CLL and Hip Replacement Surgery

[210savannah]

I have CLL 17p deletion. Been on Ibrutinib since February 2019 and have done great! I had hip replacement surgery before I was diagnosed with CLL and now find myself facing replacement for the other hip. Anyone had this type surgery while on Ibrutinib? I know there will be protocols to come off the meds etc. but I am just a little more concerned about chance of infection, being slower to heal, etc. now that I have CLL. Any of you fellow CLL patients had similar surgeries ??

[Emgeegee]

I was on ibrutinib when I had my hip replaced 2 years ago. I paused the drug for 1 week before and for a while afterward (a few weeks maybe?). It seems to me that I was off it for a few weeks after surgery because I was on a blood thinner. Anyway - my lymph nodes did not swell up and my blood numbers remained within normal ranges. It all went well and I love my new hip!

I was able to secure a private room for my 3 nights in hospital - I was concerned about COVID-19, etc. At that time, hospital staff in my area were still masking so the situation was a bit different than now. I have nothing to compare it with since I have only one hip done, but I don’t think that the CLL or ibrutinib caused any problems. Hope all goes smoothly for you!

[210savannah in reply to Emgeegee]

Thank you for the encouragement! It was definitely worth having the hip replaced and I don’t dread the surgery as much as I did the first time. Just having CLL gave me cause for concern I guess. Thanks so much.

[LynnB1947 in reply to Emgeegee]

Emgeegee - I have not had any surgery other than a tooth extraction, & I stopped ibrutinib several days before & after the surgery. No problems. I have been on ibrutinib along with a blood thinner, Coumadin, for 9 years without any problems. I recently changed CLL specialists & I am now on a drug holiday. My doctor thinks I will go 3 years or more before I need treatment again.

Best wishes to 210Savannah with your upcoming hip surgery.

Lynn

[210savannah in reply to LynnB1947]

Thank you!!

[farber]

Had THR during Imbruvika

[210savannah in reply to farber]

Hopefully all went well for you!

[farber in reply to 210savannah]

I had no problem

[lankisterguy Volunteer]

Hi 210savannah,

-

Please look on this web page for the box labeled: Related Posts

*Cll and Hip replacement healthunlocked.com/cllsuppo...

*Hip replacement and cll healthunlocked.com/cllsuppo...

*CLL & Hip Replacement healthunlocked.com/cllsuppo...

*Knee Replacement Surgery and CLL

*Covid and CLL and Surgery

-

Len

[210savannah in reply to lankisterguy]

Thank you!

[Ptown]

Good morning 210savannah, I wanted to wish you well as you get your new hip and that you recover swiftly and without incident. Sending support! Carolyn

[210savannah in reply to Ptown]

Thank you so much.

[Bajabarb]

Hi, Savannah! I have 17p deletion, and TP 53 deletion as well as several other unfavorable markers which put me in a high risk category. I recently had a hip replacement for which I stopped Acalabrutinib for 5 days before and 5 days after. My orthopedist put me on a blood thinner for a month after surgery during which time I restarted the full dose of Acal again. No problems at all, not even more bruising. I am very happy to be able to walk again without pain! Hope your surgery goes well with no complications…..I do think physical therapy after surgery was very helpful.

[210savannah in reply to Bajabarb]

so glad you did well! I agree that the physical therapy is key to a full recovery!

[DoriZett]

My hip was done pre CLL/SLL - but I recently had 2 oral surgeries (tooth extracted with a bone graft - ready for dental implant surgery next year!) and I was concerned about the healing time as well. I seemed to heal just fine. I am also not suffering frequent infections on a regular basis with my CLL/SLL so I know we are all different that way. Best of luck to you!

[BeckyLUSA]

Had my hip done in June 2022, had been on Ibrutinib since August 2017. Stopped the drug 5 days before surgery and went back on 5 days afterwards. No increase in nodes or numbers.

[210savannah in reply to BeckyLUSA]

Thanks for the encouraging words! Glad you did so well!