Hi - I'm new to this community. First felt swollen lymph node under jaw, diagnosed CLL Jan 2015 at age 63 female. Shocked at first and scared now, watching my numbers going up moderately fast, and periodic pain in swollen nodes. In watch and wait per my hematologist.
Have had UTIs in the past, then Nov 2015 got UTI and no antibiotic cleared it. Had scope, no problems seen, taking Cranberry Extract, Vit.C, D-Mannose, and acidophilus as prescribed by Urologist, symptoms still persisting then developed a burning rough tongue with raw spots, hard to eat and talk sometimes. Doctors have no solutions.
Also reading as much info, and attending seminars etc. about CLL research and treatments to help me prepare.
Has anyone had any of these problems, any suggestions?