensive about this post, but it’s about a wish list of dos and don’ts that dummies like me would cherish.
It would be great if people in the know of things would build up on something like this. Perhaps segregating this wish list into W&W group and Treatment group may also be considered.
The Dos
1. Consult your CLL specialist and doctors before you follow any advice, including the ones here
2. Share your experience and knowledge in this group and help dummies (like me)
3. Exercise regularly and keep fit
4. Eat the rainbow and eat healthy - fatty fish, fibrous veggies, colourful fruits especially berries
5. Be mindful, meditate, have PMA (positive mental attitude)
6. Alternate day EGCG and turmeric consumption - keep in mind that some may be prone to liver function numbers jumping around
7. Keep vaccinations up to date while being wary of live vaccine - consult your specialist
8. Apart from monitoring ALC, ANC, CBC, Keep checking levels of IgG, IgA, IgH, Vitamin B12, Vitamin D, LDH,
The Donts
1. Don’t be pessimistic. CLL can be controlled
2. Don’t eat unhealthy - especially be wary of processed foods, sugars, and unhealthy fats
3. Don’t overexpose to sun - CLLers pose a higher risk of skin cancers.
4. Don’t take cannabinoids - they help lymphocytes to migrate to nodes, where they get growth signals.
5. Don’t overstimulate the immune system - risk of ALC increasing is high.
I wish that knowledgeable people build on this list.
The million dollar list, in which I wish there are plenty of items - a list of items which enhance immunity without stimulating lymphocyte production. Is there anything that can be boost immunity without stimulating the immune system and WBC count?
Vitamin C?
Vitamin D?
Vitamin B12?
Prebiotics???
Kefir?? Tempeh??
I would be eternally grateful to the admins and volunteers of this group if a ready reckoner of Dos and Donts are compiled and pinned. If there already such a list, I apologise for having wasted your time.