IBRUTINIB AND HIP PAIN: First, I want to say that since Ibrutinib is such
a miraculous drug, many people want to stay on it. The hip pain needs work throughout the day,
but can be mitigated or eliminated. The main muscles that cause pain around the hips
are the quadratus Lumborum and the gluteal muscles-there are other
muscles involved as well. These two muscles are loaded with
trigger points and refer to each, and spill over down the leg to the knee and ankle. Some
patients will even get a diagnosis of sciatica, but most of these
pains are from trigger points and a lot can be done for this pain. There are also
muscles that parallel the length of the spine-the longissimus and
the iliocostallis on each side and they would also need work in some cases.
You will be able to do many things on your own by searching on-line
for yoga postures, muscle stretching, and myofascial stretching exercises for back and hip pain.
You can also learn these from an LMT or other practitioners that are certified in trigger
point work and myofascial work. Also an acupuncturist can show you points to push
that will help with hip and back pain-if you can afford seeing a practitioner. Either way
stretches and yoga postures can be done for short periods throughout the day as needed. There
are so many points on the bladder meridian for back pain, as you push them they are acupressure
points. Not just for back pain, but pain radiating down the leg as well.
Magnesium citrate 500 mgs 2x daily internally and magnesium spray on the painful area to relax muscles can be
helpful as well as magnesium malate internally, which can be taken in higher doses since the malate (malic acid)
will not cause loose stools like magnesium. Berries, apricots, and apples contain malic acid.
More oxygenation in your tissues can help to lessen pain because as muscles spasm (splint)
oxygen decreases, which causes more tightening of the muscle causing more pain. Covalen-M, for example, is given to people with fibromyalgia (less oxygen in muscle tissue), so it is useful for muscle pain by
increasing oxygen in the tissue. The mushroom Cordyceps increase blood oxygen levels, which
are good for CLL patients in general.
A doctor, ARNP, and a DPT trained in how to do dry needling for pain can be very helpful as it gets
the tissue to relax. Also neural therapy done by a trained doctor or ARNP is good therapy for pain. It seems like
this treatment just kills pain with an anesthetic, but it helps the tissue to stop sending pain signals as well. Cayenne pepper will also interfere with substance "P" to stop sending pain signals, since it thins the blood - check with your doctor.
Ginger and curcumin, and many formulas like Curaphen by Euromedica are good anti-inflammatory products for pain, since inflammation causes pain they can be useful. You would need to get healthcare provider quality to really be effective. There are external creams like Mineralgia (I find this one exceptional), Doctor Schulz - Deep Tissue Rub, level 4 Pain Relief Ointment and many more creams, again provider quality. Work with your healthcare provider. Also any herb or supplement can interfere with drugs or specific conditions that you may have makes it important to check with your doctor. If and many doctors are not knowledgeable about supplements find and ND or Clinical Nutritionist that can help you.
Since inflammation causes pain, eliminating sugar and junk food that promote inflammation can be helpful. Also you can look up foods that lower inflammation. Always check with your Oncologist or other healthcare provider. If you are getting good results with Ibrutinib and have hip and lower back pain, this information may
allow you to stay on the drug.
Food sensitivities or allergies should also be considered with exacerbating side effects. There are also supplements that can reduce side effects of chemotherapy-again check with your doctor.
I have had such great results with Ibrutinib and from so many stories so have
so many other people as well. My oncologist told me that a patient went off Ibrutinib for a year and his blood results were good during that time, as the CLL came back, the patient went back on. Why not for 2 years or even more, so I feel is is worth trying to mitigate the side effects.