Dx in 2013 and have been treated with Ibrutinib then Venetoclax. Overall I have done well but over the last year my Hg has begun a slow trend of decrease, now in 11s. I realize that is not at all dangerous but I do get winded with any vigorous activity or when I travel to the mountains.
I take the B vitamins and a small amount of Fe but the decrease continues. I am visiting a CLL expert next week and I am looking for some solutions to suggest. I was at my usual Oncologist on Monday and picked up a copy of Doctor’s Notes to deliver to the Specialist. An entry I read there states that I had brought up the decline and the Note stated in caps that my Hg decline would NEVER return to normal or be reversed.
Was wondering what may be some suggestions, such as:
- intermittent steroids?
- EPO?
- other?
Thanks for any suggestions,
Dennis, 74, Venetoclax