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CLL Support Association
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Don’t stand so close to me!

I want to now live in a bubble after this year’s flu! It’s now going on a month and I’m still coughing. Thanks to Tamiflu I avoided some of the misery. However, my 3 month CLL check at Mayo came back with a dropped neutrophil count as well as a dropped hemoglobin count from last time - all from the flu apparently - my numbers were better last time. Lymphocytes still dropping so that’s good though WBC remained flat at 18 - same as last time. I’m a year plus on Ibrutinib. They loaded me up with a third round of antibiotics and an IVIG infusion. So hoping I can finally recover and get back to normal. I think bowing at a safe distance is a much better idea than hand shaking - no?

media.giphy.com/media/hWjyK...

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Sometimes you need to think of yourself first Sunny CA. I try to avoid social groups where bugs are on the go. Friends and family are in the know and love me enough to tell me if they have active colds coughs. Take care of yourself

UK Sparky

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Thank you! I usually avoid big crowds - more reason to do so now.

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Know the feeling. Just now getting over a severe head cold. Coughing, sore throat, nausea, fever. Was checked for flu but came back negative. GP was proactive though. Gave me Tamiflu and antibiotics and have been feeling way better. Was out today with family and ate at a restaurant and was asking myself- should I really be here. But I try to enjoy life and not let the CLL hold be back. Stay Strong-J.R.

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So do I but am going to be more vigilant - just should not have done crowds during a particularly bad flu season. Have been feeling so well of late got a little too confident about my immune system which clearly is not up to it. Rookie mistake - I know better.

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P.S.- Like The Police as well.👍👍

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Best post title ever. Hahaha!

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I do the fist bump or elbow bump first Rather to be safe. And make sure of no open wounds. And then I use hand sanitizer again after just to be safe. Wishing you the very best.

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Thank you! At this point I don’t want anyone’s fist or elbow in the same zip code as mine! :-)

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Stiff arm fist bump to the chest maybe if someone sick doesn't understand staying home, and at the very least staying away from others in a crowd.

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I’m going to say hello with the following “sorry don’t want to shake as may be getting a cold” voila - no more contact!

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You can also wear a mask. It keeps some people at a distance, as they think you are the germs one. Whatever it takes!

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Asians have known about masks and bowing for centuries. Designer masks are now happening here:

vogmask.com/

ellessco.com/myair-mask

pollutionairmask.com/catego...

Resist the urge to rob the local bank, though. They probably have color cameras now ...

I often think that the ROUSes of Princess Bride (Rodents Of Unusual Size) are somehow related to ROSes (Reactive Oxygen Species) in inflamed cells.

en.wikipedia.org/wiki/React...

Less romantic, perhaps, but I need some kinda visual to spur my inner hero on ... even one cell at a time.

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Now those are cool masks! As is your visual to spur your inner hero on! 😂

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Knock on wood I still have managed to not catch the flu but I don't think that speaks to the state of my health as much as it speaks to my being at home a lot...lol!

Have not even flown since January, however, I come to think of it, I do shop in crowded stores pretty often and even go to the gym! Which I think both are "kinda" risky and so when I'm there, just like you, I question myself. Today I looked around and my wishful thinking said that if they had the flu, they probably be at home in their couch... Fingers crossed ;-)!

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I go to the gym a lot and have had no issues - this happened by going to cold MN for the Super Bowl. One and done. Now I can’t get rid of residual cough and was told exercise will aggravate my bronchial passages so I’m going stir crazy having to just sit around.

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Did you ever watch “Monk”? I’ve been told I’m not immunosuppressed but let’s face it, not shaking a sore throat led me to this group. I have become weirdly compulsive about wiping down my phone, steering wheel, remotes etc. I’m taking my first flight soon after getting this diagnosis. Weighing the benefits of wearing a hazmat suit!! Sheesh!

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A Hazmat suit is an excellent idea! I do wipe down the seat and table on airplanes with disinfectant wipes - you are not alone!

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Hi,I have Cll, going on my third year.Started low dose Fludarabeen three days on in a four week cycle.No side effects to report.Was doing so good until I got hit with this nasty cold cough.Been off work for 8 days now.The cough is so persistent, I'm riding it out,tylonal and lots of lemon water.Terrified of going to Dr office.Any suggestions would be greatly appreciated.

Chris

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Add honey to lemon water and drink lots of it. But if you have any phelm that is not clear you may need antibiotics. I am on my third round - very important to stay on top of it as we can go down hill fast. Feel better!

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