As a man and as a doctor I’m more used to attempting to “fix” other people. Since being diagnosed a year ago I’ve realized that these days it’s me who needs fixing.
I know some people suffer in silence and feel alone. This group goes some way to alleviate that.
But I urge you, consider reaching out to a helpline, or get a CLL buddy, join a support group, and take the support help and advice on offer.
I’m not ashamed to say I hugely benefit from the support on offer. I will never forget the calming support that I got when I rung the CLLSA helpline immediately after diagnosis.
And then yesterday evening i called the Leukaemia Care helpline and talked to a marvelous haematology nurse about my recent issues. Found them incredibly helpful, and the conversation was so useful and reassuring and gave me so pointers for what to do.
Don’t suffer in silence alone.
Call a helpline.
Get a buddy.
And if, like me, you are suffering with fatigue come to the fatigue day in Oxford on the 16th June leukaemiacare.org.uk/suppor...
NB sorry I forgot to mention this is an UNlocked post so any replies can be indexed by google. Thanks for MsLockyour posts for reminding us in a comment.